I was sheltering indoors from the late afternoon monsoon yesterday when the phone rang. The lady gabbled on for a minute before I recognised then name of one of Bug's physios. She was a social worker and keen to offer us both respite care, and for bugs ramps, help with bathing, cooking, cleaning, dressing and daytime visits to prepare /give meals such as a sandwich at lunchtime.
It was dawning on me that somewhere there is a planet where it is always sunny and nice - the inhabitants are all sw's.
I tried to explain that, at the moment Bugs can wash and dress just about ok but needs supervision in case she falls -"so she doesn't need help then". No she needs supervision in case she falls. Why would she fall? What about meals- who does the cooking? Me. Well we could come and give her a sandwich at lunchtime. Bugs cannot eat sandwiches. Why not? She can't manage the bread and chokes or simply cannot swallow it. Why does she choke? Its part of the illness. Best question coming up "What's wrong with her then". PSP. What's that? Tell her the full name and listen as she types. I don't bother to correct supernuclear.
She repeatedly asks what they can do and I am sorely tempted to tell her. Instead I say that I am not sure, I don't understand fully what they can offer etc and that I had hoped that the call would be to arrange an appointment so that everything could be discussed and that they could meet Bugs. "What a meeting, like face to face?" Yes please I answered (resisting the temptation to ask if she preferred Skype or video conferencing). Oh, I'll need to talk to my supervisor and call you back.
Perhaps I am showing my prejudices but she did sound just about old enough to be doing work experience and used sentences where like is a conjunction and end in "right".
I must admit to having very little confidence when the SW did not even know the nature of the illness, symptoms and therefore likely care needs.
Wait for the next episode!