Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for July 2018

Fatigue

My husband who was diagnosed in Sept 2016, but had some of the symptoms in 2012. I read the posts, but have only replied a couple of times when I felt my...

My husband who was diagnosed in Sept 2016, but had some of the symptoms in 2012....

Bobaroony

•6 years ago

32 Replies

Loo problem

I wondered if it was normal with CBD to need to pee every 1-2 hours 24/7 which my mum does?

I wondered if it was normal with CBD to need to pee every 1-2 hours 24/7 which m...

Hidden

•6 years ago

12 Replies

Passing out after meals.

It is becoming more common for Ian to pass out when he has the main meal of the day. Over the last several years it has happened in 4 restaurants, with...

It is becoming more common for Ian to pass out when he has the main meal of the ...

JCRy

•6 years ago

14 Replies

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Diagnosed with CBD

Hi my grannie was diagnosed in June of this year with CBD after 4 years of tests. I look after her a few days a week as she's unable to do things by herself.

Hi my grannie was diagnosed in June of this year with CBD after 4 years of tests...

Ns1994

•6 years ago

9 Replies

Hallucinations

My husband has started to talk of dogs (we only have one). Even describing the colour. Also that there are bugs in his room. Is this normal for CBD? He still...

My husband has started to talk of dogs (we only have one). Even describing the c...

beau1988

•6 years ago

31 Replies

I don't know what to do and how to get this problem Of my father cured

My father is 47 years old he has both diabetes and blood pressure problem 3 months ago his asthma problem had been treated but he has a regular problem of...

My father is 47 years old he has both diabetes and blood pressure problem 3 mont...

sameer726337

•6 years ago

6 Replies

Diagnosis

Just wanted to say Hi 👋 My Mum was diagnosed with CBD in June 2018 after 4 years of tests. We converted our home so Mum could move in with us and I’m her...

Just wanted to say Hi 👋 My Mum was diagnosed with CBD in June 2018 after 4 year...

Hidden

•6 years ago

12 Replies

MRI SCAN AND PSP

May I ask you, if you know from MRI scans what the size of midbrain is with psp? My dads is 8 mm and i am worried :((

May I ask you, if you know from MRI scans what the size of midbrain is with psp?...

Hidden

•6 years ago

9 Replies

My dads doc prescribed azilect and madapar. I wonder if this will work? Any experience with azilect??

My dads doc prescribed azilect and madapar. I wonder if this will work? Any expe...

Hidden

•6 years ago

5 Replies

This sounds encouraging

https://www.businesswire.com/news/home/20180703005657/en/Volunteers-Dosed-Phase-Clinical-Trial-PBT434-Prana%E2%80%99s

https://www.businesswire.com/news/home/20180703005657/en/Volunteers-Dosed-Phase-...

Babowen898

•6 years ago

3 Replies

Prism glasses : If anyone not using their prism glasses i would like to buy them please

Hi everybody, My dad who lives in Istanbul has been suffering from PSP for 12 years. He was only 55 years old when he was diagnosed. I and my sister have...

Hi everybody, My dad who lives in Istanbul has been suffering from PSP for 12 ...

Aslin

•6 years ago

33 Replies

When does it start to improve?

Michael died 5 weeks ago. I still can't talk about him without tears. If someone asks how I am, the tears start. Looking at his picture causes tears or just...

Michael died 5 weeks ago. I still can't talk about him without tears. If someo...

Mikey12345

•6 years ago

47 Replies

coconut oil Suplement

I m new I was reading about coconut oi, i only take supplements what kind i get

I m new I was reading about coconut oi, i only take supplements what kind i...

ninalulu

•6 years ago

26 Replies

Feeding tubes

My father's doctor has recommended a feeding tube as he recently had pneumonia and is very thin and not eating as much as he should with all the problems...

My father's doctor has recommended a feeding tube as he recently had pneumonia a...

PDDJED

•6 years ago

8 Replies

My mom with CBD for approx. last 8 years

Hello All, First of all thanks for being such good people with such great hearts being a blessing in so many people's lives. I had joined this community a few...

Hello All, First of all thanks for being such good people with such great hearts...

arinkb

•6 years ago

7 Replies

Pins and Needles

My husband is losing the use of his left hand and leg but is now complaining of pins and needles in his right hand. Has anyone else any similar experience? Is...

My husband is losing the use of his left hand and leg but is now complaining of ...

AnneandChris

•6 years ago

9 Replies

Meds for psp

What is the best medication for psp? Anyone know? Is there a cure??

Hidden

•6 years ago

10 Replies

Restless legs

My brother John suffers from what the doctors have decided is CBD, at first they thought PSP. " Restless Legs" are driving him CRAZY!! DR. has prescribed...

My brother John suffers from what the doctors have decided is CBD, at first they...

sarahb01

•6 years ago

18 Replies

Funeral Over, Interment ahead, numb

Funeral for Charles was lovely, everyone gone now and house completely quiet. No phone calls, no emails, nothing. I'm numb, can't think straight and walk...

Funeral for Charles was lovely, everyone gone now and house completely quiet. N...

Cuttercat

•6 years ago

33 Replies

for my dad

I took my dad to nurologist. My dad had an mr scnan. the doctor said my father is most probably psp. what is this? what are the main sypmtoms of this disease?

I took my dad to nurologist. My dad had an mr scnan. the doctor said my father i...

Hidden

•6 years ago

2 Replies

my father had an mr scan. nurologist said its most probably psp. what does that mean?

my father had an mr scan. nurologist said its most probably psp. what does that ...

Hidden

•6 years ago

12 Replies

Mum hasn't eaten or drank anyt...

Mum hasn't eaten or drank anything for the last 4 days.... she has lost 3 stone in 6 weeks and is so very frail. She's barely awake. I know the end is near.....

Mum hasn't eaten or drank anything for the last 4 days.... she has lost 3 stone ...

Careenh

•6 years ago

14 Replies

PSP

Hi. My mother has been diagnosed with PSP..

Flimbosquest

•6 years ago

5 Replies

Finally free

My darling, gentle, kind gentleman passed away tonight. I don’t think it has sunk in yet. Thank you for all your support. Anne

My darling, gentle, kind gentleman passed away tonight. I don’t think it has sun...

Rocksbeb

•6 years ago

25 Replies

Mom with CBD declining

My mom was diagnosed with CBD 2 years ago. Her neurologist was shocked by her slow presentation of worsened symptoms. That all changed 2 months ago. She...

My mom was diagnosed with CBD 2 years ago. Her neurologist was shocked by her sl...

Ruthcolene

•6 years ago

10 Replies

Another fall

Hi all well Charlie fell last week, I was resting big mistake on my part. When I woke up he was out side said he fell, see what happens with therapy this week....

Hi all well Charlie fell last week, I was resting big mistake on my part. When I...

Marg52

•6 years ago

3 Replies

Toothpaste

In case this could help your loved ones, I read an article in a PSP Magazine that using toothpaste with fluoride helps as it doesn’t foam as much. I purchased...

In case this could help your loved ones, I read an article in a PSP Magazine tha...

Hidden

•6 years ago

10 Replies

Cannot get on the website

Anyone else having problems get onto the site, we have been trying all day to get onto others posts but won’t open? Any ideas , feel lost with you all x Yvonne...

Anyone else having problems get onto the site, we have been trying all day to ge...

Yvonneandgeorge

•6 years ago

32 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for July 2018

Fatigue

Loo problem

Passing out after meals.

Diagnosed with CBD

Hallucinations

I don't know what to do and how to get this problem Of my father cured

Diagnosis

MRI SCAN AND PSP

My dads doc prescribed azilect and madapar. I wonder if this will work? Any experience with azilect??

This sounds encouraging

Prism glasses : If anyone not using their prism glasses i would like to buy them please

When does it start to improve?

coconut oil Suplement

Feeding tubes

My mom with CBD for approx. last 8 years

Pins and Needles

Meds for psp

Restless legs

Funeral Over, Interment ahead, numb

for my dad

my father had an mr scan. nurologist said its most probably psp. what does that mean?

Mum hasn't eaten or drank anyt...

PSP

Finally free

Mom with CBD declining

Another fall

Toothpaste

Cannot get on the website

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive