Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,323 members•40,434 posts

All posts for October 2012

results with specialist

hello everyone went to see specialist today pmr kept me on 15mls a day for two weeks as seem to suit me. Pain is noticable in my shoulders kneck and arms...

hello everyone went to see specialist today pmr kept me on 15mls a day for two ...

jinnyone

•12 years ago

2 Replies

First Visit to Rheumatologist

Well after being diagnosed with GCA several months ago I had my first visit to a Rheumatologist. Well I will admit to feeling very anxious but I had first...

Well after being diagnosed with GCA several months ago I had my first visit to a...

Hidden

•12 years ago

3 Replies

Please complete our survey!!

Hi everybody All charities are having a tough time at the moment, and we are no exception. In order to apply for grant funding we need lots of data and...

Hi everybody All charities are having a tough time at the moment, and we are ...

Polywotsit

PMRGCAuk team member•12 years ago

4 Replies

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I have very swollen legs and feet as a side effect from steriods.

Last night my cat scratched the back of my leg - not serious - just a small surface scratch, obviously I washed the wound and put on antiseptic - however, all...

Last night my cat scratched the back of my leg - not serious - just a small surf...

Hidden

•12 years ago

8 Replies

A new week

Morning all Today is the first day of a brand new week for my meds. Today I drop from 18mg pred to 15mg, hopefully the steroid injection will counterbalance...

Morning all Today is the first day of a brand new week for my meds. Today I dr...

Sue8

•12 years ago

3 Replies

I have had PMR for the last 2 years. in the last 5 month I get bad pains in both legs. Am on 4mg pred. daily and 25 methotraxate weekly

If I "up" mu prednison it doesnt make any difference.....

diana-mc

•12 years ago

3 Replies

Withdrawal from Predisolone symptoms

Yesterday felt very strange - not quite dizzy but almost so and a bit nauseous. Had reduced dosage from 7mg to 5mg over previous few days - could that be the...

Yesterday felt very strange - not quite dizzy but almost so and a bit nauseous. ...

MaisieB

•12 years ago

3 Replies

After three and a half years on pred for PMR/GCA I seem to have developed asthma. Any connection? My Dr thinks not. Anyone else experienced?

nannyjc

•12 years ago

5 Replies

Swollen stomach?

Hi, I've had PMR for four and a half years now and have been on steriods for nearly two years. I am reducing my dosage by half a mg every month as reducing by...

Hi, I've had PMR for four and a half years now and have been on steriods for nea...

EileenA

•12 years ago

4 Replies

Do you think we need to up the dose of steroids, in order to come down?

I started on 15mg 28th Feb this year. Went up to 20mg 15th May, started reducing middle of June. I had no pain at all and felt sure that the disease had...

I started on 15mg 28th Feb this year. Went up to 20mg 15th May, started reducin...

JUDEAPUDE

•12 years ago

6 Replies

weight gain

since i have been on the steriods my energy levas ave increased but i get urges to eat is this part of the treatment do steriods cause weight gain. i am...

since i have been on the steriods my energy levas ave increased but i get urges ...

jinnyone

•12 years ago

7 Replies

pmr reduction

i have dropped 2mls a day of presidone and i have still pain in kneck and shoulders now tingling in my arms and hands. Iam taking pain killers tramacete and...

i have dropped 2mls a day of presidone and i have still pain in kneck and should...

jinnyone

•12 years ago

1 Reply

Rheumy appointment

Hi everyone Well today I have been to see a rheumy. I did actually see this chap 2yrs ago with my painful hands but got discharged as he could not find...

Hi everyone Well today I have been to see a rheumy. I did actually see this cha...

Sue8

•12 years ago

7 Replies

pmr

my left side of my body is worse than my right , but my left leg is more swollen that the right is this normal? does anyone know or had this , i got the tape...

my left side of my body is worse than my right , but my left leg is more swolle...

steph1

•12 years ago

5 Replies

leg cramps

i am now on 3 week of steriods with a drop of 2ml i am havig leg cramps and shoulders kneck arms i can feel the pain there again.I Hhave read the blogs and...

i am now on 3 week of steriods with a drop of 2ml i am havig leg cramps and shou...

jinnyone

•12 years ago

3 Replies

One Month on Pred

I am now down to 10 mg and at 15 mg all the aches and pains were back , still not able to do much and getting out of bed in the mornings is a killer but i do...

I am now down to 10 mg and at 15 mg all the aches and pains were back , still no...

lynabelle

•12 years ago

5 Replies

JAW STIFF NO PAIN

MY JAW IS STIFF MOUNTH WONT OPEN VERY FAR BUT ONLY SLIGHT PAIN IS THIS NORM GONE FROM 20 MG TO 15 MG

MY JAW IS STIFF MOUNTH WONT OPEN VERY FAR BUT ONLY SLIGHT PAIN IS THIS NORM GONE...

yusuf

•12 years ago

2 Replies

Polls

Hello everybody, hope you are coping with the colder weather. I actually had the gas fire on last night at the same time as the central heating! Anyway, wanted...

Hello everybody, hope you are coping with the colder weather. I actually had the...

Polywotsit

PMRGCAuk team member•12 years ago

Be the first to reply

PMR an osteoporosis

Gota call from my GP today the result of dexa scan is I have osteoporosis,my question is there is so much info out there regarding this subject,so can someone...

Gota call from my GP today the result of dexa scan is I have osteoporosis,my que...

Hidden

•12 years ago

2 Replies

still in pain

im back off holiday , woke up with flu on my first day off holiday ( great ) still got it now chesty cough. im still on 20mg preg at mo , seeing my own gp...

im back off holiday , woke up with flu on my first day off holiday ( great ) sti...

steph1

•12 years ago

4 Replies

another drop

Hi all, hope you are all doing good. Yesterday I dropped another 1mg so now on 18mg. I am doing 1mg every 2 weeks. I have got up with very stiff arms and...

Hi all, hope you are all doing good. Yesterday I dropped another 1mg so now on ...

Sue8

•12 years ago

5 Replies

can i claim DLA for PMR and Osteoporosis

hi i suffred PMR 3 years ago which has resulted in me having Osteoporosis i was told that when i was given treatment for PMR i should have also been given...

hi i suffred PMR 3 years ago which has resulted in me having Osteoporosis i was ...

nessa01

•12 years ago

4 Replies

Follow up to previous post "Rheumatologist now not sure I have PMR"

Just got back from the Rheumatologist, and all my test results are back. It confirms that I do have PMR after all ! Glad to have it official at last and to...

Just got back from the Rheumatologist, and all my test results are back. It con...

Hidden

•12 years ago

5 Replies

other side of tote bag where the name can be done

sorry don't know how to put more than one pic on a blog lol. So here is the other side of the tote bag

sorry don't know how to put more than one pic on a blog lol. So here is the othe...

Sue8

•12 years ago

4 Replies

tote bag pics

you can add a name that will be hand embroidered at no extra charge. The bags are £6 + p&p and £3 is donated to PMRGCAuk per bag sold.

you can add a name that will be hand embroidered at no extra charge. The bags ar...

Sue8

•12 years ago

4 Replies

Falling Down & PMR

Last Friday morning at about 7a.m. I heard the approaching refuse collectors in the road, so I got up quickly and put my dressing gown on. I unlocked the...

Last Friday morning at about 7a.m. I heard the approaching refuse collectors in ...

PkIRnd

•12 years ago

6 Replies

Thinning skin and bruising

Prednisolone has created havoc with the skin on my wrists and forearms. I only have to scratch an itch and a haematoma appears. Travelling by train this week,...

Prednisolone has created havoc with the skin on my wrists and forearms. I only h...

Annodomini

•12 years ago

14 Replies

loss of sight due to Giant Cell

Having bad day lost sight of one eye three months ago and still very worried about good one ,today does not seem as clear ,,i am so afraid when i a wake each...

Having bad day lost sight of one eye three months ago and still very worried abo...

2watsons

•12 years ago

9 Replies

update on my pmr

went to doctors to day for blood test results all test have gone up a lot, he will book me in to see rheumatology at hospital because of very bad side affect...

went to doctors to day for blood test results all test have gone up a lot, he wi...

yusuf

•12 years ago

2 Replies

PMRGCAuk tote bags to raise awareness

Hi all Today I have been given permission to use PMRGCAuk logo's to print onto tote bags. I thought this would be a good idea to raise awareness of this...

Hi all Today I have been given permission to use PMRGCAuk logo's to print onto ...

Sue8

•12 years ago

3 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for October 2012

results with specialist

First Visit to Rheumatologist

Please complete our survey!!

I have very swollen legs and feet as a side effect from steriods.

A new week

I have had PMR for the last 2 years. in the last 5 month I get bad pains in both legs. Am on 4mg pred. daily and 25 methotraxate weekly

Withdrawal from Predisolone symptoms

After three and a half years on pred for PMR/GCA I seem to have developed asthma. Any connection? My Dr thinks not. Anyone else experienced?

Swollen stomach?

Do you think we need to up the dose of steroids, in order to come down?

weight gain

pmr reduction

Rheumy appointment

pmr

leg cramps

One Month on Pred

JAW STIFF NO PAIN

Polls

PMR an osteoporosis

still in pain

another drop

can i claim DLA for PMR and Osteoporosis

Follow up to previous post "Rheumatologist now not sure I have PMR"

other side of tote bag where the name can be done

tote bag pics

Falling Down & PMR

Thinning skin and bruising

loss of sight due to Giant Cell

update on my pmr

PMRGCAuk tote bags to raise awareness

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