Good morning, all. For anyone who was anxious to know about the results of the CoQ10 study that was concluded at the end of last year, I apologize for my delay in posting. We talked to the neurologist at the Lahey Clinic on Tuesday. It's disappointing.
The doctor, for whom I have great respect, indicated that there is still some data being sifted and that further details may be forthcoming, but the basic statement is that the study produced no statistical evidence that CoQ10 helps to slow the progress of PSP.
She would not say, however, that the benefits of CoQ10 aren't real - only that they are were not sufficient, in the 60 patients involved in the study (presumably half of whom had a placebo) to alter the statistical measures. In the end, she recommended that my guy carry on taking it, because the progress of the disease for him indicates that something may be helping. Like everything with PSP, it seems that what works for one might not work for another - the progress is so individual. The only downside to taking CoQ10 is the expense - and that is not insignificant, of course.
This is a difficult and disappointing result, of course. We had hoped for a definitive answer, but have decided, for ourselves, for now, to reject the definitive answer we were given and go with the ambiguity instead. We may change our minds, but he is going to carry on taking it, because false hope is better than none. (Irrational? Yep!)
I am sorry, everyone, not to have better news, but on we go. Best wishes to all. Easterncedar