Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,323 members•40,434 posts

All posts for March 2023

Started on 20mgs. of prednisolone nearly 8 years ago for PMR. Still unable to drop to 2mgs.

I have had a new rheumatologist for the last 18 months who on the first telephone consultation said that she was not concerned with me being on 2.5mgs. of...

I have had a new rheumatologist for the last 18 months who on the first telepho...

El50

•2 years ago

37 Replies

High blood pressure tabs

Advice please from anyone with a similar experience. I’ve had PMR for almost four years and with various flares now decreasing v slowly and taking 6mg daily....

Advice please from anyone with a similar experience. I’ve had PMR for almost fou...

Bachfugue

•2 years ago

54 Replies

methotrexate and antibiotics

Hello I’m wondering if anyone can advise whether I should miss a week or two of methotrexate injections whist on a course of antibiotics? For background...

Hello I’m wondering if anyone can advise whether I should miss a week or two of...

Avon14

•2 years ago

24 Replies

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Thyroid & PMR

Stone cold feet/pins & needles/numbness in feet creeping up legs/stiffness around ankles. Pins & needles now in hands. Persistent fatigue. Have had episodes...

Stone cold feet/pins & needles/numbness in feet creeping up legs/stiffness aroun...

maxismall

•2 years ago

3 Replies

Judywalks

it has been so helpful to read all the posts. I have only recently discovered this site. I started with PMR a few years ago and was put on Pred by my GP. 2yrs...

it has been so helpful to read all the posts. I have only recently discovered th...

Judywalks

•2 years ago

13 Replies

Poster

Thanks to everyone who replied to my request for the poster showing typical comments made to us PMR sufferers. I've printed off the one I particularly wanted...

Thanks to everyone who replied to my request for the poster showing typical comm...

Maggiechris

•2 years ago

12 Replies

omega 3 supplement and methotrexate

Hello to you all . I am newly diagnosed with rheumatoid arthritis and am due to start methotrexate in a couple of days. I am a vegetarian and take an omega 3...

Hello to you all . I am newly diagnosed with rheumatoid arthritis and am due to ...

Syniad

•2 years ago

7 Replies

Tapering from 40 mgs in Dec, to 10 mgs

so as ive posted, been on pred since oct 2016, started 40 mgs then, got down to 4 mgs, until last fall, started to have many issues, by Dec, rheumy though my...

so as ive posted, been on pred since oct 2016, started 40 mgs then, got down to ...

arvine

•2 years ago

7 Replies

Prolia instead of Fosamax

I'm a GCA patient since AUG 2022, have gone from 60 mg PRED per day to 20 MG PRED per day at present. My Rheumy put me on Fosamax 3 weeks ago and I have not...

I'm a GCA patient since AUG 2022, have gone from 60 mg PRED per day to 20 MG PR...

montebello

•2 years ago

10 Replies

A poem (or rather an attempt at a poem) for newbies, oldies and inbetweeners.

PMR (or Practice Mindfulness Regularly) The tiny white pills are doing their job (🤞) and confidence grows by the day, But don’t be...

PMR (or Practice Mindfulness Regularly) The tiny white pills ar...

123-go

•2 years ago

59 Replies

getting muddled

i found it really helpful reading that dividing up the dosage and taking half early in the morning would help the stiffness i was having in the morning. i...

i found it really helpful reading that dividing up the dosage and taking half ea...

Reclus

•2 years ago

3 Replies

Tapering

Hi, I have now with 3 tries got down to 7.5 of Pred ! im stable now without any of the horrid side affects. I am trying to reduce very slowly and so far so...

Hi, I have now with 3 tries got down to 7.5 of Pred ! im stable now without any ...

Viv54

•2 years ago

10 Replies

My latest six-month review with a (2nd) locum.

Two days ago I arrived at my rheumatology clinic in good time for my appointment. Waiting for my name to be called I became increasingly concerned when people...

Two days ago I arrived at my rheumatology clinic in good time for my appointment...

123-go

•2 years ago

11 Replies

So the GP upped me to 20 mg

for 3 weeks and then we'll see how I feel. He just said my ESR rising was"odd", seemed more concerned with the 11 lb weight gain in 6.5 weeks..as of today I...

for 3 weeks and then we'll see how I feel. He just said my ESR rising was"odd",...

sidra1968

•2 years ago

23 Replies

Poster

Hi everyone A little while ago someone (was it Dorset Lady?) posted a picture of a poster of things people typically say to those of us with PMR. It was...

Hi everyone A little while ago someone (was it Dorset Lady?) posted a picture o...

Maggiechris

•2 years ago

15 Replies

Vitamins.

Hi just wondering if I can take vitamins,as I have come off my steroids but still on leflunomide 1 10mgs tablet a day.feeling good at moment,do get some aches...

Hi just wondering if I can take vitamins,as I have come off my steroids but stil...

Flosy

•2 years ago

7 Replies

When it rains it pours

I finally got home from the hotel and I got sick yesterday.Took a covid test that read negative but not sure how accurate they are?How many mgs should I...

I finally got home from the hotel and I got sick yesterday.Took a covid test tha...

Hunter134

•2 years ago

20 Replies

Update on LDN

A while back I posted that I would be trying low-dose naltrexone and would report the results. Here is an update after one month of LDN. I began taking 1.1mg...

A while back I posted that I would be trying low-dose naltrexone and would repor...

papadapadoo

•2 years ago

7 Replies

Polymyalgia

It has been suggested by my Gastroenterologist that I might have this or Fybromyalgia. But I am unsure as I didnt fit the profile when it first started as I...

It has been suggested by my Gastroenterologist that I might have this or Fybromy...

ian16527

•2 years ago

22 Replies

curious ??

so last week I felt I was flaring at 2.5mg ahead of a ski holiday so I upped to 5 . I’m on the holiday and have skied c 3 hours every day on mainly reds ,...

so last week I felt I was flaring at 2.5mg ahead of a ski holiday so I upped t...

Sydney0503

•2 years ago

11 Replies

Prednisolone not working as well?

I have gradually been reducing from 15mg down to 7mg and my symptoms have been kept at bay but yesterday I woke up feeling I had a cold and my knees were...

I have gradually been reducing from 15mg down to 7mg and my symptoms have been k...

Bayleaf1

•2 years ago

5 Replies

First Biologic Drug Approved for PMR

Good news for those struggling to reduce Pred. The FDA approved a biologic drug, Kevzara, for PMR sufferes in the beginning of March. Ot acts like Actemra,...

Good news for those struggling to reduce Pred. The FDA approved a biologic drug,...

Knit11

•2 years ago

26 Replies

cutting Uncoated 1 mg

hi all I’m on 7mg and hoping to go decrease to 6.5 next week. My dilemma is I only have non coated 1 mg and I can cut in half fine BUT I take coated with other...

hi all I’m on 7mg and hoping to go decrease to 6.5 next week. My dilemma is I on...

Uglow

•2 years ago

10 Replies

Re Osteopina and options - need a PHd in bones!

Hi, I have been on Pred and also Alendronic Acid since diagnosis for PMR March 22 I decided against Omeprezole in favour of taking live yogart like others on...

Hi, I have been on Pred and also Alendronic Acid since diagnosis for PMR March 2...

Animalover65

•2 years ago

15 Replies

Adrenals or that dripping tap?

Hello Friends, it’s me again. I have been thinking about asking you all but then I come good and think no need, and then I change and so here I am. I have...

Hello Friends, it’s me again. I have been thinking about asking you all but the...

LemonZest11

•2 years ago

15 Replies

?bursitis

Hi Am wondering if I need an osteopath or whether shockwave therapy might help.I have a painful hip - it feels sore on the outside and a deep ache.It’s on...

Hi Am wondering if I need an osteopath or whether shockwave therapy might help...

bakingD

•2 years ago

3 Replies

Pain in arms after handling heavy goods

I have been running a celebration event at work on Monday and Tuesday. I had to lift a couple of boxes containing some trophies that were mega heavy. I mean...

I have been running a celebration event at work on Monday and Tuesday. I had to ...

Karendeena

•2 years ago

7 Replies

Toe Problems - PMR or Steroids??

As I have dropped down my steroids (now on 10mg for the last 6 months) have had various foot issues from athletes foot to an impressively large wart (now...

As I have dropped down my steroids (now on 10mg for the last 6 months) have had...

Alchemy8

•2 years ago

4 Replies

Rheuma wants me on alendronate?! What are your t-scores?

So, I saw my new Rheuma for the 2ed time. I was prepared to explain how affull I felt (flair), and why I needed to go back on 10 mg, but I could have saved my...

So, I saw my new Rheuma for the 2ed time. I was prepared to explain how affull I...

krillemy

•2 years ago

14 Replies

swollen and painful hip joint and ankle (tendon?)

I’ve been stuck on 9 mg of pred for 9 months due to two cataract surgeries that kept being moved ahead, and unrelenting family and weather stress, ( I...

I’ve been stuck on 9 mg of pred for 9 months due to two cataract surgeries ...

Mstiles

•2 years ago

8 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2023

Started on 20mgs. of prednisolone nearly 8 years ago for PMR. Still unable to drop to 2mgs.

High blood pressure tabs

methotrexate and antibiotics

Thyroid & PMR

Judywalks

Poster

omega 3 supplement and methotrexate

Tapering from 40 mgs in Dec, to 10 mgs

Prolia instead of Fosamax

A poem (or rather an attempt at a poem) for newbies, oldies and inbetweeners.

getting muddled

Tapering

My latest six-month review with a (2nd) locum.

So the GP upped me to 20 mg

Poster

Vitamins.

When it rains it pours

Update on LDN

Polymyalgia

curious ??

Prednisolone not working as well?

First Biologic Drug Approved for PMR

cutting Uncoated 1 mg

Re Osteopina and options - need a PHd in bones!

Adrenals or that dripping tap?

?bursitis

Pain in arms after handling heavy goods

Toe Problems - PMR or Steroids??

Rheuma wants me on alendronate?! What are your t-scores?

swollen and painful hip joint and ankle (tendon?)

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