Blury vision

[Rhonda838]

My readers don’t seem to be working as They used to. I see double vision most of the time when reading is this something that is normal?

Rhonda

[doglington]

I'm afraid eye focussing is a common problem. Chris had problems with this too. It was a great loss as he read avidly. Also glare - so he needed shades. I believe others have used special glasses.

[Hidden]

Yes, a telltale sign of PSP is double vision. You could try glasses that have prisms in them to correct it. No guarantee they will work. A neuro ophthalmologist would be the person to ask about them.

[Boyce3600 in reply to Hidden]

I would like to comment on this. I can tell you that I took my husband to a neuro ophthalmologist at the University of Texas Southwestern in Dallas. After 3 hours of testing the neuro opthamologist put some stick on prism's in my husband readers as a trial and told me there was nothing that could be done and I asked her specifically if there was any therapy and she said no. As well, the neurologist told me it was hallucinations and not vision. I wasn't satisfied with either of those statements/opinions. I had an OT friend that I turned to because I felt perhaps a sensory integration therapist could possibly help. To make a long story short, this OT knew a vision therapist who actually is also an OT. I contacted her and got my husband started on therapy and she has done wonders with him as far as eye movements, double vision, and confidence. I would love to go back to UT and tell that neuro-ophthalmologist about this it just really burns me up when doctors think that they know it all and especially when they don't know what's even out there besides their own opinions, for such a critical disease.

[Hidden in reply to Boyce3600]

In real life doctors aren’t anything like on TV. They would love to swoop in and find the cure. With this disease there are so many variables. They don’t know it all. I’m glad you trusted you gut and looked further for an idea that worked. Now I know there might be an alternative. Thank you.

[Kevin_1]

Hi

Agreeing with the others. Liz kept her eyesight going for a few years by seeing a really good optician.

Sorry you've got this on your plate.

Bet to you

Kevin

[Rhonda838 in reply to Kevin_1]

What do you mean she kept her eye sight longer ? I’m I gong to lose my site?

[Richanne]

Jon had this quite early on. If it's just started I should ask an optician as soon as possible. In time you should get to see a Neuro ophthalmologist but we all know these things can take ages whereas you'll get an appointment with an optician very soon. Go armed with facts from the PSPA site and curePSP which is another excellent source of information.

Good luck

Rosemary

[Dadshelper]

Dad has blurry / double vision fairly often. Eye doc says its due to the left eye "drifting" in and out of focus location, being a random occurance there isn't much they can do. If it was a full time event then special prism type lens would help.

Ron

[Rhonda838 in reply to Dadshelper]

I think it’s just PSP

[JR61]

Yes my dad had this too. He also suffered from glaucoma and had had cataract surgery previously. He saw an ophthalmologist and eye specialist on a regular basis and not a single one spotted the PSP. His optician denied observing the lack of eye movement and the permanently dilated pupils (meaning dad couldn’t manage bright lights) and sold him an expensive pair of prism glasses, so beware. Also PSP is very erratic and so any prescription could alter before you even receive the new glasses. I would recommend investigating audio books and apps that change the written word into audio. And start to learn how to use them now as we found that dads ability to learn new things decreased as his PSP progressed. Sorry if this sounds gloomy but with most things PSP related forewarned is forearmed and will enable you to maintain your independence for as long as possible. Ruth x

[Tippyleaf]

Agree with all previous posts but would add Optomestrist suggested covering one eye on days of double vision as the eyes are not in sync my hubby has found this helpful. My other pearl of wisdom - if you use vari or bifocal lenses “ditch” them for distance and reading glasses. Eyes do not accommodate as quickly with PSP so better to keep things simple.

Hope it settles a little must be very frustrating

Take care

Love Tippy xxx