You may remember V and I applied for funding in September 2015 and were turned down . We went to appeal and after a very delayed hearing in May of 2016 we were turned down again and finally succeeded in getting funding after a second assessment just before Christmas last year . Back in August I tried to instigate an Independent Review Panel but was told to wait until we had had the results of our second assessment .Lots of letters from me and few replies after Christmas as the Independent Review lot failed to answer so frustration building . I eventually got through and having already given an outline of how I was approaching our case the previous year I was told there was to be a "desk top review " .
The letter came this morning saying they have decided we were eligible at the time of our first assessment and therefore would backdate funding to 1st October 2015
Whilst that is wonderful news financially I have to say that it is all a bit late as what I needed was the funding to pay for the care a year and a half ago when things were at their most difficult .
Any way the direction my appeal with the IRP was going to take relates to what is almost a hidden paragraph in the NHS guidelines for funding .
"It is also important that deterioration is taken into account when considering eligibility including circumstances where deterioration might reasonably be regarded as likely in the near future "
This was totally ignored in our first assessment and at appeal all the deterioration information we presented was deemed inadmissible by those conducting the appeal . They categorically stated they could only look at my wife's eligibility as on the actual day of the assessment . This seems to be common practice so I hope the above information is helpful for those still battling to get funding.
Garden looking spring like and V sitting in the sun by the front door but not for much longer I fear as things continue their downward spiral .