Thank you: Thank you for the responses to my... - PSP Association

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Rocksbeb profile image
9 Replies

Thank you for the responses to my rant re hubs catheter experience, he’s home now. Every time something happens it seems to diminish him a little. I hope I have done this ok. Her is a poem about PSP anne

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Rocksbeb profile image
Rocksbeb
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9 Replies
Yvonneandgeorge profile image
Yvonneandgeorge

Lovely poem, so true glad hubby is home, best place to be. Yvonne xxxx George did not want to talk today, his legs are so weak, transferring is becoming a nightmare, hopefully we will get a different rota stand, we be the third one, they say third time Lucky!!!!!! Don’t want to use the hoist yet. Yvonne xxxx

raincitygirl profile image
raincitygirl

Dear Anne,

We know that there is nothing we can expect except gradual diminishment - and your poem captures the heartache of that. At least he is home, and you can supply the best love he will ever know. That's huge.

Peace to him and strength to you XXX

Anne G.

Brenive profile image
Brenive

Thanks for the poem, describes this disease perfectly. ......Brenda.

AliBee1 profile image
AliBee1

Dear Anne. Thank you so much for this poem even though it is sad. It captures it all so well. Hugs and love Ali B xx

crab2093 profile image
crab2093

Great work.

Marie_14 profile image
Marie_14

Anne thank you for that poem. It brought tears to my eyes. It's so very true? I am thinking of sending to some people I know! With your permission of course? It might make them realise it truly is a living hell. Would you mind if I shared it?

I hope Pat is feeling a bit better now he is home? You are right that everything that happens diminishes them. Nobody deserves to have this. I just hope now that they are researching it they will one day find a cure.

Hope too that your Pat never goes through anything like this again! I thought he was using convenes? Did they not work for you?

Hugs to you both.

Marie x

Rocksbeb profile image
Rocksbeb in reply to Marie_14

Do not mind at all if you share it

Marie_14 profile image
Marie_14

Anne thank you so much.

Marie x

Krmaier6896 profile image
Krmaier6896

Hi, I loved your poem. Cried all the way thru it. Could not have been written any clearer. My Sam has PSP & each line was so true. How acurrate. I would love to send it to our PSP support in Florida. Do I have your permission to share. Bless you & thank you

💕💕 Kathy

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