The Rollercoaster - not in Disneyland - PSP Association

PSP Association

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The Rollercoaster - not in Disneyland

Cuttercat profile image
16 Replies

Going up and down. The PSP Rollercoaster keeps me up at night and down in the day. Keeps me in it's web hanging. Hard to take it day to day and hour by hour, but tonight there is a respite, Charles is quiet and not gasping for breath. Until the next dip in the rollercoaster.

Goodnight.

Cuttercat

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Cuttercat profile image
Cuttercat
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16 Replies
Babowen898 profile image
Babowen898

CC, enjoy the gift of a peaceful time! Still praying for you both.

Katiebow profile image
Katiebow

Sleep tight. xx

doglington profile image
doglington

It feels relentless.

Hope you get some relief today.

love and hugs from Jean xx

Yvonneandgeorge profile image
Yvonneandgeorge in reply to doglington

Don't you just hate PSP, sleep tight, hope you have a good day xxxx

Heady profile image
Heady

Thinking of you. Sending big hug and much love.

Lots of love

Anne

enzo501 profile image
enzo501

Cutter,

Well said ...I am on the same ride at the same theme park...6yrs in and 3 yrs diagnosed ...mobility is worse everyday,swallowing becoming more challenging, and the beat goes on! Even when you sleep you worry ( I do) ..Memories are the only respite ,and they are beautiful, and sustaining . Have trouble deciding whether the END will be bearable or devistating...but I KNOW it's going to be a relief and FINAL...jeff...hang in there as I will

Cuttercat profile image
Cuttercat in reply to enzo501

Almost like looking into the mirror enzo. Same exactly and yes fearing the END. Charles is so tired it isn't worth trying, though he still tries. It can't continue.

Love,

Cuttercat

doglington profile image
doglington in reply to enzo501

Exactly me !!!

Feel I can't continue too long but dread it all being over.

So we hang in - - -

xx

Kevin_1 profile image
Kevin_1 in reply to doglington

Same here... But I am determined to see it through... I guess that's you too.

doglington profile image
doglington in reply to Kevin_1

No option xxx

Kevin_1 profile image
Kevin_1 in reply to doglington

xxx

daddyt profile image
daddyt

PSP... the ride of your life that no one ever asked for. xx

gypsywoman1947 profile image
gypsywoman1947

So true a description x

Kevin_1 profile image
Kevin_1

Eloquent and so damned true.

Hi I am in the same boat.cant remember the last time I had a proper sleep.Have been relegated to the sofa just so I don't hear him.wish I could sleep in the day like he does.Nette

enzo501 profile image
enzo501

I want to reveal where I am so that if anyone in similar situation is close we can meet in person with our spouses if they want to ....I (we) are in Littleton, Co...Thanks for the positive feedback...jeff

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