respite: hi everyone after much sole... - PSP Association

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respite

Julieandrog profile image
12 Replies

hi everyone

after much sole searching i have just come back from a weeks respite, rog went into a local rest home. i spent the week walking the gower with my lovely sister in law drinking wine and eating out! my word do i feel good, and have my mojo back.

all of you thinking about taking respite DO IT! he had a great time, lots of visitors and his speech and conversation is better, no falls!!!!!

much love

juliex

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Julieandrog profile image
Julieandrog
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12 Replies
abirke profile image
abirke

well good for you julie! I am so glad your husband had a great time too......six months from now same time same place...why not

AVB

NannaB profile image
NannaB

I'm so pleased it was successful and you have your mojo back. Long may it last Julie.

X

jillannf6 profile image
jillannf6 in reply to NannaB

i agree witth what has been said

ll jilpsp person in uk

xxx

Patriciapmr profile image
Patriciapmr

Julie I understand exactly how you feel, hopefully when I get my respite break I will feel the same and be stronger to cope with everything that lies ahead!

Love and hugs....Pat xx

Robbo1 profile image
Robbo1

Glad your Mojo is still working. Long may it last! X

Bridgewater profile image
Bridgewater

Hi Julie

So nice to here your respite went well there are good homes out there it's just research and recommendations you have to do and look for well done

Kind regards

Jane X Rosemary Lodge residential Home

Lichfield Staffs

jillannf6 profile image
jillannf6 in reply to Bridgewater

hi jane

wel oome to the sitel

lol jillxxxx

PSP person in uk

ps ,my typing is terrible now

Tippyleaf profile image
Tippyleaf

We all need are breaks, so hard to arrange but so worth it. I had a long weekend at Easter and returned a new woman!!! Take care and plan the next one

xxxx

Yvonneandgeorge profile image
Yvonneandgeorge

Hi Julie glad you had a good break, and feeling ready to start again X.

Cuttercat profile image
Cuttercat

I'm going away for one night this weekend and am already worried. I know it's natural but I can't help it. Hope to enjoy a good nights sleep.

mthteach profile image
mthteach

julie, I am thinking about doing the same thing with my husband in Sept.

The hospice said they would respite my husband also. Did you have any problems at all doing this? What is the advice you would give for rest home, what to do or not to do?

Julieandrog profile image
Julieandrog

hi mthteah

my advice would be if you have'nt already refer yourselves to adult services, they will quickly assess both of your needs and a care plan will be generated. within ours was that i would initially have two lots of respite, they advised level of care needed booked it in advance which gave us plenty of time to go and view, psp is such a unique illness that i spent some time with the manager of the rest home explaining everything. she also visited us at home. a financial assessment will be done i had to pay £200 for the week if the fees are over £450 i have to pay the difference. but this time i just pay the £200. you will know if the place is ok, i just looked for kindness cleanliness good risk assessment and generally the feel of the place. if the hospice are offering i think that would be your better option as there may be no fee, i also get through social services twelve free hours a month, a lovely guy comes in and is happy to take rog out so it works really well. i feel a new woman since returning home and it did rog good too, it was however so hard to leave him as i love the bones of the man,

much love

julie x

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