Hi.........my sister who has diagnosed PSP is inclined to 'drone' I.e make a continuous audible humming noise. She is aware that she is doing it, doesn't admit to being uncomfortable or bored but doesn't seem able to stop making it. Despite very limited concentration she likes to attend Parkinson's meetings which has speakers but, due to others finding her 'droning' very stressful and distracting, we are gong to have to stop attending. I think it is just another 'circuit' that she gets stuck in. I have tried squeezing her hand, rubbing her back, telling her to 'ssshhh', covering her mouth and even pinching her ( not hard!). Any ideas?
When my sister was initially diagnosed a year ago, although not posting, I followed the posts of others to try and understand this 'demon'. For now, her drug regime keeps her independent with supervision so, for now, compared to the stress I read about within this community, she is doing well (considering her insight on everything that she has lost, she wouldn't say this subjectively!) Hugs to all of you who are battling and supporting with very exhausting issues.