Return from respite: Hi Came home today from... - PSP Association

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Return from respite

Julieandrog profile image
5 Replies

Hi

Came home today from my week in a lovely cottage 8 miles away! Worked really well, girlfriends popping in long walks with them, visited a couple of national trust houses, felt normal! Few tears along the way but i cannot dwell on negativity anymore. Spent two glorious days with this little fella , his mum and dad could complete their xmas shopping and go out for a lovely meal together. When you experience normal life you realise how much this illness takes everything from family life.

Enough moaning, rog well , gripped my hand so tightly on my return and tried a smile, next respite one in February , and i know I'll be ready.

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Julieandrog profile image
Julieandrog
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5 Replies
Yvonneandgeorge profile image
Yvonneandgeorge

Oh Julie sitting here tears in my eyes when you said about rog gripping your hand when you came home, George does that feel so guilty leaving him. Xxxxx

Tippyleaf profile image
Tippyleaf

Good to hear you had a little bit of you time and normally - we all need it to keep going. Grandchildren are so special and bring so much joy and happiness .

Take care of yourself now

Love Tippy

doglington profile image
doglington

Well done, Julie.

Chris gripped my hand too. I felt I was his life-belt. He was always happy to be back home but you need space at times !

love, Jean x

Katiebow profile image
Katiebow

Great to get a bit of normality isn't it Julie, my son and family were here at the weekend and I managed to take the two little ones to see Father Christmas with their mum whlst my son sat with Ben. I have a carer to sit for three hours twice a week, ben at hospice another day so get a bit of downtime to do what I please.

How old is that little man? He's very cute. As you say it brings home how much you are missing out on normal family life, not only are we robbed of our children an grandchildren, they are also robbed of their parents and grandparents.

Rog certainly sounded as if he was happy and relieved to have you back.

Love Kate xxx

Julieandrog profile image
Julieandrog

He is two, really came at the right time in our lives , they really are little rays of sunshine.

Try really hard not to think about how it would be if rog was well with little harry, too many tears when thinking that way.

Hope you escape the snow forcast for the weekend!

Julie x

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