Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for July 2017

So sad my husband has passed away

I haven't been on this site very often but when I have all the replies I received meant so much. It's with great regret to say my husband 48 has passed away....

I haven't been on this site very often but when I have all the replies I receive...

•7 years ago

Tony64

Hi, every morning i wake up and my right hand is in a fist. I can open my thumb, little and ring fingers but not the other two. Very painful to pry them open...

Hi, every morning i wake up and my right hand is in a fist. I can open my thumb,...

•7 years ago

Pictures and recording

My brother was diagnosed 2014, actually symptoms 2-3 years prior he has rapidly declined since December, I have taken pictures of him threw out this ordeal,...

My brother was diagnosed 2014, actually symptoms 2-3 years prior he has rapidly ...

•7 years ago

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It's my birthday!!!

Today would have been Steve's 73rd birthday. Been getting into a bit of a tizz about it. Staying at my sisters so I am not alone. I just wanted to share this...

Today would have been Steve's 73rd birthday. Been getting into a bit of a tizz ...

•7 years ago

Going into care

My father is in hospital at the moment, recovering from pneumonia (they said it was community acquired, not aspiration). While he’s been there, they noticed...

My father is in hospital at the moment, recovering from pneumonia (they said it ...

•7 years ago

Years of PSP

To all carers, Please let me know how long you have been caring for your loved one. It will help me prepare for the future. Althea-c

To all carers, Please let me know how long you have been caring for your loved o...

•7 years ago

Bending

My husbands symptoms seem to be getting worse at an alarming rate. His new neurologist questions thae diagnosis and referring us to Mayo Clinic. He can not...

My husbands symptoms seem to be getting worse at an alarming rate. His new neur...

•7 years ago

Breathing problems

If anyone is able to answer this I'd be grateful - my sister has just called me from where dad is in respite. She's just arrived and found him with the nurses,...

If anyone is able to answer this I'd be grateful - my sister has just called me ...

•7 years ago

I am new here, my mum recently diagnosed with PSP.

Hello Everyone, My 76 year-old mum was recently diagnosed with PSP, but I believe she may have had this disease for quite a few years already. She does not...

Hello Everyone, My 76 year-old mum was recently diagnosed with PSP, but I believ...

•7 years ago

Althea-c

I have been giving my Barry 1 drop of cannibis oil on his gums twice a day for 2 days now. He is not angry anymore and he is more lucid. Althea-c

I have been giving my Barry 1 drop of cannibis oil on his gums twice a day for 2...

•7 years ago

Changes in gait causing pain ?

Just putting this out there for any help or advice. Since January I have had hip nerve pain, radiating to my knee causing a great deal of pain on the knee....

Just putting this out there for any help or advice. Since January I have had hip...

•7 years ago

What do you all think is happening

Hi C is having s bad day but don't know why, nothing I can think of that has caused it. He shuffles with a walker, but today legs are sort of going up and...

Hi C is having s bad day but don't know why, nothing I can think of that has ca...

•7 years ago

Gave in to Respite

Hospice Respite Bed came open today, we are going. I'm spending the night but will have days to get things done. Cuttercat

Hospice Respite Bed came open today, we are going. I'm spending the night but w...

•7 years ago

Getting through the barrier

I find that when the switch goes off if I sing the question it nearly always gets a response. I go with well known tunes and melodies, even nursery rhymes....

I find that when the switch goes off if I sing the question it nearly always get...

•7 years ago

Question on DST form for CHC assessment

Hi All, our neuro nurse has asked me to fill in a page of the DST form for dad's assessment. I haven't a clue what to put! The question is "Summary pen...

Hi All, our neuro nurse has asked me to fill in a page of the DST form for dad's...

•7 years ago

Breathing problems

My husband has recently started breathing very heavily and noisily and when we walk anyway has a shortness of breath. Has anyone had experience with this?...

My husband has recently started breathing very heavily and noisily and when we w...

•7 years ago

Does this mean the end is close??

My dad is having more and more trouble swallowing - he's OK eating a puréed diet but using his tongue to swallow while he's drinking is becoming a real...

My dad is having more and more trouble swallowing - he's OK eating a puréed diet...

•7 years ago

PSP HELL HELL HELL

Charles fell again today! He has a UTI and was on CIPRO which caused hallucinations (or was it the UTI?) new meds today and he's wild. Thinks he can walk....

Charles fell again today! He has a UTI and was on CIPRO which caused hallucinat...

•7 years ago

Anger

My darling husband is angry and lashing out at everyone including me. Have any of you experienced this. Althea-c

My darling husband is angry and lashing out at everyone including me. Have any o...

•7 years ago

Wet Room..

I couldn't post a pic in a reply so here's photos of my dad's disabled wet room for those who asked for them. ..

I couldn't post a pic in a reply so here's photos of my dad's disabled wet room ...

•7 years ago

Peg Feeding

A quick question. How long do your loved ones have to stay at a 30° angle position after they have had their feed? My mum is on a diabetic drink formula. I've...

A quick question. How long do your loved ones have to stay at a 30° angle positi...

•7 years ago

Linked to trauma??

I've just lost my mum to psp. She had always been fit and healthy. BUT suffered a lot of trauma following removal of a large ovarian cyst when she was about...

I've just lost my mum to psp. She had always been fit and healthy. BUT suffered ...

•7 years ago

CHC review update

Well, just as I anticipated - the CHC review nurse has indicated that our funding may well be withdrawn. P `scored` lower on one category of the DST...

Well, just as I anticipated - the CHC review nurse has indicated that our fundin...

•7 years ago

Gone into I don't care mode

Since I have had 16 hrs of care days and night sits I thought it would get easier reported then one for when the have sent a completely new person then the...

Since I have had 16 hrs of care days and night sits I thought it would get easie...

•7 years ago

Frustrated

It's been a tough week and tough day so over my cbgd everything hurts especially my face left side and stupid speech at leg freezing starting new medic I...

It's been a tough week and tough day so over my cbgd everything hurts especially...

•7 years ago

Advice on CHC

My wife, Pat, has PSP. I look after her 24/7 at home. It's been suggested that I apply for CHC but I cannot find out whether CHC is suitable in our situation....

My wife, Pat, has PSP. I look after her 24/7 at home. It's been suggested that I...

•7 years ago

High Blood Pressure

I have done quite a bit of research about this disease since my mom was diagnosed in March. I read one research article that states that uncontrollable high...

I have done quite a bit of research about this disease since my mom was diagnose...

•7 years ago

Humming bird MRI scan

If the humming bird is not showing on the mid brain scan does that mean that it is not PSP or is that just one of the pointers of PSP. All so confusing,...

If the humming bird is not showing on the mid brain scan does that mean that it ...

•7 years ago

Althea -c

My husband has had PSP for about 5 years. Those of you who are caring for PSP loved ones please give me an indication of what happens in the late stages. So I...

My husband has had PSP for about 5 years. Those of you who are caring for PSP lo...

•7 years ago

Wet Rooms

Just what is a wet room ?- I can guess but, please fill me in with a few details😊Thx, amq

Just what is a wet room ?- I can guess but, please fill me in with a few details...

•7 years ago

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