Dan is suddenly having a hard time putting his legs down to stand or transfer. Yesterday even our two strong sons could not hold him up to transfer him from his staircase chair to a wheelchair . He looked terrified. I plan to order a hospital bed tomorrow and get it as soon as possible , but any ideas on transferring . Is the hoyer lift the only option?
We are now also struggling with what to do regarding the steroid infusions. First is, are they working, are they making him worse. Next is, how do we get him there. I don’t know if we can get him in the car. I apologize for freaking out. We probably just need to always have an additional person.
.Each new change is tough . I would give anything if he could just talk to us. I know he’s down and scared. I try to hug him and tell him how much I love him and tease him a little about how handsome he is. I just hope he feels it. Sad