CurePSP Family Conference in Rochester, MN

[taihde]

If anyone is interested I just received notification that the videos of the conference are now available on YouTube. I can post the link for anyone who is interested. The speaker on caregivers was great. Very motivational.

[Pavaga]

Hello Taihde,

Yes, I would like to see the conference. Can you please forward the link. Thank you very much, Patty

[ninalulu in reply to Pavaga]

i like to have a link. thanks

[Nanny857]

Hi, I would like to see it too please.

[DeDeDickson]

You beat me to the punch, as I just opened the email as well.

I agree that the caregivers’ presentation was wonderful. And, truthfully, I also enjoyed the one explaining how hard it is to diagnose the Parkinsonism diseases. We all know it to be true but this explains why it seems to take some doctors time to come to a PSP or CBD or MSA diagnosis.

[Marie_14]

Please could you send the link? Thank you.

Marie

[taihde]

Here is the link:

The videos that were filmed at the Family Conference are now available on our YouTube page here: youtube.com/playlist?list=P...

[Kevin_1 in reply to taihde]

Thanks Taihde

[Karynleitner]

Thank you.

[taihde in reply to Karynleitner]

Karen, there was a lift mentioned in the last presentation thAt made me think of you. She's a very small lady but was able to manage her husbAnd who I believe she said was

Over 6'.

[Karynleitner in reply to taihde]

Thanks. I’ll definitely watch for that. We have a Sabina Sit and Stand which is great, but still not easy. I really can manage it without too much trouble. When he is Unable to bear weight on his legs, we’ll have to regroup. I’m Just getting a little burned out and discouraged .

Thanks for thinking of me.

I hope you are doing well. PSP Is tough. Have a great week. 😃

[Yvonneandgeorge]

Could you also please send me the link. Thank you Yvonne xxxx

[taihde in reply to Yvonneandgeorge]

Link already posted above. Let me know if you can't see. We will be out of town for a few dAys at our "home away from home" in the northern woods. Since this disease is so unpredictable we are tAking as much advantAge of the good days that I still have as we can. We have no WiFi there so I'll be out of touch. Reminds me so much of my roots (Scotland) . Some good books, good music and lots of peace and quiet away from the city.

[kenh1]

Thank's for the link. Very interesting and informative.