Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for May 2016

Nothing to do with PSP!

I've had a hectic time, looking after our 6 & 9 year old grandsons but it was fun challenging them to speed boat races, boxing matches, sky diving and...

I've had a hectic time, looking after our 6 & 9 year old grandsons but it was fu...

•8 years ago

Hi Folks - again

Just to say thanks for all the wonderful support and encouragement - much needed and much appreciated . Where would I be without you all ? This week...

Just to say thanks for all the wonderful support and encouragement - much n...

•8 years ago

I'm about to start using a conveen, advice please.

I'm new to this site and am looking for some advice. After some recent problems with a urethral catheter coming out twice in quick succession and a disastrous...

I'm new to this site and am looking for some advice. After some recent problems ...

•8 years ago

Want to take advantage of all our features? Just log in!

or

Hand pain

Hi Can any offer experience of what eases the pain in contracted alien hand. Mum's hand has been slowly getting worse and being bent more by her CBD. Just...

Hi Can any offer experience of what eases the pain in contracted alien hand. Mum...

•8 years ago

VAT relief - not quite a relief.

Ok everyone here's a practical post. I have vowed to try and get something done about this dreadful scheme. VAT relief for those that don't know is the taking...

Ok everyone here's a practical post. I have vowed to try and get something done ...

•8 years ago

Hi Folks.

Wish me luck ,CHCpanel appeal Monday . Have been practicing hangdog look ,exhaustion ( not difficult) ,and general despair . and if that doesnt work...

Wish me luck ,CHCpanel appeal Monday . Have been practicing hangdog look ,exhaus...

•8 years ago

involuntary fist clenching etc

This morning my wife's hand became involuntarily clenched into a very tight fist. She was only able to unclench it after the hand had been massaged for quite...

This morning my wife's hand became involuntarily clenched into a very tight fis...

•8 years ago

Any tips please re how to stop 'droning?

Hi.........my sister who has diagnosed PSP is inclined to 'drone' I.e make a continuous audible humming noise. She is aware that she is doing it, doesn't admit...

Hi.........my sister who has diagnosed PSP is inclined to 'drone' I.e make a con...

•8 years ago

fall!!!!

morning everyone thought it was too good to be true life jogging on at a coping level! yesterday roger fell down the whole flight of stairs, he was bringing...

morning everyone thought it was too good to be true life jogging on at a coping ...

•8 years ago

Look here, regarding PSP, this may possibly help...

I posted a couple months ago about a study showing Parkinson's patients were being helped by riding a bicycle, and the improvements in the patients' ability to...

I posted a couple months ago about a study showing Parkinson's patients were bei...

•8 years ago

PSP Support Dublin

So 5 years ago my dad was diagnosed with a severe case of PSP. 5 years on i am still struggling to find local support and advice on things our family face...

So 5 years ago my dad was diagnosed with a severe case of PSP. 5 years on i am s...

•8 years ago

First time posting on here

Hi. I've been looking in on the PSP/CBD community on here for some time. I'm a member of carers UK but haven't found any cbd related help on there so I decided...

Hi. I've been looking in on the PSP/CBD community on here for some time. I'm a m...

•8 years ago

Psp awareness

Can the soaps not cover it???? They raise awareness of cancer, dementia drug abuse and just about everything else!!

Can the soaps not cover it???? They raise awareness of cancer, dementia drug abu...

•8 years ago

Frustrated

I am new to this site ilive in scotland east kilbride i got diagnosed with psp on the 2 march 2016 all i can say is that the parkinsons nuse never contacts...

I am new to this site ilive in scotland east kilbride i got diagnosed with psp...

•8 years ago

According to my doctor!!!!

As some of you know,I have been having problems with the district nurses and my doctor is not much better. Being having conversations with him this week,to...

As some of you know,I have been having problems with the district nurses and my ...

•8 years ago

Drinking carbonated drinks seem to be easier for my mom to swallow

Finding that any drink that is carbonated is easier for my mom to swallow.

Finding that any drink that is carbonated is easier for my mom to swallow.

•8 years ago

PSP and living alone

Hi, just joined. My mother-in-law has recently been diagnosed with PSP. She is a widower and lives alone, we are awaiting social services assessment but for...

Hi, just joined. My mother-in-law has recently been diagnosed with PSP. She is a...

Daughter-in-law

•8 years ago

CBD

Hi everyone I'm at a loss what to do next with my Dad, he was miss diagnosed with Parkinson's but now saying its CBD and since been on the new medication he...

Hi everyone I'm at a loss what to do next with my Dad, he was miss diagnosed wit...

•8 years ago

PSP Awareness Week

Our PSP Awareness Week is off to a flying start! District Nurse Cheryl Williams, who lost her dad to PSP, has been on a mission to tell doctors at nine GP...

Our PSP Awareness Week is off to a flying start! District Nurse Cheryl Williams,...

PSPA•8 years ago

I just want to cry.

I am so frustrated I can not get any sense out of anyone no one wants to know. Paramedics came yesterday and told me to get GP involved and Ive tried all day...

I am so frustrated I can not get any sense out of anyone no one wants to know. P...

•8 years ago

Choking , any tip?

Really tough night,Hubby was choking all night long , scares the heck out of me. Any tips. Gave him some cough syrup and made a honey lemon drink. He has...

Really tough night,Hubby was choking all night long , scares the heck out of me....

•8 years ago

Feeling more positive today!

Well after a few hours break today I feel a bit better, I will do the best I can to look after Keith for as long as I can! Thank you all for your replies to my...

Well after a few hours break today I feel a bit better, I will do the best I can...

•8 years ago

respite

hi everyone after much sole searching i have just come back from a weeks respite, rog went into a local rest home. i spent the week walking the gower with my...

hi everyone after much sole searching i have just come back from a weeks respite...

•8 years ago

Distraction from PSP

Last week my remaining Guinea pig went on a sleepover play date and came home with two black and white friends. We now have Millie, Molly and Andy. Andy has...

Last week my remaining Guinea pig went on a sleepover play date and came home wi...

•8 years ago

Where's hope?

I've always been an optimistic person, looking for the positive and the joys of life. I think I've lost that person on this dreadful journey into a black......

I've always been an optimistic person, looking for the positive and the joys of ...

•8 years ago

It’s PSP Awareness Week 16-22 May

Next week will see thousands of PSPA supporters around the UK taking our ‘red flags’ action for PSP Awareness Week (16 to 22 May). PSPA has created a PSP Red...

Next week will see thousands of PSPA supporters around the UK taking our ‘red fl...

PSPA•8 years ago

S is fine! Yippee!!

The district nurse has discharged S, he doesn't need their service anymore. Hurray! He does not need anymore enemas. Thank goodness! My problem? No one...

The district nurse has discharged S, he doesn't need their service anymore. Hur...

•8 years ago

Glad to have a place to share information!

Hi, I'm new here...my Dad has PSP. He was originally diagnosed as having Parkinson's about 10 years ago and re-diagnosed as having PSP about 5 years ago. He...

Hi, I'm new here...my Dad has PSP. He was originally diagnosed as having Parki...

•8 years ago

Failed

For the past month or so I have been told by both my GP and people worried about me caring alone for my husband, that the time has come for me to seriously...

For the past month or so I have been told by both my GP and people worried about...

•8 years ago

First contact with social workers!

I was sheltering indoors from the late afternoon monsoon yesterday when the phone rang. The lady gabbled on for a minute before I recognised then name of one...

I was sheltering indoors from the late afternoon monsoon yesterday when the phon...

•8 years ago

Search posts

Latest poll

What are your main concerns as a carer?

Topics

All things PSP Association(134)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Archive

2024

Jan Feb Mar Apr

May

Jun

Jul

Aug

Sep

Oct

Nov

Dec

2023

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2022

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2021

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2020

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2019

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2018

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2017

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2016

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2015

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2014

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2013

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2012

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2011

Jan

Feb

Apr

May

Jun Jul Aug Sep Oct Nov Dec