Pain

[blackcushion]

Hope you are all bearing up under the strain I know how hard and frustrating it all is. My mum is in alot of pain with her legs now they have prescribed morphine anyone else have a loved one who suffers with this pain.

[easterncedar]

I'm sorry not to have anything to offer you but concern, blackcushion. It is awful to see someone in pain and not be able to help. My guy has pain in his hips and legs, although the doctor says it is to be expected with the way psp is making his walking so uneven. Sometimes, of course, the pain is clearly the result of a fall. It comes and goes, and he takes over the counter medications, has an electric hot pad that seems to ease him some. I hope your mother's discomfort finds relief soon. Easterncedar

[Hidden]

Hi yes mum had this pain once she was bedridden-she had contracture of the hip. Her pain threshold was very high so she would not complain until it was bad and the nurses took forever to give her pain relief. I brought this up with the hospice nurse and she immediately got mum onto pain patches which were a godsend and mum was given painkillers at every drugs round after that regardless. I always kept mum as mobile as possible and she thankfully only got this trouble at end stage. I wish you well x

[Hidden]

According to the neurologist pain is not normally associated with PSP. My wife suffered from pain in her leg last year. Reason was that due to falls the alignment of her pelvis and hip was out of sync. Consequently the muscles were pulled in the wrong direction and that eventually started to cause pain. Her hamstring was very tight as well as her quads. So she was on heavy doses of pain killers, 3 times 250 mg of naproxen and 4 times 1000 mg of paracetamol. We saw an osteopath to get the misalignment corrected and at the same time we got a personal trainer for massage and exercise. It took 3 months for the pain gradually to abate and now my wife is totally off pain killers. It is not a very good idea to take pain killers on an on-going basis, it does not address the cause of the problem, and it makes matters eventually only worse.

My wife also got a tight shoulder and neck, which is caused by holding her arms up due to balance problems. So it is very important to tell her all the time to relax. So posture is equally important.

Critical is that falls are avoided at all cost, as they are the main culprit of skeletal misalignments and tight muscles.

My wife gets each week a 2 hours workout and massage from the personal trainer. GP's are hopeless when it comes to skeletal problems and / or muscle issues. Their 'cure' is to prescribe pain killers. That is all they can do. So I would suggest you have your mum checked out by an osteopath and then to make sure that she gets massage and simple exercises to alleviate the tightness of her muscles, to relax them and then gradually the pain will cease as well.

[nomansland]

I tend to agree with Gerko but PSP and falls go together,if you can prevent a bad one you will be 100 percent better off....if not it will become impossible to not use painkillers,in the later stages of psp ,morphine is a drug with many side effects also decreases lung power which psp already does,have you tried Tylenol 3,my wife fell 10 years ago b4 any other symptom showed itself...I know your situation,try to live for the moment ,all days will not be bad,regards,RD

[jimandsharynp]

My dear wife only has minor pain in one arm and that only from time to time. I'm not sure how many PSP patients suffer from pain. Would certainly like to know. Jimbo

[marytea13]

Yes but I am able to use Panadol osteo - have to take 3 times a day mostly works marytea 13

[stalbans]

I suffer with bad pain

more at night, bad pain in legs at times very unstable, but I do try to get out or more to the point get taken for a short walk