Turmeric and Q10

[SWISS_MISS]

I have just started my wife on Q10 and Turmeric tablets.

The dosage is:

Turmeric 10,000mg (500mg of extract) supplied by Natures Best, one tablet per day

Q10 200mg supplied by Natures Best, 3 tablets per day (600mg). Will increase by one tablet per week if there are no adverse affects.

Will update this post with any progress

[peterjones]

thanks for that swiss miss will look forward to your update peter jones Queensland Australia psp sufferer

[jillannf6 in reply to peterjones]

hi pe ter jones

how r u?

i am takignj coq10 and turmeric and am falling less htn b4 - no coincidence

i feel

lOljilll

:-_)

[Sunnysky]

Hi Swiss Miss good to try some natural remedies just some info about CoQ10 make sure your buying high quality CoQ10 find the words Trans-form made with yeast fermentation on label some products are made with synthetic cis-form CoQ10 and are not effective all the best Sunnysky

[jimandsharynp in reply to Sunnysky]

Sunysky, did you try CoQ10 and what was your experience? Jimbo

[Sunnysky in reply to jimandsharynp]

Hi jimbo yes am currently taking 100mg twice a day for approx 6weeks so far havnt noticed any difference but I will increase to 3 than 400mg will keep in touch Sunnysky

[jillannf6 in reply to Sunnysky]

hi i m taking 1x200 mg capsule daily and turmeric as well and have been failing less - whether it si the pills i do not know but anything which reduces the falls is good/!!

;lol JIlll

[jillannf6 in reply to jillannf6]

i keep repeating myself on this post - sorry

lol Jill

[Healthygramma3 in reply to Sunnysky]

Thanks!!! I buy from Puritans Pride. Any thoughts??

[SWISS_MISS]

Hello Sunnysky

Thanks for the info.....

I have just checked with the site and the Q10 is natural not synthetic.

Bit of luck,

[jimandsharynp in reply to SWISS_MISS]

If you are in the USA you can get CoQ10 at Costco in liquid form. This is good if swallowing pills is a problem. It's lemon flavored. Jimbo

[Healthygramma3 in reply to jimandsharynp]

Is the Costco brand a good quality?

[jimandsharynp in reply to Healthygramma3]

In my opinion Costco doesn't carry junk stuff. This is the real thing and excellent AND it comes in liquid form.

[Healthygramma3 in reply to SWISS_MISS]

Thanks

[formercarer]

Hiya,

We used to buy 8oz bottles of liquid Co-Q10 which could be added to thickened drinks once capsules became a problem.

[skhan017]

Question: What is the benifit of taking Turmeric ? I have never been heard about it.

[jimandsharynp in reply to skhan017]

It's just another thing that some people have tried for PSP. It's kind of like the coconut oil that people were talking about and taking. Some suggested things are not tested officially so to some extent you are flying by the seat of your pants in trying them. Also very important. PSP is NOT a one-size-fits-all disease. Patients can react differently to things. What works or seems to work for one person may do nothing for another. Example: Carbadopa/Levadopa (Sinimet) works for some period of time for SOME patients but not for others. Some patients get a symptom early on while others don't have it until later or perhaps never. In PSP you are dealing with the brain and the Tau creating PSP may not be in a part of the brain for one patient over another. However, try whatever you think might work (Turmeric, coconut oil, CoQ10, etc. etc.) Jimbo

[Pram in reply to jimandsharynp]

I give my hubby 4 tsps of coconut oil and do all my cooking in coconut oil. Turmeric is used in our Indian cooking every single day. Hubby takes multi vitamins after lunch and syndopa / sinemet 3 times a day. Since he was freezing whilst walking, the neuro suggested amantadine. 1/2 tab once a day after breakfast to start with. I started it yesterday morning.

Afternoon he slept just for an hr and night time he slept from 11 pm to 2 in the morning. Then drank almost 2 big glasses of water and was wide awake till 530 am. Also very restless. His right hand was trembling a lot. Plus he was having some facial spasms/ tics.. Was a bit scary. Anyway gave him syndopa at 530am. He passed urine and then peacefully dropped off to sleep, waking up at 730 am. The

,trembling also stopped once had passed urine.

Am at a loss.. What is happ? Msged the neuro who told me to stop the amantadine.

Help !

[jimandsharynp in reply to Pram]

Our neurologist suggested Amantadine but said it had side effects so we decided to not use it. My wife is not mobile so we didn't see the point and didn't want side effects. Jimbo

[jillannf6 in reply to Pram]

amantadien i s a idfficult drug to take and needs ot be taken befor e2pm in the pm otherwise it can cause hallucinations

but do nto stop it wihtout ur neuros consent

;lol JIll:

[chopra123 in reply to Pram]

My grand dad suffers from PSP tooo and we are from india, karnataka.. where are you situated?

[Pram in reply to chopra123]

in mumbai ..

[chopra123 in reply to Pram]

Hey, my grand dad suffers from PSP too, where in india are you situated? we are from karnataka, mysore

[jimandsharynp]

Swill Miss, Whatever you think might help is worth a try. My neurologist said there is some indication that CoQ10 may help for a short time. Turmeric on the other hand may not help and there can be tolerance issues with it. As I said if you think something might work try it. Just keep in mind most things will work for a period of time but not long range. I wish there were some "silver bullet" for PSP but there just isn't, yet. I remember when my dad had shingles bad he tried lots of things on them. He even tried WD40 and peanut butter. LOL Jimbo

[peterjones in reply to jimandsharynp]

\\well jimbo if we all try enough we might just crack it and find a cure that would be great wouldn't it mate sounds like your dad was a bit of a'' slippery customer'' a jim wd 40 and peanut butter but its like you say you will try anything if you think its going to help excuse the pun mate how is Sharon going now \\ok I hope peter jones queensland Australia psp bloke and trier of most things bUt never trIed peanut butter and WD 40 YET its alright jim I have a funny sense of humour mate

[Joannebale43]

Thank you look forward to seeing how you get on - my dad has psp and I will get the tumeric and q10 for him - good luck Jo

X

[jillannf6 in reply to Joannebale43]

hi i hav ejsu treciev ed my turmeirc and co q10 and starte d it yesterday iwll keepe yo uposted..

lol Jill

;-0

[Joannebale43 in reply to jillannf6]

Oh that's good, good luck and keep us posted xx

[jillannf6 in reply to Joannebale43]

hi

i have been taking turmeric and coq10 fo r2 weeks now and am falling less than b4 - no coincidence I feel but which is it the turmeric or coq10

[jillannf6 in reply to Joannebale43]

i hav ego thte turmeric and coq10 from nature's best onlien

[Jane2212]

Yes, we tried the Q10 too with my Mom Irene, even her doctor prescribed some for us to help us but the dosage had to be quite large - I used to order large tubs from the USA. I am convinced it did help her (mind, not body) and so did her GP and the district nurses. We were just trying out Turmeric in 2010 when she passed away, I had bought some Turmeric capsules and was working out the dosage though by then her swallowing was a little too bad to take them and I couldn't get it down the PEG either easily. It's interesting to see that more people are using it now and I look forward to seeing what effects it has.

We do have CostCo here too in the UK (in Birmingham) and I shall have a look out of interest for the liquid form of Q10.

Jane

x

[jillannf6]

we hav e a costco near us as well but i have never been will try and get

someone who goes to ge tme some fo the liquid fom

lol jill

[SWISS_MISS]

Christina47

Thanks for the info. I have found a stockist in the UK.

What dosage does your husband take?. Thanks

[jillannf6]

i tooo have jsut starte don coq10 and turmeric and miuy falls are much reduce dto 6 a day rathe rthan 20+

so it might be the meds i do not know

(i am not tkaign as much coq10 as you are)

lol JILL

[SWISS_MISS]

Thanks

[jillannf6]

i prob neeed ot increase the coq10 tabs btu iwll be thrgo htem v quicklhy if i do

ll JIll

[jillannf6]

what surveuy is htis christine??

;LOlJIlll

[Healthygramma3]

I give my husband turmeric and coq10. He is on 800 mg coq10.

I read to give up yo 1200.

I have also read that megadoses of glutathione actually heal brain cells. Thought about injections but early stages of CBD and seems not to be progressing too quickly.

I would love to stay in touch with how your natural treatment seems to work.

I AM SCARED OF THIS JOURNEY and hope I can slow it's progress

[SWISS_MISS]

Christine47

Thanks for the info and have now read the article. I am starting my wife on the Longvida product.

It is quite expensive in the UK but am asking a friend in San Antonio if he could purchase it for me in the US.

What has helped my wife is Red Grape juice, it really controls the excess saliva she was having problems with.

[Pram]

any updates ???

[SWISS_MISS in reply to Pram]

Hello Pram

After reading a lot of articles and especially an article by Sharon Comden, Dr.PH, I have my wife on the following regime:

Before Breakfast she takes: 400mg of Co Q10,250mg of Vitamin C, 500 mg Nutrivene Longvida Curcumin followed by a slice of toast with a coconut oil spread. (Can be replaced with a fish oil).

After breakfast she takes 200mg of Madopar.

Midday meal she takes 200mg Madopar

Evening meal she takes 200mg Madopar.

Before supper she takes 200mg CO Q10, 250mg Vitamin C,500mg Longvida Curcumin followed by a slice of toast with coconut oil as a spread.

After supper she takes 200mg Madopar.

Whether to take before or after a meal seems to be important as it enables the medication/supplement to be absorbed more easily.

The Madopar is the original medication used for her Parkinson diagnosis but helps reduce any tremors and seems to strengthen her legs.

If you send me your email address I can forward to you the article mentioned at the beginning.

[sidharth_roy]

What is the current Status ?

[Anna_M]

Is there any update from those who started taking Turmeric and COQ10 about a year ago? Has it slowed down the progression?