Cure

[NathalieA]

Good evening,

Is there any treatment currently available for psp

Thank you.

[easterncedar]

Hi, Nathalie.  Sorry to say, the short answer is no.   Some people may get temporary relief from some symptoms through medication generally used for Parkinson's patients, and some people swear by dietary supplements of various kinds, but there is no generally applicable, widely accepted, medical treatment.  My guy's neurologist, a specialist in psp at the Lahey Clinic in Boston,  had us try everything for a little while, but ultimately recommended only the supplement CoQ10 in high doses, which my guy has been taking for a few years.  My guy, diagnosed in 2011, has had a fairly slow progression, but that could be down to luck.  Every patient has a unique experience and progression.   Physical and speech therapy have definitely helped keep him on his feet and communicating, so that's what I feel safe recommending.

There is a lot of information on this site if you look back through the archives. 

I wish you well. 

[NannaB]

Hi NathalieA.  There is currently no cure but physio therapy, speech therapy, hydro therapy, massage can help but we found, not for long.  Keeping mobile for as long as possible is important and keeping the one who has PSP interested in what's going on, brain stimulated, opportunity to go out, laugh, meet  friends all adds to the quality of life.  There are a few drugs which help symptoms but again, with my husband they did very little good for very short time.

I'm sure you will get lots of other suggestions from lots of lovely, helpful people on this site.

X

[NathalieA in reply to NannaB]

Thank you. Best!

[Kevin_1 in reply to NannaB]

Concurring 

[jillannf6 in reply to Kevin_1]

i agree

lol jill

xxxx

[vlh4444]

I can only agree with what the others have said I'm afraid Nathalie. My husband (diagnosed 2013) has had medication to help with the various symptoms, with limited success, but there is nothing (yet) to treat or cure the PSP.  For some people the progression seems to be slow but for D it has been a fairly steady deterioration. 

Sorry not to have anything more positive.

[NathalieA in reply to vlh4444]

Thank you. 

God bless you both.

Nathalie

[Doglinton]

Agree with others.  I think its best to focus on the present life and make the most of what is possible. Reading this site warns you of what is to come but don't let it paralyse you with fear. You won't have everything and you don't know how it will be for you so stop worrying and enjoy what you have while you have it.

Its hard, I know.

Love, Jean x

[NathalieA]

Thanks. 

Love & light

[Amilazy]

Agree with everyone, our neurologist bluntly 5 yr ago said "it's PSP there is no cure, no medication, only outcome death in 4-5 yrs.  see you next year". He repeated the same last week though without the timescale, when he charted M's PSP progress, which has deteriated rapidly over last 3 months after relatively steady decline with short plateaux of remission.  

The point is if you are able generate good memories now for the dark days to come.

Good luck Tim