Peg Feeding: A quick question. How long do... - PSP Association

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Peg Feeding

am2015 profile image
24 Replies

A quick question. How long do your loved ones have to stay at a 30° angle position after they have had their feed? My mum is on a diabetic drink formula. I've been told 2-3hrs, she is fed 7 times a day so will be in that position nearly all day !!

24 Replies
enjoysalud profile image
enjoysalud

My son had a PEG and was told he had to sit upright during feeding and for one full hour after completing his meal. AFter that he could lay down.

am2015 profile image
am2015 in reply to enjoysalud

Thanks for that, the upright position all day is just too much for her.

sammy90210 profile image
sammy90210

my dad used to stay at 30 degrees for about 45 mins to an hour...

am2015 profile image
am2015 in reply to sammy90210

Thank you.

Duffers profile image
Duffers

My hubby gerry is fed over a 10 hour period at night and that is how he sleeps. Even before that he was at an angle because of the choking. I dont suppose its the most comfortable way of resting but he always preferred it.

Marie

am2015 profile image
am2015 in reply to Duffers

My mum is at an angle too, because of the thick saliva. I'm glad to hear he prefers it. Thanks for the reply

cabbagecottage profile image
cabbagecottage

Are you all having on and if episodes. When John is off he drools much more freely , a lot . When he switches on he starts sucking the mucus back in his thriat which collects and caused gurgling and ckoking coughing episode ,

Very stressful for him and me ,

abirke profile image
abirke in reply to cabbagecottage

Yikes CC....thats why dad had a suction machine!

cabbagecottage profile image
cabbagecottage in reply to abirke

I have asked over and over and over if I can have a saliva machine ,

I do absolutely everything for John . He is bed chair bound Hoisted ceiling . ..full on .. we also have carers. ..

I have asked d nurse oarkinsoms nurse go etc .

Times I would have. Bought - machine myself buthough best they advised me how to use it. .

He had dystonia / dyskinesia orally . And tongue pumps ..

He catches his breath while. Coughing . We have CHC .

It's almost none wants to make the decision to get one.

abirke profile image
abirke in reply to cabbagecottage

They cost between 150.00 and 200.00 DeVilbiss Healthcare - 7305 Series Homecare Suction Unit they also have a quiet unit...it may be worth buying one on your own!

am2015 profile image
am2015 in reply to cabbagecottage

My mum does the same, we are buying a machine as it is definitely needed. The saliva is so far back that you simply can't take it out. It's only when we've seen the machine used on mum that we realised how much it is needed.

The NHS is great to a point, but we've really struggled to get the right things. We buy our own nappies because the ones the NHS offers were just awful.

All the best.

cabbagecottage profile image
cabbagecottage in reply to abirke

The same with ththe leg they refused to do that as well

am2015 profile image
am2015 in reply to cabbagecottage

Yes, definitely and it's really scary watching it.

abirke profile image
abirke

Hmm Ive never heard that or promptly forgot it.....B was always fed in his recliner up or down and I think usually up.....so we didn't have a problem.....good luck

AVB

am2015 profile image
am2015 in reply to abirke

Thanks Abirke. I get why you would feed in an upright position to stop the risk of aspiration, it was the time up that just seemed wrong.

abirke profile image
abirke in reply to am2015

Yah we actually may have stayed a few minutes up....less time than needed I'm sure but he did not immediately aspirate...though he did get pneumonia....so what do I know when it's all said and done

am2015 profile image
am2015 in reply to abirke

Ah, don't be hard on yourself. We all try and do our best that's all that counts.

Suebatt profile image
Suebatt

Hi am 2015

Archie is bolus feed 4 times a day and they say 30 mins after he's had it

Sue x

abirke profile image
abirke in reply to Suebatt

Sounds right

am2015 profile image
am2015 in reply to Suebatt

Thanks Sue, God knows how they came up with upto 3 hrs !!

Suebatt profile image
Suebatt in reply to am2015

I know am

Totally thick

A district nurse came yesterday to do this peg all she did was rotate it I told her different all she said it's not in my notes so I gave her mine to look at AGAIN I was right

Sue xx

am2015 profile image
am2015 in reply to Suebatt

Some of them are just shocking, we've just come back after a week in hospital. Nearly had the catheter pulled out, fed while laying down flat and slightly turned, not bothering to clean a soiled diaper properly. It was just incompetence after incompetence, I lost it so many times with them, I'm sure they're happy to see the back of me. My mum can't speak so I have to do it for her. I'm sure they are there to try us.

Suebatt profile image
Suebatt in reply to am2015

I know that feeling so well when Archie goes in I take a folder all about PSP and tell them to read the damn thing but whenever things are wrong I first get sister or Matron there to complain and if they don't listen I involve pals then they listen

They put the flags out when I leave and say the wicked witch of the north has gone lol

Sue x

am2015 profile image
am2015 in reply to Suebatt

I'm sure they felt the same about me. But I don't care.

Afshan

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