The district nurse has discharged S, he doesn't need their service anymore. Hurray! He does not need anymore enemas. Thank goodness!
My problem? No one has discussed this with me. Even bothered to inform us they weren't coming anymore. So this morning, I phoned when they were late, Carers here waiting to shower him, left message on answer machine. Never called me back. It's my morning off, couldn't leave Carer on her own, phoned again. Big row with woman on the phone, they don't give times,(well they did to me!!) they would get there when they could! S was way down on the priority list! Still nothing about him being discharged! Eventually DN turned up. Said they didn't have the resources to look after S, he didn't need to keep having enemas. They have far too much work, looking after people that were dying!!! This was NOT the way to manage his bowels! (Oh, by the way, he did have to have one this morning!!!)
So I am now at a complete loss. In One way it's good, my husband has not got this bloody awful disease, he is not dying, he does not need medical care!!!
I am so upset, how dare they treat us so badly. Who can I turn to? The way it's going, S will have to go into a nursing home soon, it's the only way he will get the medical care he needs!!! One thing is for certain, if I had a choice, I would not let them anywhere near S again!!! I bet, if they were relying on me to pay the bill, instead of paying up front like we do, we would get better service!!!
Lots of love