My wife is now having saliva problems ,I have spoken to gp and dn but nobody seems to know who to contact about suction. Your help as always is appreciated.
Suction machines: My wife is now having... - PSP Association
Suction machines
My GP didn’t know either so I printed details and a photo of a suction machine out and handed it to him saying my husband needed one. I rang him a week later and he said he had handed it to the district nurse. A couple of weeks later the DN rang to ask if she could come and arrange a training session. I rang Crossroads and asked if the two sitters he had could also do the training. 3 of us did it so they could use it as well. The DN left the machine with us. I trained the night staff.
I hope you get one.
XxxX
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Ketchupman
George hated it so we gave up using it xxxx
Well I suppose George is quite Lucky doesn’t have loads of phelm and salava, one thing he is Lucky about xxxx
As i was reading your post yesterday evening and thinking I have previously responded to a similar post. My wife's throat began to fill up with phlegm and she started gurgling. We sent the suction machine back ages ago and have been relying on Hyoscine travel sickness patches which last for 72 hours. Her patch was due to be changed this morning. I didn't take the old patch off I just put today's patch on (12 hours early) and the excess fluid cleared up within half an hour, I was able to go to bed in peace and this morning all is fine.
I need to add that my wife is also on Glcopyrronium bromide also to limit secretions. This is a controlled drug administered by District nurses via a Shringe driver.
We were advised the suction machines actually dry out the mouth too much, thus causing further problems, Leon (hubby) had Botox into cheeks and under chin, worked amazingly, lasts about 3 - 6 months, everyone is different, but certainly made a massive difference for Leon, hope this helps