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PSP Association
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Tremors at night?

Fred has started having what seems to be a full body tremor in his sleep. It's happened the past 2 nights and it doesn't wake him up. It first happened a couple of weeks ago. I woke up and watched him at first I thought it might be a seizure. But it was more like the tremors in his leg only it was his entire body. The total time from the start to finish is less than a minute.

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Mum had tremors as well, but not full body ones. We put mum on anti-seizure medication immediately and it helped. Arrange for a doctor to come out as soon as possible, it's horrible to watch when it's happening. All the best

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Right or wrong, we've been taking the approach that if the symptom isn't "damaging" him, we don't ask for a med for it. May well depend on how "well" (despite the illness) the patient is. G has shuddering spasms on one side of his body, and mostly in his arm, but not every night. Never in daytime. It's very fast - like what I think an "electrocution" sort of spasm would be like. He says he feels it. Has no pain. Doesn't seem to predict anything negative happening the next day. As you say above - less than a minute experience.

Anne G.

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Anne, I can barely get him to take the medicine he is on now. We don't want to add any new meds unless they are absolutely needed. Fred isn't aware of the tremor and has no memory of them the next day. They are not every night and he hasn't had any during the day. He does have a tremor in his left leg and sometimes now in the right leg. He is constantly rubbing his fingers together in what has been called "pill rolling" a parkinson's resting tremor.

Thanks,

Alicia

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Good luck Alicia - Feeling for you!

Anne

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My husband has had these for about a year or so. They do not seem to be painful, just distressing to watch. We asked the GP about muscle relaxants but he said they would have too many side effects. I think it is just part of the disease process but I guess everyone is different.

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My partner was frightfully active in his sleep, they said even though it was full body, that it was restless leg syndrome. I believe it is part of PSP. It got to the point where he woke up because he had slammed himself into the dresser beside the bed so hard he had an open wound. I had to move into the spare bedroom, I got in the way of his thrashing and it was pretty violent at times. Along with that was loud yelling, sent me through the roof a few times:)

joan

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I would give your post a like Joan, because it is so helpful.

But you must have been through hell with that.

Warmly

Kevin

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My husband has these awake & asleep. Getting more & more often. Unless he's holding something & it spills he doesn't notice it's happening & it doesn't distress him at all. The specialist said this would get worse.

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