Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for May 2016

I get it

Reading your post tugs at my heart. I read somewhere that one of the common traits of these brain degenerative diseases is a lack of empathy. I have seen my...

Reading your post tugs at my heart. I read somewhere that one of the common trai...

•8 years ago

Frustrated

Tonight my husband, who has PSP, told me off for being too cheerful. My heart is breaking seeing him deteriorating in front of me. I asked him, what he would...

Tonight my husband, who has PSP, told me off for being too cheerful. My heart is...

•8 years ago

thank you

Thank you for the mobility advice, seems like a scooter will not be practical as I thought. when I spoke to the PSPA care advisor she said NHS would not give a...

Thank you for the mobility advice, seems like a scooter will not be practical as...

•8 years ago

Want to take advantage of all our features? Just log in!

or

Home caring?

I had a chat to my sister about what is waiting for us/her... I would like to keep on looking after her till the end. She feels that it might be to much for...

I had a chat to my sister about what is waiting for us/her... I would like to ke...

•8 years ago

Mattress air pump tips.

Has anyone got any tips on how to quieten an air pump used with a pressure mattress. Mum had hospital bed & Mattress delivered yesterday. It is going to be...

Has anyone got any tips on how to quieten an air pump used with a pressure mattr...

•8 years ago

Nursing Homes in Herts, Essex or Cambs

Hello I have just signed up to this and it looks excellent! Myself and my family are wondering whether anyone knows of a nursing home that is around the...

Hello I have just signed up to this and it looks excellent! Myself and my family...

•8 years ago

Impulsive and reckless

My first post!!! My biggest challenge is my husbands impulsivity. He cannot wait, becomes aggressive and agitated if things do not happen immediately. He...

My first post!!! My biggest challenge is my husbands impulsivity. He cannot wai...

•8 years ago

PSP Symptoms

Hello dear bloggers, my mum who has been diagnosed with PSP or CBC , 2 different diagnosis by different doctors, has been complaining for the past 3 years from...

Hello dear bloggers, my mum who has been diagnosed with PSP or CBC , 2 different...

•8 years ago

Life span

What is the lifespan for someone with psp? When my sister was diagnosed the neurologist said between 8 and 10 years....

What is the lifespan for someone with psp? When my sister was diagnosed the neur...

•8 years ago

Rosemary Lodge Residential Home

Hi There all We have just found out one of our residents was miss diagnosed and has got PSP He is a lovely gentleman and we want to look after him as long as...

Hi There all We have just found out one of our residents was miss diagnosed and ...

•8 years ago

Has anyone advice on anesthetics

Has anyone with any experience with someone with CBD having to go under anesthesia for an operation??? Anything I should know or be concerned about?

Has anyone with any experience with someone with CBD having to go under anesthes...

•8 years ago

Communication

mums speech has not been good for over a year, but we have always managed to understand her even though she had to repeat thing a few times, her voice has gone...

mums speech has not been good for over a year, but we have always managed to und...

•8 years ago

Mobility advice

Sorry, i feel all I do is ask advice and never contribute anything! At early stages of loss of mobility did you opt for a wheelchair or mobility scooter, we...

Sorry, i feel all I do is ask advice and never contribute anything! At early sta...

•8 years ago

Flexible break

After being told by my social worker that the flexible break system was being stopped in April by our local council I have had the wonderful news from her that...

After being told by my social worker that the flexible break system was being st...

•8 years ago

Mourning for someone who is still alive...

Although I don't often post, I read things all the time on this site. It is so helpful and reassuring (is that the right word?) to know that other people are...

Although I don't often post, I read things all the time on this site. It is so h...

•8 years ago

PSP has finally taken my Step Mum away

On Wednesday, my Step Mum finally passed away in hospital after her long battle with PSP. Over the last few months she deteriorated to the point of hardly...

On Wednesday, my Step Mum finally passed away in hospital after her long battle ...

•8 years ago

Hospital visit

Well after our hospital visit George is really done in. He had a test on his bladder, they took out the catheter, put in a smaller tube and a tube up his back...

Well after our hospital visit George is really done in. He had a test on his bla...

Yvonneandgeorge

•8 years ago

Neck pain - any recommendations to supplement the medication?

Hi All I'm in Scotland and my dad was been diagnosed with PSP in Feb. His main complaint at the moment is the pain in his neck. He has started low dose of...

Hi All I'm in Scotland and my dad was been diagnosed with PSP in Feb. His main ...

•8 years ago

Cherry Blossom

A sight for sore eyes in my courtyard garden

A sight for sore eyes in my courtyard garden

•8 years ago

What do I do? Part two!

Hi, soooo many replies! Thanks guys. I know we keep saying it, but what on earth would we do without this site!!!! The love and understanding that has come...

Hi, soooo many replies! Thanks guys. I know we keep saying it, but what on ear...

•8 years ago

3 weeks already

I cannot believe it is 3 weeks since I moved M into a nursing home. It has been a steep learning curve for both the home and for M and me. Not as easy as I...

I cannot believe it is 3 weeks since I moved M into a nursing home. It has been...

•8 years ago

What do I do????

S is being a pain!!.,. Just for a change. Eating again is rulings our lives. We lurch from one meal to the next, with very little time between. Some, no...

S is being a pain!!.,. Just for a change. Eating again is rulings our lives. We...

•8 years ago

Nuplazid approved by FDA for hallucinations and delusions

http://www.fda.gov/NewsEvents/Newsroom/PressAnnouncements/ucm498442.htm Good news, at least for Parkinson's patients. Not sure if this would work for the...

http://www.fda.gov/NewsEvents/Newsroom/PressAnnouncements/ucm498442.htm Good new...

•8 years ago

Mom is at her wits end.

Hi, my dad has PSP, he has had it for 7 years now. He has just been moved from living in a assisted living retirement home to being in the hospital for 5...

Hi, my dad has PSP, he has had it for 7 years now. He has just been moved from ...

•8 years ago

Clonazepam

Dear All, My mom is a PSP patient for 6-7 years. Recently, we have needed to use Clonazepam for her agitation etc. Regret, we do not have certain indormation...

Dear All, My mom is a PSP patient for 6-7 years. Recently, we have needed to use...

•8 years ago

Cure

Good evening, Is there any treatment currently available for psp Thank you.

Good evening, Is there any treatment currently available for psp Thank you.

•8 years ago

Double Vision

Hi Folks, Thanks for the advice and sharing I read each Day. Bugs has double vision. 2 operation and botox to the right eye have not worked. It was the...

Hi Folks, Thanks for the advice and sharing I read each Day. Bugs has double vi...

•8 years ago

OMG!! Found my guy on the ROOF!

Is this normal? Does your PSP loved one do some crazy, daring stuff? My guy has always been adventurous, but this was a shocker!! I had a roof repair company...

Is this normal? Does your PSP loved one do some crazy, daring stuff? My guy has ...

•8 years ago

CBD but with an AD pathology

Hi, I was wondering if anyone knows anything about CBD but with a AD patholgy?My husbands symptoms are classic from what I read here but his PET scan did not...

Hi, I was wondering if anyone knows anything about CBD but with a AD patholgy?My...

•8 years ago

CBD question

Hi everyone I'm a newbie here. Just wondering about progression. Our specialist told us my husband would have slow progression then a have a sharp decline...

Hi everyone I'm a newbie here. Just wondering about progression. Our specialist ...

•8 years ago

1
2
3

Search posts

Latest poll

What are your main concerns as a carer?

Topics

All things PSP Association(134)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Archive

2024

Jan Feb Mar Apr

May

Jun

Jul

Aug

Sep

Oct

Nov

Dec

2023

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2022

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2021

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2020

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2019

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2018

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2017

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2016

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2015

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2014

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2013

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2012

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2011

Jan

Feb

Apr

May

Jun Jul Aug Sep Oct Nov Dec