Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,323 members•40,434 posts

All posts for June 2021

Feeling bad after cardiac stress test.

I was doing well on 6mg Pred. On June 3 I went for a cardiac perfusion stress test with the resting perfusion test to be completed on June 4. On the morning of...

I was doing well on 6mg Pred. On June 3 I went for a cardiac perfusion stress te...

TINYdes

•3 years ago

21 Replies

Recently Diagnosed with PMR - Looking for some advice

Hi, I've recently been diagnosed with PMR at aged 51. I think it came on really slowly over the course of several months, firstly just in my neck and then...

Hi, I've recently been diagnosed with PMR at aged 51. I think it came on really...

Miss_fit

•3 years ago

18 Replies

PMR with normal blood work. Spacey on prednisone

I’m not a typical case. Blood work mostly normal. Pain in one arm and bilateral lower Back Hips and hamstrings. On 20mg prednisone. Very spacey and lethargic...

I’m not a typical case. Blood work mostly normal. Pain in one arm and bilateral ...

RHR76

•3 years ago

14 Replies

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So upset

I was all set to have my operation on my hip (reattachment of muscles) after it had been cancelled 3 weeks ago, I’ve just found out they forget to add me to...

I was all set to have my operation on my hip (reattachment of muscles) after it...

2013mayo

•3 years ago

6 Replies

Help!

I have just learned that tocilizumab has been extended to 2022, I understood that it was finishing this month. I have not been contacted for a home delivery,...

I have just learned that tocilizumab has been extended to 2022, I understood tha...

lindyloy

•3 years ago

20 Replies

Blood tests

How often do you have your CRP/ESR blood tests, and do you have to continue having them ongoing once you get to 0mg and possible remission or just when you get...

How often do you have your CRP/ESR blood tests, and do you have to continue havi...

Liby57

•3 years ago

43 Replies

Farewell

Frying pans and fires. No sooner was I pleased with my luck at getting off pred in a year - quick diagnosis and action by my GP - than I was on the way to a...

Frying pans and fires. No sooner was I pleased with my luck at getting off pred...

Montplo

•3 years ago

23 Replies

Mouth blisters- Pred side effect?

I'm on 7mg pred having reduced down over 2 years from 45mg for GCA then back up for PMR a year later. I'm aware of many effects that pred has on hair,...

I'm on 7mg pred having reduced down over 2 years from 45mg for GCA then back up ...

oscarandchloe

•3 years ago

5 Replies

Understanding origin of weakness

I am 65 and have had PMR since 48 , been up and down on prednisone for all that time. Have been either hyper or fatigued. I have never found a happy medium....

I am 65 and have had PMR since 48 , been up and down on prednisone for all that ...

Avadip12

•3 years ago

18 Replies

Autoimmune system and nerve pain

Hi there, I’m new to this forum only due to intense googling the last 13.5 weeks and stumbled across PMR + temporal arteritis. Apologies in advance for the...

Hi there, I’m new to this forum only due to intense googling the last 13.5 weeks...

Mill1234

•3 years ago

13 Replies

Coated versus uncoated Pred

I have finally managed to get some 2.5mg coated pred tablets to aid my tapering from 8mg to 7.5 mg, taking the 2.5 at bedtime and the 5mg first thing in the...

I have finally managed to get some 2.5mg coated pred tablets to aid my tapering ...

Zebedee44

•3 years ago

6 Replies

Perspiration

I’m on 2mg of pred now but find any exertion causes excessive perspiration on head and neck area. Could I be on too much pred as symptoms are well under...

I’m on 2mg of pred now but find any exertion causes excessive perspiration on he...

Pinkpepper

•3 years ago

10 Replies

Update and questions on pain / pred balance and possible RA symptoms

Morning all. I have been away on holiday in a yurt with no signal. Bliss. But was worried I would struggle with PMR. But happily didn’t too much at all. In...

Morning all. I have been away on holiday in a yurt with no signal. Bliss. But wa...

Grannyasbo

•3 years ago

4 Replies

Cataracts and PMR

Hello all ! This is my first post as I’ve only just found you after struggling with PMR for 4 years. Prednisolone has apparently contributed to cataracts in...

Hello all ! This is my first post as I’ve only just found you after struggling w...

Matma

•3 years ago

11 Replies

No PMR recurrence.

HI, good news. New SED test is now 29 and no symptoms of PMR. Injections for bi-lateral hip bursitis scheduled for July 7. Hurrah, after 2.5 months of...

HI, good news. New SED test is now 29 and no symptoms of PMR. Injections for b...

Robinre

•3 years ago

12 Replies

Too soon to taper

Hi all, 8 days ago I went from 14 to 13mg with no pain apart from neck which really is just annoying pain and worse in morning, is it soon to go down to 12mg...

Hi all, 8 days ago I went from 14 to 13mg with no pain apart from neck which rea...

Hidden

•3 years ago

6 Replies

BBC News - Smaller firms express anger at quarantine exemption plans for big businesshttps://www.bbc.co.uk/news/business-57644437

Well, fancy that, the virus is obviously that clever that it knows not to affect "important" business leaders

Well, fancy that, the virus is obviously that clever that it knows not to affect...

Bcol

•3 years ago

10 Replies

Newbie with possible GCA

Hello everyone, this is my first post here. I've read through a lot of your concerns and experiences and I feel kind of guilty in having to ask this here......

Hello everyone, this is my first post here. I've read through a lot of your conc...

insomniac_

•3 years ago

16 Replies

Long Covid, women and chronic pain article

Autoimmune conditions came up in this and it’s not too long a read....

SnazzyD

•3 years ago

3 Replies

Newcastle diet.

I thought I'd give you an update as I'm a week into this diet...

Andymurph

•3 years ago

24 Replies

Nodules on fingers I have RA and PMR

What causes nodules on fingers

Fatcat4

•3 years ago

5 Replies

Sore throat

Can sore throat be a flare symptom? I woke up this morning with a sore throat on one side. The last two months have been unrelenting stress. I’ve been at 11...

Can sore throat be a flare symptom? I woke up this morning with a sore throat o...

Mstiles

•3 years ago

5 Replies

wiped out after second pfizer jab

Ten days after my second pfizer jab i went dowhill rather quickly. Exhaustion, stiffness and pain in lower back, buttocks and groin. I have been getting...

Ten days after my second pfizer jab i went dowhill rather quickly. Exhaustion, ...

bBarnabus

•3 years ago

26 Replies

Rug pulled from under me

Hi all I haven't posted much as I have been given the opportunity to go private to have a hip replacement. The op was due to be done on 9th July but it looks...

Hi all I haven't posted much as I have been given the opportunity to go private ...

Hiibilly

•3 years ago

26 Replies

Questions remain

I don't know if this helps anyone. But I wanted to relay my story which is still undetermined. In late 2016 I was diagnosed with temporal arteritis, about two...

I don't know if this helps anyone. But I wanted to relay my story which is still...

TomSC

•3 years ago

6 Replies

Detached Retina and PMR

Hi, I'd like to ask if there's any connection between a detached retina and PMR or steroid treatment. I was diagnosed with Polymyalgia last year, am tapering...

Hi, I'd like to ask if there's any connection between a detached retina and PMR ...

Roryfederer

•3 years ago

9 Replies

What dosage of calcium supplement is recommended when on prednisolone?

I'm on 7.5mg of prednisolone. At my rheumatologists appointment today I advised him that I wouldn't be taking up his recommendation of Alendronic Acid despite...

I'm on 7.5mg of prednisolone. At my rheumatologists appointment today I advised...

Pr0jection

•3 years ago

42 Replies

A follow up from my previous post

I have found that increasing my pred dose to 15mg doesn’t seem to be making a lot of difference so I have been thinking about the headache and have come to a...

I have found that increasing my pred dose to 15mg doesn’t seem to be making a lo...

Lacelady

•3 years ago

8 Replies

Hi I’m wondering if any of you have swollen feet & ankles since contacting this awful condition & taking the equally awful Prednisolone.

I have had this condition since last August & even though the swelling goes down after being in bed at night, shortly after starting my day the swelling comes...

I have had this condition since last August & even though the swelling goes down...

Hidden

•3 years ago

14 Replies

Latest advances-diagnosis- treatment of Polymyalgia

Found this, which might be of interest....

Liby57

•3 years ago

4 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2021

Feeling bad after cardiac stress test.

Recently Diagnosed with PMR - Looking for some advice

PMR with normal blood work. Spacey on prednisone

So upset

Help!

Blood tests

Farewell

Mouth blisters- Pred side effect?

Understanding origin of weakness

Autoimmune system and nerve pain

Coated versus uncoated Pred

Perspiration

Update and questions on pain / pred balance and possible RA symptoms

Cataracts and PMR

No PMR recurrence.

Too soon to taper

BBC News - Smaller firms express anger at quarantine exemption plans for big businesshttps://www.bbc.co.uk/news/business-57644437

Newbie with possible GCA

Long Covid, women and chronic pain article

Newcastle diet.

Nodules on fingers I have RA and PMR

Sore throat

wiped out after second pfizer jab

Rug pulled from under me

Questions remain

Detached Retina and PMR

What dosage of calcium supplement is recommended when on prednisolone?

A follow up from my previous post

Hi I’m wondering if any of you have swollen feet & ankles since contacting this awful condition & taking the equally awful Prednisolone.

Latest advances-diagnosis- treatment of Polymyalgia

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