I have been reading your posts for awhile and they have been so helpful. We are in the US and it seems that no one knows what PSP is here. The Pennsylvania hospice didn’t even have a code for it until a few months ago. It seems many people were likely filed under Parkinson’s.
Does anyone know of any support groups or PSP specific resources in the USA east coast area?
I wanted to share a book with you all that has been helpful. This is a personal account of a woman documenting her mother’s battle with PSP. It’s beautifully written and has been a guide for our family.
Killing Mother: Progressive Supranuclear Palsy amazon.com/dp/1976975883/re...