Warning long post!
In the past 2 months there have been major changes. My husband has taken a major down turn according to the doctors. He went from being somewhat self sufficient to not wanting to be left alone. It all started with me being at work and getting a call from our oldest son. Telling me that his dad was talking crazy stuff and his uncles (my husbands brothers) were on the way to my house. Because my husband had told them that he wasn't going to be here (our home) much longer, he wasn't going to be able to stay in the house, he had no money, the bills weren't paid, we didn't have anything to eat and he didn't have anything to wear. I started to leave work and go home, but decided not to. See his family hasn't believed there is anything wrong with him, the doctors have to be wrong. So when I got home a few hours later from work, his brothers had had a chance to go through my house and see for themselves that there is something wrong with him and there was food and clothes. I checked his meds and he had not over medicated himself if anything he may have missed 1 dose. Of course I had to tell them that the bills were paid and that he had no idea about the finances because he hadn't taken care of them in years. Then his middle brother Mike asked well what about him being able to stay in the house (the nerve!). Or course he is staying in the house he lives here! Mike then tells me he thought my husband was going to hurt himself. I said if you ever think something like that you should call me first! I can get my next door neighbor to check on him, call for medics and I can be home in minutes. They drove 40 minutes instead of calling me. His family is finally seeing there is something wrong, I've been telling them for 2 years. However his mother still tells me he can beat this. I get no support from them.
That was the start of the down turn. My husband continued to talk crazy stuff if he talked at all, he wasn't bathing, he had bowel incontinence, wouldn't eat. The doctor doubled the Sertraline to 200mg and the Trazadone to 100mg. After 5 weeks he seemed a little better. Still not talking much but not all the crazy talk, started eating and was going to the bathroom on his own. Still needed prompting to shower but not help.
He seemed to have a couple of really good days and then down hill again. I had to call the doctor the week before Christmas and he added an extra 50mg of Trazadone in the mornings for anxiety and tremors.
Then the holidays... didn't seem interested in our children, didn't open his gifts, he's not talking much, barely eats, will not bathe unless helped, needs prompting to go for a bowel movement. Has no problem with urinary. He is still walking and hasn't fallen. He stands in our master bathroom for hours at a time. I can not seem to get him to go to another room. Could he be staying in the bathroom because it is a smaller room and feels more comfortable/secure?
I have hired someone to stay with him while I work. I have to work to cover our health insurance, etc. (I'm 57 & he is 63) He doesn't qualify for medicare until Sept. 2018.
It seems that when we see the meds are working he will have a couple of good days and then take a turn for the worse. Has anyone else seen this?
He can not figure out what to do, he no longer does even the simple household chores. He told me "I can't think". (I'm so sad for him)
Thanks for reading my long vent.