Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,323 members•40,434 posts

All posts for July 2015

Kitten Power

I got a Siamese Lilac point tiny kitten three weeks ago. Best thing I have ever done! He has completely turned my focus from myself to him and his welfare....

I got a Siamese Lilac point tiny kitten three weeks ago. Best thing I have ever ...

PMRandRA

•9 years ago

11 Replies

now i have Trochanteric Bursitis

here we go again i am falling apart . I have had hip X-ray as i was getting sharp pain in my hip when walking going up stairs etc it go slightly better...

here we go again i am falling apart . I have had hip X-ray as i was getting sh...

Kay60

•9 years ago

9 Replies

GCA

Anyone know what a low IgA Quant and low IgG Serum means. I now high can be bone cancer, but from what I can pull up think it is with the kidney? Very...

Anyone know what a low IgA Quant and low IgG Serum means. I now high can be bon...

cassey1879

•9 years ago

1 Reply

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bone scan

Hi girls, can any one tell me what number my bone scan should be if normal,i do not know wot is good and wot is bad, no rush not going for scan till 3...

Hi girls, can any one tell me what number my bone scan should be if normal,i do ...

ritter

•9 years ago

2 Replies

GCA temple artritis ?

Hi all i was treated for temple artritis with 6o mg preds started 7 weeks ago since then my doc made urgent app with rheumy my bloods was 33 inflamation i had...

Hi all i was treated for temple artritis with 6o mg preds started 7 weeks ago si...

bobless

•9 years ago

12 Replies

GCA

Going on 2 years with GCA, on actemra to keep me off preds. All my labs are good but still don't feel like I did before GCA. I get worn out doing a load of...

Going on 2 years with GCA, on actemra to keep me off preds. All my labs are good...

beringer

•9 years ago

7 Replies

Bewildered, disappointed and arrgghh angry too, after Rheumy visit.

Hi to everyone. Firstly, thanks to all who take the time to post and comment - this forum is so valuable to me as it helps me to deal with things and realise...

Hi to everyone. Firstly, thanks to all who take the time to post and comment - ...

missretired

•9 years ago

14 Replies

Newly diagnosed with GCA at 46

Hi All I've literally been diagnosed yesterday and started on 50mg pred. As it was 5pm appointment another gp is calling me in the morning to discuss seeing a...

Hi All I've literally been diagnosed yesterday and started on 50mg pred. As it w...

Dimelza

•9 years ago

10 Replies

Reduction in Prednislone dosage

I have been on Prednosolone for 5 yeas. Giant Cell Arteritis starting on 40 mg daily. In March of this year got down to 3mg daily, 3 weeks ago tried to reduce...

I have been on Prednosolone for 5 yeas. Giant Cell Arteritis starting on 40 mg d...

Warren43

•9 years ago

2 Replies

Alendronic acid

Oh dear!! On Friday went to see my GP as I have now been on pred. For two weeks and as you know it has taken most of my pain away. So he explained I should...

Oh dear!! On Friday went to see my GP as I have now been on pred. For two weeks ...

suracon

•9 years ago

11 Replies

Hospital admission

Hi , I'm new to this so please forgive me if I don't know all the proper titles . I'm writing this on behalf of my mum who has been admitted to hospital last...

Hi , I'm new to this so please forgive me if I don't know all the proper titles ...

Sarahj25h

•9 years ago

13 Replies

gca

Is thee a link between Renaud's disease and GCA trying to search and not finding much on it. But feel my fingers are getting worse and since it effects the...

Is thee a link between Renaud's disease and GCA trying to search and not finding...

cassey1879

•9 years ago

8 Replies

My history of PMR

Started with swollen knees. Referred to orthopaedic consultant. He suggested a rheumatologist Back to GP as now in wide spread pain Difficult to walk and...

Started with swollen knees. Referred to orthopaedic consultant. He suggested a ...

LJhome

•9 years ago

4 Replies

Headaches

Since being diagnosed with PMR 4 months ago I have been reducing my dosage of Prednisolone from 30mg to 15mg. Over the last month I have had daily headaches...

Since being diagnosed with PMR 4 months ago I have been reducing my dosage of Pr...

35bump

•9 years ago

10 Replies

your history of PMR, GCA

Has anyone thought of starting compiling individual list of the start of symptoms, details of the condition flaring up and other observations that started...

Has anyone thought of starting compiling individual list of the start of symptom...

suracon

•9 years ago

37 Replies

Zoledronate infusion

Hi folks, the last time l saw my Rheumatologist l asked for a dexa scan and given that l was diagnosed with osteopenia over a year ago l considered this a...

Hi folks, the last time l saw my Rheumatologist l asked for a dexa scan and give...

Classicmichael

•9 years ago

11 Replies

You are all right!

Hi friends, You guys are all correct!!! My doctor laughed at the idea of me coming off prednisone for the biopsy. She said, "there's no way that will ever...

Hi friends, You guys are all correct!!! My doctor laughed at the idea of me com...

Hidden

•9 years ago

4 Replies

Muscle spasms and cramp

Hi - I'm |Barbara. Last week diagnosed Giant Cell Arteritis and Palindromic Rheumatisim. Had the pain and all other symptoms for 2 years - GP baffled....

Hi - I'm |Barbara. Last week diagnosed Giant Cell Arteritis and Palindromic Rhe...

babssara

•9 years ago

17 Replies

Coming off Prednisone for surgery???

Hi all, I'm scheduled for a temporal biopsy on August 6 and the pre-op nurse told me I'd need to stop taking the Prednisone one week before the procedure. My...

Hi all, I'm scheduled for a temporal biopsy on August 6 and the pre-op nurse to...

Hidden

•9 years ago

9 Replies

60mg pred daily for 8 weeks and no relief

Tried again to reduce to 50 mg and all the symptoms came back after 5 days. Am starting to get more side effects and worried about even more to come....

Tried again to reduce to 50 mg and all the symptoms came back after 5 days. Am...

Hidden

•9 years ago

7 Replies

Just a big THANKS for your advise

Hi guys, We are back after 5,000 km drive for a holiday in the UK. I was thinking about the question I asked you all about going up in pred for the journey....

Hi guys, We are back after 5,000 km drive for a holiday in the UK. I was think...

Buenavista

•9 years ago

3 Replies

Freedom on wheels

As of yesterday we are the owners of a classic motor home and on 30th will take her out for the first time hospital appointments for both of us next week...

As of yesterday we are the owners of a classic motor home and on 30th will take...

olive2709

•9 years ago

6 Replies

Can you 'Step up to the Plate'

> Can you help others just like you, who are on this journey that nobody ever willingly undertakes. > > A Support Group for people with PMR and GCA is looking...

> Can you help others just like you, who are on this journey that nobody ever w...

jinasc

•9 years ago

2 Replies

There is a light at the end of the tunnel! Yeeh!

Hi everyone I had a recall to the rheumy this week (5 days notice) where I was given an injection into the left shoulder (to match the right from 2 weeks ago)....

Hi everyone I had a recall to the rheumy this week (5 days notice) where I was g...

violetsnowdrop

•9 years ago

5 Replies

Out of puff

Hi all, l had an appointment at the hospital this morning for a pulmonary review (five months ago was diognosed) I told the consultant that l have been feeling...

Hi all, l had an appointment at the hospital this morning for a pulmonary review...

Classicmichael

•9 years ago

15 Replies

7 months into ordeal where combo of PMR!GCA, vasculitis , neuropathy, and scleroderma symptoms occur

My symptoms began sometime in 2014 as I felt increasingly worse and thought I might have cancer again (had lymphoma in 2012 and six chemo cured). As I became...

My symptoms began sometime in 2014 as I felt increasingly worse and thought I mi...

Sha9rons

•9 years ago

4 Replies

Pred withdrawal pain or PMR?

I had successfully and gradually tapered down from 15 mg, then 12mg, then 10mg and 2 weeks ago began 9 mg as I am supposed to taper by 1 mg per month now. I...

I had successfully and gradually tapered down from 15 mg, then 12mg, then 10mg ...

magmapearl3

•9 years ago

19 Replies

Problem with balance?

Hi everyone, Has anyone experienced a problem with balance? I was diagnosed January 15. Even after 7 months my symptoms are changing. Some are just more...

Hi everyone, Has anyone experienced a problem with balance? I was diagnosed Janu...

PMRpixie

•9 years ago

20 Replies

Tapering

Hi everyone, 2am & as usual waiting for sweating to ease & sleepiness to descend before going to bed. These fluey feelings in my legs each evening & night have...

Hi everyone, 2am & as usual waiting for sweating to ease & sleepiness to descend...

PamOakes

•9 years ago

12 Replies

Newly diagnosed

Hi, My GP told me I "Probably" have PMR, it had no cure just a long term treatment with serious consequences he gave me this website address and told me to...

Hi, My GP told me I "Probably" have PMR, it had no cure just a long term treatme...

Hidden

•9 years ago

13 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2015

Kitten Power

now i have Trochanteric Bursitis

GCA

bone scan

GCA temple artritis ?

GCA

Bewildered, disappointed and arrgghh angry too, after Rheumy visit.

Newly diagnosed with GCA at 46

Reduction in Prednislone dosage

Alendronic acid

Hospital admission

gca

My history of PMR

Headaches

your history of PMR, GCA

Zoledronate infusion

You are all right!

Muscle spasms and cramp

Coming off Prednisone for surgery???

60mg pred daily for 8 weeks and no relief

Just a big THANKS for your advise

Freedom on wheels

Can you 'Step up to the Plate'

There is a light at the end of the tunnel! Yeeh!

Out of puff

7 months into ordeal where combo of PMR!GCA, vasculitis , neuropathy, and scleroderma symptoms occur

Pred withdrawal pain or PMR?

Problem with balance?

Tapering

Newly diagnosed

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