My mother was diagnosed with CBD in July, but she's had symptoms for approximately 3 years. She uses a walker around the house, balance is horrible, her right leg is quite useless and her right arm is bent most of the time. Mentally she recalls some things with ease, other things not at all. Slow physical deterioration along with mental deterioration. The doctor said she probably has 18 months to two years. And a part of me wonders "what's the point." I've read a lot about this disease and know it just goes downhill from here, apparently faster when you lose both physical and mental faculties. I feel guilty for thinking it, but I really wonder what the point of living is for her. Selfishly, it's horrible watching this slow motion fade into oblivion.
The feelings of helplessness and guilt are close by for me. Anyone else experiencing this?