Birthday treat: Hi Mum said she had a nice... - PSP Association

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Birthday treat

Spiralsparkle profile image
15 Replies

Hi

Mum said she had a nice day yesterday, she was utterly exhausted with just the hustle & bustle going on around her. The different staff shifts sang to her , she loved all the flowers & balloons. Her room smells amazing with all the bouquets. She fell asleep last night happy I think.

I had asked my friends to send in cards for her , she didn't know the people personally but it made her smile and say Ah. Some had got their children to hand make a card and that really touched her.

Different staff on today on all shifts so I'm sure she will be made a fuss of again.

I took her dog in and she loved that, put her on the bed and put her hand on her fur so she could feel her. I also got a photo of the dog put on a big photo block for her.

I found it quite an emotional day, happy but also sad about how she has deteriorated

Thanks for all the suggestions.

Xxx

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Spiralsparkle profile image
Spiralsparkle
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15 Replies
Kevin_1 profile image
Kevin_1

Hi SparalSparkle

How very wonderful. :)

And, yes so very emotionally draining.

xx

Spiralsparkle profile image
Spiralsparkle in reply to Kevin_1

It is and I'm really struggling with the emotional stuff & trying to cope with her fading away.

How is Liz?

Kevin_1 profile image
Kevin_1 in reply to Spiralsparkle

Hi SpSparkle

"I'm really struggling with the emotional stuff & trying to cope with her fading away. "

I exactly where I am at.

Liz gets so much tiredness now too. Sometimes the effort of sustaining anything more than a greeting is beyond her.

She came home last Wednesday, for the afternoon. We sat and watched stand up comedians on TV and then went out into the garden. She loves the visits home, but then the tears were streaming down her face because it reminded her of all that she was losing. Healthy tears probably. We just hugged until they passed.

She has a friend visiting her today and she will come home again tomorrow.

So upsetting. So I make myself garden and I make myself do different bread recipes and so forth. It helps, but it's not really living.

Spiralsparkle profile image
Spiralsparkle in reply to Kevin_1

Oh bless her.

It is lovely you are able to still being her home but then also a stark reminder of the reality of it all.

I'm just to exhausted and drained to be bothered to do anything, apart from worry!

Hope tomorrow's visit is a happy one.

Kevin_1 profile image
Kevin_1 in reply to Spiralsparkle

Thanks

You can only do what you can do. I find emotional exhaustion much tougher than physical exhaustion.

So do take care of yourself. You have done wonders for her.

Spiralsparkle profile image
Spiralsparkle in reply to Kevin_1

Ditto. Mental and emotional knocks me off my feet.

Satt2015 profile image
Satt2015

Well done Spiralsparkle, your an amazing daughter! X

Spiralsparkle profile image
Spiralsparkle in reply to Satt2015

Thank you. As are you mwah

doglington profile image
doglington

What a lovely memory you have made. A happy, sad day.

love, Jean xx

Spiralsparkle profile image
Spiralsparkle in reply to doglington

Thank you, yes a very mixed day for me but happy I think for Mum x

Marie_14 profile image
Marie_14

Spiral

Well done!! It sounds like your Mum had a lovely day. Love to her and to you.

Marie x x

raincitygirl profile image
raincitygirl

Glad she had a good day Spiral :-) To bring our loved ones struggling with this disease an experience of joy, however brief, is the best thing. She knows she's loved and its the very very best thing you can do for her at this point.

XXX Anne G.

Nanny857 profile image
Nanny857

Sounds like you gave your mum a perfect wonderful happy birthday. Well done Spiral. Lots of love to you Nanny857xx

Beads0122 profile image
Beads0122

What a lovely day. Thanks for sharing the joy of the day with us. Cherish days like that despite the difficulties.

Bobby

Katiebow profile image
Katiebow

Trying to make the best of a bad situation is all you can do to make your dear Mum's life happier, great that you are trying to make memories of a mother you obviously dearly love.

Big hugs

Kate xxx

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