Mainly muscle relaxants, I know about chest infections and GSF 😋

[Evertonian]

My wife who has PSP gets severe pain in her jaw neck and shoulders she recently seen a dental consultant who said she needs to use a muscle relaxant alongside pain relief. She has had a lot of chest infections and has been in hospital 4 times, she's also been referred to our local hospice for daycare and Gold Standards Framework. Has anyone had any luck with muscle relaxants........ thanks

Evertonian 🤔

[GmaDeb]

Hi Evertonian. I have the same problem. My neurologist put me on Baclofen 10mg 2-3 times a day. Last fall they tried to taper me off it, but after 1-2 weeks I was miserable with severe muscle spasms and migraines. After I experienced an episode with my whole body frozen (very scary- lasted 2 hours) they decided I needed to continue on this med. I also have liquid Ativan now for emergencies and to help with increased pain/spasms/freezing episodes. I was diagnosed with PSP in 2014 (I think) and am receiving Palliative Care in the States. That jaw pain is especially brutal. Please give your wife gentle hugs from me. -Debxxx

[Evertonian in reply to GmaDeb]

Thanks for the replys baclofen has been mentioned before but I think it it doesn't work with sinemet We are seeing our GP on Tuesday so will ask about giving baclofen a try ......thing couldn't get much worse

Thanks. Evertonian

[Willow_rob]

Hi Evertonian, have just tried Bacalofen on my wife who has PSP. No noticeable change to her tremendous stiffness or grip but the side effect she had was virtually catatonic. I took her off them and she has returned to her normal. No two PSP sufferers react the same

Best of luck