Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,323 members•40,434 posts

All posts for June 2023

New consultant !

My rheumy went on Maternity leave in December, I had a phone appointment with a senior nurse practitioner in March and today met my new consultant. I was very...

My rheumy went on Maternity leave in December, I had a phone appointment with a ...

Jigsawlass

•1 year ago

12 Replies

Prednisone

So, I posted earlier about my ruptured achilles tendon...now I find out that prednisone weakens so many things and now tendons. I am wondering if it will even...

So, I posted earlier about my ruptured achilles tendon...now I find out that pre...

Joseph14612

•1 year ago

41 Replies

Anyone have a sibling who had/has PMR?

My brother, a couple years older than me, had PMR about 2 years before my first bout with PMR. He was successfully treated with prednisone. At the end of his...

My brother, a couple years older than me, had PMR about 2 years before my first ...

darkred

•1 year ago

17 Replies

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Adrenal Gland Question

I'm a GCA patient since AUG 2022, having started at 60 MG PRED and am currently down to 10 MG. We live in the mountains of Virginia and often have to deal...

I'm a GCA patient since AUG 2022, having started at 60 MG PRED and am currently ...

montebello

•1 year ago

6 Replies

Grounding? a sleep and pain help?

I've bought a 'grounding mat' a sort of wired up undersheet for the bed, plugged into the earth socket. (I bought a Rowland one but there are many makes and...

I've bought a 'grounding mat' a sort of wired up undersheet for the bed, plugge...

howtotaperdown

•1 year ago

7 Replies

Guilty or not ???

Today, after a few days of increasing pain in my neck, started on left side on Wednesday this morning also right side, I have taken extra 5mg Pred without...

Today, after a few days of increasing pain in my neck, started on left side on W...

Golf-1

•1 year ago

4 Replies

Pain in calf muscle

Since starting Methotrexate end October 2022 I have been very slowly reducing my Pred, I am presently coming down from 6.5 to 6 mgs. Over the last couple of...

Since starting Methotrexate end October 2022 I have been very slowly reducing my...

Hollybee21

•1 year ago

17 Replies

Achey stiffness but no pain.

Hi Everyone, I’m 20 weeks off pred and still on 3.5 weekly TCZ injections. I have noticed, after awakening from the relatively pain free world of...

Hi Everyone, I’m 20 weeks off pred and still on 3.5 weekly TCZ injections. I h...

LemonZest11

•1 year ago

52 Replies

Adrenals

Im down to 4mg pred daily Im a bit achey but it wears off after a bit I just wanted to ask when will I know my adrenals are working thanks

Im down to 4mg pred daily Im a bit achey but it wears off after a bit I just wan...

deeperpurple

•1 year ago

6 Replies

Enough Pred for the life you lead

We know about ‘sick-day rules’ and there’re loads about increasing for special events, dentist, travel, surgery, but I haven’t seen anything like as much about...

We know about ‘sick-day rules’ and there’re loads about increasing for special e...

Mayadill

•1 year ago

10 Replies

night aches

I have been tapering very gently down from 5mg prednisolone and am now at 2.5 after sn intial 15mg in June 2020. So generally pleased with myself. However i...

I have been tapering very gently down from 5mg prednisolone and am now at 2.5 a...

Loveopera

•1 year ago

6 Replies

Red Blotches

I've had this before! Red bruise blotches on my arms. They are varying sizes from pinprick to a quarter of an inch. I'm stuck on 10mg of Pred I get them...

I've had this before! Red bruise blotches on my arms. They are varying sizes fro...

Hidden

•1 year ago

11 Replies

hip pains returning post THR

I had my THR last Friday, and was discharged on Sunday. I am taking full dose paracetamol and ibuprofen, but no codeine as I react badly. On the recommendation...

I had my THR last Friday, and was discharged on Sunday. I am taking full dose pa...

Angel_doll

•1 year ago

7 Replies

co codamol. Side effects

My husband was on 30/500 co codamol , and now has constipation stomach pain and terrible sickness. Anyone else suffered with side effects like that. Thanks

My husband was on 30/500 co codamol , and now has constipation stomach pain and...

Atma123

•1 year ago

13 Replies

Update on pain symptoms

Just an update, at 9 this morning I upped my dose of pred from 9.5 to 15 mg prednisone, 8 hours later the relief of painful symptoms is incredible, not...

Just an update, at 9 this morning I upped my dose of pred from 9.5 to 15 mg pred...

Kiwisufferer2019

•1 year ago

9 Replies

Bee Sting and Prednisone

This is probably the most trivial question that I have asked the group thus far, but I was just stung in the neck (right where the lymph nodes in my throat...

This is probably the most trivial question that I have asked the group thus far,...

Donna5658

•1 year ago

3 Replies

35mg Pred after a year of GCA,PMR

Hello, I've had GCA and PMR for a year. I'm on Actemra and prednisone. I was reducing and got down to 12.5mg three months ago. But the symptoms came roaring...

Hello, I've had GCA and PMR for a year. I'm on Actemra and prednisone. I was red...

potterylady

•1 year ago

14 Replies

Not sure if I am happy...

Initially I was pleased that my dose of prednisolone was down to 3mg daily after 5 years. However I am feeling that the prednisolone has been masking arthritic...

Initially I was pleased that my dose of prednisolone was down to 3mg daily after...

HamishPMR

•1 year ago

19 Replies

Self Care

Day 3 of my new self care days - put myself first. No taking people shopping no rushing out to post a letter no MUST DO jobs seems strange!! I sat and watched...

Day 3 of my new self care days - put myself first. No taking people shopping no ...

UnicornDancer

•1 year ago

15 Replies

Hi all an update on my new rheumy

Hi everybody, yesterday evening I had an appointment with my new Rheumy. I was actually dreading it due to my last experience with the previous rheumatologist....

Hi everybody, yesterday evening I had an appointment with my new Rheumy. I was a...

Wonderfullifeandmore

•1 year ago

9 Replies

Should I increase my Pred dose?

Hi! I was diagnosed with PMR in October 2022 and started on 15mg of Prednisolone for 4 weeks. I reduced to 12.5mg and stayed there until February then reduced...

Hi! I was diagnosed with PMR in October 2022 and started on 15mg of Prednisolone...

AgMuirhead

•1 year ago

9 Replies

How to pass the day

Eternities Day Dawn whispers to your sleepy ears as nature awakens to herald daybreak. Quiet colours will bless your eyes, as suns soft rays do...

Eternities Day Dawn whispers to your sleepy ears as nature awakens to heral...

cycli

•1 year ago

29 Replies

IL-6 AND PMR

I cannot find this article here and I found it very helpful in understanding our disease. Written for medical professionals, it is still pretty easy to read...

I cannot find this article here and I found it very helpful in understanding our...

papadapadoo

•1 year ago

30 Replies

Ultrasounds

Hi all, this morning I had ultrasounds on shoulders neck hands and wrists because of increased pain and at the request of my Rheumatologist who thinks I may...

Hi all, this morning I had ultrasounds on shoulders neck hands and wrists becaus...

Kiwisufferer2019

•1 year ago

30 Replies

Feeling unwell after reducing Prednisolone from 10 to 9mg

I was diagnosed with PMR in May and commenced 10mg Predisolone. After 6 days I felt amazing. I reduced this to 9 mg after 4 weeks as instructed but after 3days...

I was diagnosed with PMR in May and commenced 10mg Predisolone. After 6 days I f...

Hidden

•1 year ago

12 Replies

Dupuytrens contracture and PMR

This may seem a silly question but is the condition of Dupuytrens contracture linked in any way to PMR ? I have done a bit of research and it would seem both...

This may seem a silly question but is the condition of Dupuytrens contracture l...

larkthebark

•1 year ago

7 Replies

Tapering Problem

I have been reducing my Pred by 1mg a day every 2 weeks starting from 14mg a day. I reached 11mg ten days ago and have been waking around 4.30-5am feeling very...

I have been reducing my Pred by 1mg a day every 2 weeks starting from 14mg a day...

craighead72

•1 year ago

6 Replies

still in pain.

Hi I am still supplementing my Prednisolone with Brufen and paracetamol. Pain in right jaw and head continues. I am so tired of being in pain. Next...

Hi I am still supplementing my Prednisolone with Brufen and paracetamol. Pain ...

AineB2020

•1 year ago

31 Replies

PMR GCA GARDENING

There has been recent discussion on having a gardening group, as gardening can really boost people’s well being. Bluepuddy, who had this excellent idea, kindly...

There has been recent discussion on having a gardening group, as gardening can r...

piglette

•1 year ago

16 Replies

Update after first "course" of pred and follow up call from doc.

I wrote a couple of weeks ago that I'd been hit with a second round of PMR just over a year of arriving at zero pred.Doc did huge panel of bloods all normal...

I wrote a couple of weeks ago that I'd been hit with a second round of PMR just ...

MamaBeagle

•1 year ago

6 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2023

New consultant !

Prednisone

Anyone have a sibling who had/has PMR?

Adrenal Gland Question

Grounding? a sleep and pain help?

Guilty or not ???

Pain in calf muscle

Achey stiffness but no pain.

Adrenals

Enough Pred for the life you lead

night aches

Red Blotches

hip pains returning post THR

co codamol. Side effects

Update on pain symptoms

Bee Sting and Prednisone

35mg Pred after a year of GCA,PMR

Not sure if I am happy...

Self Care

Hi all an update on my new rheumy

Should I increase my Pred dose?

How to pass the day

IL-6 AND PMR

Ultrasounds

Feeling unwell after reducing Prednisolone from 10 to 9mg

Dupuytrens contracture and PMR

Tapering Problem

still in pain.

PMR GCA GARDENING

Update after first "course" of pred and follow up call from doc.

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