Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for July 2018

Another lost to PSP

Early this morning Brian lost his fight ,and boy did he fight in this last week struggling to breath He as all who have gone. Score don’t deserve this bloody...

Early this morning Brian lost his fight ,and boy did he fight in this last week ...

lindaD_

•6 years ago

24 Replies

Agent Orange Presumable in US

Does anyone have any experience with Receiving disability from the US Veterans Association for PSP or Parkinsonism or “Parkinson Like” diseases. With the...

Does anyone have any experience with Receiving disability from the US Veterans ...

Karynleitner

•6 years ago

13 Replies

my hero Geoff

how can I thank you all for your support it is such a comfort to read all your words I feel I'm not alone in my grief and I am going to see a councillor...

how can I thank you all for your support it is such a comfort to read all your ...

wheelrace

•6 years ago

10 Replies

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An appropriate poem

I know this originally was for Alzheimer's but it is so true of other neurological conditions. AnneandChris

I know this originally was for Alzheimer's but it is so true of other neurologic...

AnneandChris

•6 years ago

10 Replies

New Life

Friends, I wanted to share my joy with you all. Last week, after one month of my wife’s passing, I was blessed with a new granddaughter. Bobby

Friends, I wanted to share my joy with you all. Last week, after one month of my...

Beads0122

•6 years ago

27 Replies

60 years and counting

Today is mum and dad's Diamond Wedding Anniversary. I want everyone to know how proud I am of both of them and how much they are loved by us all. There will...

Today is mum and dad's Diamond Wedding Anniversary. I want everyone to know ho...

Pjgil

•6 years ago

24 Replies

Steve's birthday

Hi, today was Steve's birthday. What better way to celebrate it than welcome this gorgeous creature into the world. My new Grandson, born today at 1.49pm BST....

Hi, today was Steve's birthday. What better way to celebrate it than welcome thi...

Heady

•6 years ago

38 Replies

Rochester forum

Please send me the link. I have been reading psp information on the site for a while and appreciate the help it has provided.

Please send me the link. I have been reading psp information on the site for a w...

Hidden

•6 years ago

1 Reply

CurePSP Family Conference in Rochester, MN

If anyone is interested I just received notification that the videos of the conference are now available on YouTube. I can post the link for anyone who is...

If anyone is interested I just received notification that the videos of the conf...

taihde

•6 years ago

13 Replies

my hero geoff

its been two months since Geoff passed away I am so lost without him my family are so wonderful they include me in everything and I really cant fault their...

its been two months since Geoff passed away I am so lost without him my family...

wheelrace

•6 years ago

19 Replies

Feeding tube question

Hi, I haven’t posted in a while but my partner has PSP and recently started using a feeding tube supplemented with protein shakes. This has made a big...

Hi, I haven’t posted in a while but my partner has PSP and recently started us...

PSPPsP

•6 years ago

6 Replies

Just published another book on the application of math in economic modelling

It develops mathematical models to deal with non linear effects such as stock price crashes. Title is modeling conflict and competition far from equilibrium...

It develops mathematical models to deal with non linear effects such as stock pr...

jmoffat

•6 years ago

10 Replies

May I join you here ?

Hi, I have been following this site for a while now but have not introduced myself. The reason was my husband's diagnose is MSA and what I have been reading...

Hi, I have been following this site for a while now but have not introduced my...

stephanotis

•6 years ago

23 Replies

Thankful for u guy's stories.

I've read and appreciate all of the stories, info and advice here. My Father in-law was diagnosed maybe 2 years ago. I find this site very insightful on...

I've read and appreciate all of the stories, info and advice here. My Father in...

LavaLampZone

•6 years ago

9 Replies

CBD OIL

In members experience which is the most effective CBD oil they have used on PSP patients.

In members experience which is the most effective CBD oil they have used on PSP ...

edgie

•6 years ago

9 Replies

Birthday treat

Hi Mum said she had a nice day yesterday, she was utterly exhausted with just the hustle & bustle going on around her. The different staff shifts sang to her...

Hi Mum said she had a nice day yesterday, she was utterly exhausted with just ...

Spiralsparkle

•6 years ago

15 Replies

The Big Bang of Alzheimer's and Tau Protein

Marie_14 read this article from Science Daily describing the beginning of tau proteins "breaking bad" The moment before they get sticky and start to clump....

Marie_14 read this article from Science Daily describing the beginning of tau pr...

raincitygirl

•6 years ago

30 Replies

Weight loss

I was at the nursing home when dad got weighed today. He is down to 129 lbs (58.5 kg) and is 6 foot 2 inches tall. All he wants to eat are sweets,...

I was at the nursing home when dad got weighed today. He is down to 129 lbs (5...

Dadshelper

•6 years ago

6 Replies

Forgotten faces

My husband's ability to recognize faces is really getting worse. There are times when he seems to be very lucid and mouths lengthy conversations. I am getting...

My husband's ability to recognize faces is really getting worse. There are times...

-shelly26-

•6 years ago

31 Replies

Burgundy leatherette Riser Recliner Chair for sale

Riser Recliner leatherette Chair in as new condition. Has a battery enabling its use during a power cut Adjustable back cushions £500 Collection from Sway, New...

Riser Recliner leatherette Chair in as new condition. Has a battery enabling its...

Gadgetgeek

•6 years ago

Be the first to reply

Thanks, everyone, for your welcome and insights

What a responsive and informed group you are! I had no idea -- when I posted I hoped that someone would reply in a month or two. The way I found you was I...

What a responsive and informed group you are! I had no idea -- when I posted I ...

Marilyn_cbd12

•6 years ago

2 Replies

Newbie

Hi, I am new to the group.My husband was diagnosed with PSP in June 2018. He has had symptoms for the last 2 years and has had eyes tested/glasses,gone to...

Hi, I am new to the group.My husband was diagnosed with PSP in June 2018. He has...

lower

•6 years ago

14 Replies

Applying for CHC

As I seem to be one of the few who has not got CHC I think it is about time I had another try as our money is fast disappearing. Any hints would be welcome....

As I seem to be one of the few who has not got CHC I think it is about time I ha...

Dickenson2

•6 years ago

6 Replies

Grandchildren and dealing with PSP

Our wonderful granddaughter got a tattoo, it has our wedding anniversary dates on it as well as the hummingbirds for her grandpa's disease PSP. So very...

Our wonderful granddaughter got a tattoo, it has our wedding anniversary dates o...

Hidden

•6 years ago

8 Replies

Sudden deterioration

Hello there Chris has had a chest infection for 10 days and has just finished a course of antib's. However his mobility has deteriorated drastically. He was...

Hello there Chris has had a chest infection for 10 days and has just finished a ...

AnneandChris

•6 years ago

19 Replies

Riser chairs

Can anyone tell me if riser chairs are worth the investment? Particularly for tall people. Thanks. Juliet x

Can anyone tell me if riser chairs are worth the investment? Particularly for ta...

JCRy

•6 years ago

29 Replies

CBD and Neck issues

Hello. Just joined. Wonderful husband is 12 years into CBD. Can't get his chin off his neck -- severe torticallis-- following a Botox injection that...

Hello. Just joined. Wonderful husband is 12 years into CBD. Can't get his chi...

Marilyn_cbd12

•6 years ago

15 Replies

Birthday ideas

Hi all It will be Mum's birthday this Friday. I am at a total loss at what to get her as a present. Any ideas for late stages of these diseases? She will...

Hi all It will be Mum's birthday this Friday. I am at a total loss at what to...

Spiralsparkle

•6 years ago

41 Replies

The end

My father died on Saturday. Too many of you hear know the mix of loss and relief. Thanks to everyone for the support you’ve given me when I came here with...

My father died on Saturday. Too many of you hear know the mix of loss and relief...

Blots

•6 years ago

25 Replies

Temporary shower cubicle

Hi all, Just wondering if anyone would like to purchase a temporary shower cubicle ( if that is allowed on this site ... please delete if not appropriate?)...

Hi all, Just wondering if anyone would like to purchase a temporary shower cubi...

SallySmith

•6 years ago

3 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for July 2018

Another lost to PSP

Agent Orange Presumable in US

my hero Geoff

An appropriate poem

New Life

60 years and counting

Steve's birthday

Rochester forum

CurePSP Family Conference in Rochester, MN

my hero geoff

Feeding tube question

Just published another book on the application of math in economic modelling

May I join you here ?

Thankful for u guy's stories.

CBD OIL

Birthday treat

The Big Bang of Alzheimer's and Tau Protein

Weight loss

Forgotten faces

Burgundy leatherette Riser Recliner Chair for sale

Thanks, everyone, for your welcome and insights

Newbie

Applying for CHC

Grandchildren and dealing with PSP

Sudden deterioration

Riser chairs

CBD and Neck issues

Birthday ideas

The end

Temporary shower cubicle

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive