Hi, soooo many replies! Thanks guys. I know we keep saying it, but what on earth would we do without this site!!!!
The love and understanding that has come across the ether is incredible. I suppose it's that word, understanding! I have heard and am trying to find ways that you have all suggested, to get through this hiccup! NannaB I hear you, I know I have to find a way to make things better, I think that's part of the problem, I am trying too hard, not taking into account what S actually wants. George, I will look into getting another car. Unfortunately, mine is on lease that doesn't run out until December, but I will look into how I can get out of that. The hospice have told me, that they are going to use an adapted vehicle next week, as the volunteer was unhappy this morning. Another kick that I didn't need!!!
Sorry I can't remember everyone points. I have just had respite, two whole weeks off, to do our building work. Another cause of my misery, I am really pleased with the out come, I did get a round of applause from S the other day, but yesterday I was trying to buy some little bits for it and S couldn't care less. I know, I know, he probably wouldn't have before!!!! I just wanted to share the enjoyment of a good job, but he wasn't at home!
I know what my problem really is, the enormity of PSP is kicking me again. You keep thinking, you know what is coming, prepared for the worst and hey ho, you realise it is only just beginning, there is still heaps more "fun" to endure! How do we all get up in the morning????? Because the district nurse is knocking the door, I know!!!
I think it was Eastern Cedar that talked about her stars. I read mine today, it said Capricorns are known for their ability to cope and that I would have to cope for a while yet, but I would get my reward! So perhaps there is a light at the end of tunnel!!!
Thank you all so much for your concern and love. Somehow, we will all get through this horrible journey, that none of us want to end!
Lots of love