after much sole searching i have just come back from a weeks respite, rog went into a local rest home. i spent the week walking the gower with my lovely sister in law drinking wine and eating out! my word do i feel good, and have my mojo back.
all of you thinking about taking respite DO IT! he had a great time, lots of visitors and his speech and conversation is better, no falls!!!!!
much love
juliex
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Julieandrog
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Julie I understand exactly how you feel, hopefully when I get my respite break I will feel the same and be stronger to cope with everything that lies ahead!
julie, I am thinking about doing the same thing with my husband in Sept.
The hospice said they would respite my husband also. Did you have any problems at all doing this? What is the advice you would give for rest home, what to do or not to do?
my advice would be if you have'nt already refer yourselves to adult services, they will quickly assess both of your needs and a care plan will be generated. within ours was that i would initially have two lots of respite, they advised level of care needed booked it in advance which gave us plenty of time to go and view, psp is such a unique illness that i spent some time with the manager of the rest home explaining everything. she also visited us at home. a financial assessment will be done i had to pay £200 for the week if the fees are over £450 i have to pay the difference. but this time i just pay the £200. you will know if the place is ok, i just looked for kindness cleanliness good risk assessment and generally the feel of the place. if the hospice are offering i think that would be your better option as there may be no fee, i also get through social services twelve free hours a month, a lovely guy comes in and is happy to take rog out so it works really well. i feel a new woman since returning home and it did rog good too, it was however so hard to leave him as i love the bones of the man,
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