Going up and down. The PSP Rollercoaster keeps me up at night and down in the day. Keeps me in it's web hanging. Hard to take it day to day and hour by hour, but tonight there is a respite, Charles is quiet and not gasping for breath. Until the next dip in the rollercoaster.
Goodnight.
Cuttercat
CC, enjoy the gift of a peaceful time! Still praying for you both.
Sleep tight. xx
It feels relentless.
Hope you get some relief today.
love and hugs from Jean xx
Don't you just hate PSP, sleep tight, hope you have a good day xxxx
Cutter,
Well said ...I am on the same ride at the same theme park...6yrs in and 3 yrs diagnosed ...mobility is worse everyday,swallowing becoming more challenging, and the beat goes on! Even when you sleep you worry ( I do) ..Memories are the only respite ,and they are beautiful, and sustaining . Have trouble deciding whether the END will be bearable or devistating...but I KNOW it's going to be a relief and FINAL...jeff...hang in there as I will
Almost like looking into the mirror enzo. Same exactly and yes fearing the END. Charles is so tired it isn't worth trying, though he still tries. It can't continue.
Love,
Cuttercat
Exactly me !!!
Feel I can't continue too long but dread it all being over.
So we hang in - - -
xx
Same here... But I am determined to see it through... I guess that's you too.
PSP... the ride of your life that no one ever asked for. xx
So true a description x
Eloquent and so damned true.
Hi I am in the same boat.cant remember the last time I had a proper sleep.Have been relegated to the sofa just so I don't hear him.wish I could sleep in the day like he does.Nette
I want to reveal where I am so that if anyone in similar situation is close we can meet in person with our spouses if they want to ....I (we) are in Littleton, Co...Thanks for the positive feedback...jeff
I cannot cope.
Not much longer
