Tremors at night?: Fred has started having... - PSP Association

PSP Association

9,544 members11,513 posts

Tremors at night?

AliciaB profile image
8 Replies

Fred has started having what seems to be a full body tremor in his sleep. It's happened the past 2 nights and it doesn't wake him up. It first happened a couple of weeks ago. I woke up and watched him at first I thought it might be a seizure. But it was more like the tremors in his leg only it was his entire body. The total time from the start to finish is less than a minute.

Written by
AliciaB profile image
AliciaB
To view profiles and participate in discussions please or .
8 Replies
am2015 profile image
am2015

Mum had tremors as well, but not full body ones. We put mum on anti-seizure medication immediately and it helped. Arrange for a doctor to come out as soon as possible, it's horrible to watch when it's happening. All the best

raincitygirl profile image
raincitygirl

Right or wrong, we've been taking the approach that if the symptom isn't "damaging" him, we don't ask for a med for it. May well depend on how "well" (despite the illness) the patient is. G has shuddering spasms on one side of his body, and mostly in his arm, but not every night. Never in daytime. It's very fast - like what I think an "electrocution" sort of spasm would be like. He says he feels it. Has no pain. Doesn't seem to predict anything negative happening the next day. As you say above - less than a minute experience.

Anne G.

AliciaB profile image
AliciaB in reply to raincitygirl

Anne, I can barely get him to take the medicine he is on now. We don't want to add any new meds unless they are absolutely needed. Fred isn't aware of the tremor and has no memory of them the next day. They are not every night and he hasn't had any during the day. He does have a tremor in his left leg and sometimes now in the right leg. He is constantly rubbing his fingers together in what has been called "pill rolling" a parkinson's resting tremor.

Thanks,

Alicia

raincitygirl profile image
raincitygirl in reply to AliciaB

Good luck Alicia - Feeling for you!

Anne

Rowan8831 profile image
Rowan8831

My husband has had these for about a year or so. They do not seem to be painful, just distressing to watch. We asked the GP about muscle relaxants but he said they would have too many side effects. I think it is just part of the disease process but I guess everyone is different.

laroux profile image
laroux

My partner was frightfully active in his sleep, they said even though it was full body, that it was restless leg syndrome. I believe it is part of PSP. It got to the point where he woke up because he had slammed himself into the dresser beside the bed so hard he had an open wound. I had to move into the spare bedroom, I got in the way of his thrashing and it was pretty violent at times. Along with that was loud yelling, sent me through the roof a few times:)

joan

Kevin_1 profile image
Kevin_1 in reply to laroux

I would give your post a like Joan, because it is so helpful.

But you must have been through hell with that.

Warmly

Kevin

beau1988 profile image
beau1988

My husband has these awake & asleep. Getting more & more often. Unless he's holding something & it spills he doesn't notice it's happening & it doesn't distress him at all. The specialist said this would get worse.

Not what you're looking for?

You may also like...

Sudden tremors

Looking for some advice please. My mum has PSP and both her and my father live with me. My dad is...

My lovely husband Paul passed away last night at 9:35pm

It’s all happened so fast. This time last year we still thought Paul had suffered a stroke as only...

HE FELL BACKWARDS IN THE REHAB

I had just left to go home and he said he had to go potty. It seems, they brought him to the...

tremors shaking jerking

Hello psp family so my dad has psp, now is peg fed, and has urethral catheter. stopped talking,...

Grinding teeth at night

Husband has just started grinding his teeth at night in his sleep. I am able to wake him and he'll...