5 years ago my husband was diagnosed with Parkinson's Disease but seemed to diterioate very quickly and he didn't have a shake or tremor. He has had many neurologist appointments and he was finally told he had PSP last month after having a 2nd opinion. He can walk but has real problems with fine motor movements and has had a total change in personality. He was very socialable and outgoing and now he is withdrawn, vulnerable and and a lot of the time non coherent. He had problems with his bladder and bowel and has many accidents which is very hard for me as his wife and carer and this causes problems with everyday life and his independence. Over the last 6 months he struggles eating his food and there are times when I have to feed him. He needs help dressing, showering, getting in and out of a chair, bed and car and basically can't really do anything for himself and this is heartbreaking to see. We have two teenage children and it's been a real strain on our family. He hasn't had many falls but does loose his balance and freezes often and needs help getting going again.
When I read about PSP my husband seems to have some of the conditions but not all. I just wondered if anyone is experiencing similar conditions