Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

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GCA Symptoms posts

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Advice welcomed

I need your wise advice if you don't mind. Last month I travelled to the Mayo Clinic for advice on how to proceed with my PMR, and presumed GCA. My blood work...

I need your wise advice if you don't mind. Last month I travelled to the Mayo Cl...

Bummed24

•10 days ago

10 Replies

4:47 AM~ Pred-head Grammy with GCA, Neuro-ophthalmologist update....' Morning...!

Technically, it is Thursday morning. I saw the NO on Tuesday morning, armed with questions and a serious approach. Despite the infusions and taking 60 mg per...

Technically, it is Thursday morning. I saw the NO on Tuesday morning, armed with...

Grammy80

•3 months ago

30 Replies

Just wondering how many have had negative temporal artery biopsy?

Hello, I just got my results from temporal artery biopsy for suspected GCA and it says that it was negative. I will still be going to the Cleveland Clinic...

Hello, I just got my results from temporal artery biopsy for suspected GCA an...

RiviS7

•3 months ago

23 Replies

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Neuro-opthalmologist's order for pulse steroid therapy for good eye~! GCA

This morning, I had a visual field exam by this doctor and exam. Sadly, I had a few small blind spots (new) in my right eye, my good eye. Upon exam, he could...

This morning, I had a visual field exam by this doctor and exam. Sadly, I had a...

Grammy80

•4 months ago

18 Replies

Well, I just took 60 mg of prednisone~Wednesday night in the States~

After five years, on June 27, I got to zero pred, though I am continuing Actemra. It was July 26 when I started having a headache, which over the next few days...

After five years, on June 27, I got to zero pred, though I am continuing Actemra...

Grammy80

•4 months ago

22 Replies

Eye strain or possible sign of GCA?

I have PMR, currently on 13mg. I have been having mild headaches and a sensitive scalp on left side. My vision is blurry due to cataract in left eye and I am...

I have PMR, currently on 13mg. I have been having mild headaches and a sensitive...

Fifebornlass

•5 months ago

9 Replies

Jekyll and Hide face

I have GCA (stroke in optic nerve in 2016, right eye). The right side of my face is now noticeably wrinklier than the other - am I right in supposing it...

I have GCA (stroke in optic nerve in 2016, right eye). The right side of my fa...

Hobbitses

•6 months ago

20 Replies

Results of our GCA and Tocilizumab Survey Published

Hi everyone, earlier this year we surveyed some GCA patients (members of the charity and on our forum here) who had previously been prescribed tocilizumab but...

Hi everyone, earlier this year we surveyed some GCA patients (members of the cha...

Fran_Benson

Partner•6 months ago

19 Replies

GCA and Ocular TIA (mini stroke)??

I was diagnosed with GCA four and a half years ago , am on my third relapse and am tapering (now 10mg prednisolone and weekly Actemra). At the onset I had...

I was diagnosed with GCA four and a half years ago , am on my third relapse an...

JulietPotion

•7 months ago

18 Replies

I’m having a GCA flare

hi, I started by taking 60 mg of Prednisolone March 2023 for GCA, I have take 1mg for the last 6 weeks and .50mg for the last 6 days, I am now having a flare,...

hi, I started by taking 60 mg of Prednisolone March 2023 for GCA, I have take 1m...

Grey7

•8 months ago

12 Replies

I'm being left in limbo

I'm 69 year old male who was in good health or so I thought. I'm having many vague symptoms for 4 months now. Headaches mostly mild that come and go. A few per...

I'm 69 year old male who was in good health or so I thought. I'm having many vag...

mantonnicola

•9 months ago

5 Replies

GCA and Vision update

As you all may recall, I was started in 60 mg. Prednisone in October. I am currently on 40 mg. I have now had 3 (weekly) injections of Actemra. I am still very...

As you all may recall, I was started in 60 mg. Prednisone in October. I am curre...

Lenore58

•1 year ago

15 Replies

Visual disturbance

Went to the cinema yesterday and had this type of visual disturbance (left eye only) about half way through the film. It lasted about 15 mn and then...

Went to the cinema yesterday and had this type of visual disturbance (left eye o...

Dochaz

•1 year ago

80 Replies

GCA - Mums current condition

We have finally made contact with both a Neulogogist - Dr. Ignaccio Garcia Bassterre and Rheumatologist Dr. Anna Nieto near Malaga. Dr. Bassterre through Dr....

We have finally made contact with both a Neulogogist - Dr. Ignaccio Garcia Basst...

DianaAdshead

•1 year ago

4 Replies

Emergency treatment for GCA blindness

I have just joined this forum, so excuse me as I am relatively new to this, My Mother has been dealing with GCA for over 5 years, and generally doing very...

I have just joined this forum, so excuse me as I am relatively new to this, My M...

DianaAdshead

•1 year ago

21 Replies

New Insights to GCA

This is from FB forum...interesting, sorry if it has already been posted......

Joseph14612

•1 year ago

14 Replies

GCA Study Article

Hi all, In all my research and scouring of the Internet, I found this article (below my update) which is quite informative and also recent. I don’t know if...

Hi all, In all my research and scouring of the Internet, I found this article (...

Lenore58

•1 year ago

14 Replies

My GCA Update

My Rheumy just called to say that my temporal artery biopsy came back positive. She put me on 60 mg. prednisone and submitted a request for approval of Actrema...

My Rheumy just called to say that my temporal artery biopsy came back positive. ...

Lenore58

•1 year ago

21 Replies

Possible GCA?

Hi, I’m at my local ER, because for the past 3 or 4 days I have had a chronic headache, severe neck ache and significant fatigue. In addition, my left...

Hi, I’m at my local ER, because for the past 3 or 4 days I have had a chronic h...

Lenore58

•1 year ago

18 Replies

Migraine or GCA?

About half an hour ago my eyesight began to behave as if I had been dazzled by a bright light. This is obscuring my eyesight a little. I have a dull prickling...

About half an hour ago my eyesight began to behave as if I had been dazzled by a...

SheffieldJane

•1 year ago

43 Replies

GCA with Lupus

I was first diagnosed with PMR first about 10 years ago. That was quickly followed by diagnosis of lupus. After complaining of headache in right temple area...

I was first diagnosed with PMR first about 10 years ago. That was quickly follo...

Gluten

•1 year ago

1 Reply

Follow up to my “what does GCA feel like”…….

Hi everyone, as usual, I’m awake! I asked the other day if people could describe their GCA. Reason being, I was lying down the other day trying to have a...

Hi everyone, as usual, I’m awake! I asked the other day if people could descri...

Bramble2000

•1 year ago

9 Replies

Can anyone describe….

Hi, can anyone describe what a GCA headache feels like and also scalp plain please? Thanks

Hi, can anyone describe what a GCA headache feels like and also scalp plain plea...

Bramble2000

•1 year ago

33 Replies

cool packs

I thought I’d share the fact that I have found great relief from the pain in my head from GCA using gel cool packs. This has helped me from having to use as...

I thought I’d share the fact that I have found great relief from the pain in my ...

Garden__lover

•1 year ago

2 Replies

CRP and ESR

I am in US and on Actemra 24 weeks and prednisone 12.5 and having right temple pain and right eye pain ...started at 60 mg prednisone in August-Sept 2022...

I am in US and on Actemra 24 weeks and prednisone 12.5 and having right temple p...

Joseph14612

•2 years ago

38 Replies

GCA relapse

I am currently having a bad GCA relapse and have put my steroids up from 3.5 to 7.5 mg. What always surprises me is that if I have a hot bath, one where I am...

I am currently having a bad GCA relapse and have put my steroids up from 3.5 to ...

christine2715

•2 years ago

16 Replies

GCA-Prednisolone withdrawal

I've posted recently about my PMR and GCA. Now I am going to run out of my prednisolone. Because my GP wanted me to reduce I did for about 10 days and then...

I've posted recently about my PMR and GCA. Now I am going to run out of my pred...

pomeranion

•2 years ago

17 Replies

Crohn's, GCA and PMR...want to have my cataracts removed

I am currently on prednisone, started in October at 60 mgm and now down to 20 mg. My eyesight is getting worse, and it sounds like I will be on prednisone for...

I am currently on prednisone, started in October at 60 mgm and now down to 20 mg...

Solstice85

•2 years ago

25 Replies

Causes of GCA

What causes GCA and why is it related to PMR? How does Prednisone work for GCA? I would like to hear from people who have developed this condition.

What causes GCA and why is it related to PMR? How does Prednisone work for GCA? ...

christi48

•2 years ago

4 Replies

GCA and sore lumpy tongue

I've managed to get to 5.5mg with the help of Actemra over the last 16 months, not as fast my my Rheumy would like but she accepts some folk are slower....

I've managed to get to 5.5mg with the help of Actemra over the last 16 months, ...

Happyexplorer

•2 years ago

16 Replies

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Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

GCA Symptoms posts

Advice welcomed

4:47 AM~ Pred-head Grammy with GCA, Neuro-ophthalmologist update....' Morning...!

Just wondering how many have had negative temporal artery biopsy?

Neuro-opthalmologist's order for pulse steroid therapy for good eye~! GCA

Well, I just took 60 mg of prednisone~Wednesday night in the States~

Eye strain or possible sign of GCA?

Jekyll and Hide face

Results of our GCA and Tocilizumab Survey Published

GCA and Ocular TIA (mini stroke)??

I’m having a GCA flare

I'm being left in limbo

GCA and Vision update

Visual disturbance

GCA - Mums current condition

Emergency treatment for GCA blindness

New Insights to GCA

GCA Study Article

My GCA Update

Possible GCA?

Migraine or GCA?

GCA with Lupus

Follow up to my “what does GCA feel like”…….

Can anyone describe….

cool packs

CRP and ESR

GCA relapse

GCA-Prednisolone withdrawal

Crohn's, GCA and PMR...want to have my cataracts removed

Causes of GCA

GCA and sore lumpy tongue

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