Thank you for the responses to my rant re hubs catheter experience, he’s home now. Every time something happens it seems to diminish him a little. I hope I have done this ok. Her is a poem about PSP anne
Thank you: Thank you for the responses to my... - PSP Association
Thank you
Lovely poem, so true glad hubby is home, best place to be. Yvonne xxxx George did not want to talk today, his legs are so weak, transferring is becoming a nightmare, hopefully we will get a different rota stand, we be the third one, they say third time Lucky!!!!!! Don’t want to use the hoist yet. Yvonne xxxx
Dear Anne,
We know that there is nothing we can expect except gradual diminishment - and your poem captures the heartache of that. At least he is home, and you can supply the best love he will ever know. That's huge.
Peace to him and strength to you XXX
Anne G.
Thanks for the poem, describes this disease perfectly. ......Brenda.
Dear Anne. Thank you so much for this poem even though it is sad. It captures it all so well. Hugs and love Ali B xx
Great work.
Anne thank you for that poem. It brought tears to my eyes. It's so very true? I am thinking of sending to some people I know! With your permission of course? It might make them realise it truly is a living hell. Would you mind if I shared it?
I hope Pat is feeling a bit better now he is home? You are right that everything that happens diminishes them. Nobody deserves to have this. I just hope now that they are researching it they will one day find a cure.
Hope too that your Pat never goes through anything like this again! I thought he was using convenes? Did they not work for you?
Hugs to you both.
Marie x
Hi, I loved your poem. Cried all the way thru it. Could not have been written any clearer. My Sam has PSP & each line was so true. How acurrate. I would love to send it to our PSP support in Florida. Do I have your permission to share. Bless you & thank you
💕💕 Kathy