The Rollercoaster - not in Disneyland

[Cuttercat]

Going up and down. The PSP Rollercoaster keeps me up at night and down in the day. Keeps me in it's web hanging. Hard to take it day to day and hour by hour, but tonight there is a respite, Charles is quiet and not gasping for breath. Until the next dip in the rollercoaster.

Goodnight.

Cuttercat

[Babowen898]

CC, enjoy the gift of a peaceful time! Still praying for you both.

[Katiebow]

Sleep tight. xx

[doglington]

It feels relentless.

Hope you get some relief today.

love and hugs from Jean xx

[Yvonneandgeorge in reply to doglington]

Don't you just hate PSP, sleep tight, hope you have a good day xxxx

[Heady]

Thinking of you. Sending big hug and much love.

Lots of love

Anne

[enzo501]

Cutter,

Well said ...I am on the same ride at the same theme park...6yrs in and 3 yrs diagnosed ...mobility is worse everyday,swallowing becoming more challenging, and the beat goes on! Even when you sleep you worry ( I do) ..Memories are the only respite ,and they are beautiful, and sustaining . Have trouble deciding whether the END will be bearable or devistating...but I KNOW it's going to be a relief and FINAL...jeff...hang in there as I will

[Cuttercat in reply to enzo501]

Almost like looking into the mirror enzo. Same exactly and yes fearing the END. Charles is so tired it isn't worth trying, though he still tries. It can't continue.

Love,

Cuttercat

[doglington in reply to enzo501]

Exactly me !!!

Feel I can't continue too long but dread it all being over.

So we hang in - - -

xx

[Kevin_1 in reply to doglington]

Same here... But I am determined to see it through... I guess that's you too.

[doglington in reply to Kevin_1]

No option xxx

[Kevin_1 in reply to doglington]

xxx

[daddyt]

PSP... the ride of your life that no one ever asked for. xx

[gypsywoman1947]

So true a description x

[Kevin_1]

Eloquent and so damned true.

[Hidden]

Hi I am in the same boat.cant remember the last time I had a proper sleep.Have been relegated to the sofa just so I don't hear him.wish I could sleep in the day like he does.Nette

[enzo501]

I want to reveal where I am so that if anyone in similar situation is close we can meet in person with our spouses if they want to ....I (we) are in Littleton, Co...Thanks for the positive feedback...jeff