Clonazepam: Dear All, My mom is a PSP... - PSP Association

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Clonazepam

Esra profile image
Esra
13 Replies

Dear All,

My mom is a PSP patient for 6-7 years. Recently, we have needed to use Clonazepam for her agitation etc. Regret, we do not have certain indormation about the max recommended dose of it. Do you have any idea about the Clonazepam dosage? Do you have any suggestion/ experience about it?

Many thanks

Esra

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Esra
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13 Replies
NannaB profile image
NannaB

Have you Googled it to find out ?  It's a strong drug and should only be used as prescribed.  I suggest you contact her doctor to find the exact dose he/she recommends.  

I hope you get the information you require.

X

Esra profile image
Esra

Dear NannaB

Thank you for your quick reply

I know the drug, of course, we have the doctor. I know that this medicine sometimes is used. I am wonderğng your experience if you have it

Regards

Esra

Kevin_1 profile image
Kevin_1

It is a benzodiazepine.

They are addictive and after some time loose their effectiveness. The dose can be increased.

Try discussing antihistamines with our GP. 

They are increasingly being used for their side effects of sleepiness.

Not all GP's are up to speed on this.

I have seen good results with this for many patients.

Wishing you the best.

DenB profile image
DenB

Hi

my husband has CBD and has taken Clonazepam for about 4-5 years, I think.

He takes  half a 0.5mg tablet3 times a day and then at night a whole 0.5mg tablet.

He also takes it for his agitation and it does give him some relief. I don't think my husband has had any side effects etc from taking it.

It was prescribed by his neuropsychologist who is in close contact and can be revised if needed.

I don't know what the maximum dose that could be prescribed but I trust that the doctor is always careful not to over prescribe Clonazepam.

Why don't you ask your doctor about Clonazepam if you are concerned.

Kind regards

DenB x

Esra profile image
Esra in reply toDenB

Thanks a lot

God bless us

Regards

Esra

Amilazy profile image
Amilazy

Ask a pharmacist not a doctor concerning the drug, (any drug really) they are the specialists Doctors do not know full effects side effects and contra indications, maximum dose etc.  The doctor should accept pharmacist queries/suggestions.  

Also there should be a drug description script in all boxes of medicine, that should tell you the chemical breakdown of the drug, what it is used for any side effects etc usually very wordy.

My wife still on Lorazapam: a related drug but shorter acting only in system for about 4 hrs, compared to 8+ for your drug.

Best wishes Tim

Esra profile image
Esra in reply toAmilazy

Thanks a lot

I am praying for all of us

Best Regards

Esra

LynnO profile image
LynnO

My husband uses it as needed for anxiety. Like everyone said, I would check with you GP. Our GP  said if the dosage is too high, all my husband will do is sleep. (sometimes that wouldn't be a bad idea!!)

Esra profile image
Esra in reply toLynnO

Thanks a lot

ketchupman profile image
ketchupman

My wife is given 1 tablet (0.5mg), but I only give it to her when I suspect a restless night might ensue.  When she takes it, it seems to carryover into the daytime, which I don't want to occur.   I started her out on a half of tablet, but have gone up to 2 when she was at her worst at night. I had discussed this prior with her neurologist.  But as she has progressed with PSP, she is a lot weaker and sleeps most of the time (day and night). So now I'm giving her Ritlin to keep her more alert during the day. 

Best wishes. 

Ketchupman 

Esra profile image
Esra in reply toketchupman

Thanks a lot

Best Regards

Esra

Robmatlol profile image
Robmatlol

Hi Esra, I'm so sorry for the late reply. I haven't checked my emails the last week, just haven't had the time. My mum was prescribed Clonazepam by the consultant last year to try to help with her agitation/anxiety at bedtime. I can't remember the dosage but I do know that unfortunately it didn't help her. I know everyone responds totally different to medication, as yet we are still to find something that relaxes her enough to get her to sleep. I find the sleepless nights the worse thing about psp, it's not just her not sleeping but she doesn't let me or my dad sleep either. I can't imagine what's going on in her mind. Good luck love xxx

Esra profile image
Esra in reply toRobmatlol

Thank you so much for your information.

As yoı know, this is an awful disease for patients and also their families. I am feeling sometimes very bad and sad beacuse of her situation... I am praying for all PSP patients and their families in all over the world

Best Regards

Esra

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