CBD and PSP : Has anyone ever heard CBD and... - PSP Association

PSP Association

9,383 members11,414 posts

CBD and PSP

hubetsy profile image
9 Replies

Has anyone ever heard CBD and PSP described as the same disease but on different ends of the spectrum?

Written by
hubetsy profile image
hubetsy
To view profiles and participate in discussions please or .
Read more about...
9 Replies

No. They are group together on this site. They must be very similar.

enjoysalud profile image
enjoysalud

Prime of LIfe Brain diseases are listed as PSP, CBD, MSA, FTD, ALS and CTE. Google to get more information

SewBears profile image
SewBears

Thank you for asking this question. The only differences that I’ve been able to find is that with PSP there are eye movement issues and with CBD not so much. They’re both horrible 😢 I know that people get misdiagnosed and the only way to truly know which one it is, is with an autopsy. It’s my understanding that a correct diagnosis determines the medication plan?

We see the doc again in 2 months and I’ll ask him what the distinctions are. Anyway, please let me know what else you find out. Thank you!

hubetsy profile image
hubetsy in reply to SewBears

A caregiver at a support group said that his wife's neurologists told him this was the case. I had never heard it before.

racinlady profile image
racinlady

No, but they seem to be similar in the way the tau protein attaches to the brain which, as I understand it, has some similarity to Alzheimer's too. I think that is the main reason they get grouped together. I'm certainly no expert though.

hubetsy profile image
hubetsy in reply to racinlady

Thank you. Nor am I. Someone shared that "fact" at a meeting of PSP patients. I hadn't heard it before.

Karynleitner profile image
Karynleitner

When we were at Mayo Clinic a Doctor who specialized in Parkinson plus diseases mentioned that new research being done on Alzheimer’s may someday help people with PSP. He explained that some of his colleagues at Mayo have been worki g for several years to reduce the main protein building up in the brains of Alzheimer’s patients. He said they had been successful in reducing this in the brains of patients in the study, yet with no relief from the terrible symptoms of Alzheimer’s. He explained that Tau is also present. Now they are wondering with the small amounts of Tau protein are a large part of the problem. They are continuing research. .

hubetsy profile image
hubetsy in reply to Karynleitner

So many similarities among the tau protein neurodegenerative disorders.

Christine47 profile image
Christine47

pspblogdotorg.files.wordpre...

I am sorry, but I can't seem to post an image. This picture may answer your question. It is from Dr. Golbe's blog from May 2014. psp-blog.org/2014/05/

You may also like...

Share experiences of CBD or PSP

Anyone who knows someone with CBD or PSP please get in touch. In particular someone who lives in...

Is there ever a good death with PSP or CBD?

about managing an infection? Has anyone's loved one with either PSP or CBD simply tiptoed out of...

NEW STUDY OF PSP AND CBD UNDERWAY

study of PSP and CBD underway in California. It is a study of the progression of these two...

South Wales - people with PSP/CBD

This is a message to anyone in South Wales who has PSP or CBD. I've moved back to Cardiff and...

2024 PSP & CBD Ice Cream Challenge

members, The PSP & CBD Ice Cream Challenge is an event I created 9 years ago to help raise PSP-CBD...