Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

22,223 members•42,106 posts

All posts for February 2025

PMR Flare-Up

I'm back for more help. My last post indicated all the issue I have been experiencing with muscle pain and weakness. I stopped my 3mg Pred which I have been...

I'm back for more help. My last post indicated all the issue I have been experi...

RaisinBran

•2 months ago

3 Replies

Exercise

I've not seen any posts on this so this may help. I see a physiotherapist every week and have done so for over 20 years. I also have a mini gym at home -...

I've not seen any posts on this so this may help. I see a physiotherapist every...

InTheMoors

•2 months ago

21 Replies

Covid and PMR

I have PMR and contracted Covid. Have any of you had Covid and taken Paxlovid? Were there side effects?

I have PMR and contracted Covid. Have any of you had Covid and taken Paxlovid? ...

Hopeful424

•2 months ago

12 Replies

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steroid injections

today had steroid injection and Tod advised to reduce 20mg to 15mg has anyone else had steroid injections

today had steroid injection and Tod advised to reduce 20mg to 15mg has anyone el...

Redcottage

•2 months ago

34 Replies

After several weeks on 20mg Pred pain and stiffness still there. Awaiting appt with Rheumy.

New to all this!

Tennisplayer82

•2 months ago

14 Replies

Can not get rid of my cough

I had a chest infection starting on January 24th.Had a course of antibiotics which helped and very slowly felt better.I still have a cough wakes me up at...

I had a chest infection starting on January 24th.Had a course of antibiotics whi...

Chocolate41

•2 months ago

21 Replies

Doctors are not gods

Hi, when I was a child my mother would take me to the doctor for every little thing; she was a worrier. I was taught that the doctor's word was law and we...

Hi, when I was a child my mother would take me to the doctor for every little th...

Groggrim

•2 months ago

27 Replies

Zoe article on inflammation and diet

I get emails from Zoe, the dietary research company. This article is very interesting. It covers the link between lifestyle, particularly diet, and...

I get emails from Zoe, the dietary research company. This article is very intere...

Broseley

•2 months ago

34 Replies

Back to Reality

Nothing like being brought back to normality, when across the other side of the world in warmth and sunshine you get an email from your surgery asking you to...

Nothing like being brought back to normality, when across the other side of the ...

Bcol

•2 months ago

3 Replies

West Norfolk support group

Hi, yes it's going to happen 😊....and we now have a change of venue.....1st meeting will be on 21st March 2025 at 2pm hosted by Brown's Kitchen. Browns is...

Hi, yes it's going to happen 😊....and we now have a change of venue.....1st mee...

purplesprouting

•2 months ago

10 Replies

Some advice please....

As I mentioned in my last post my ultrasound was negative for GCA and my biopsy is not scheduled until March 28th which would put me on Pred for 2 months,...

As I mentioned in my last post my ultrasound was negative for GCA and my biopsy...

spoof99

•2 months ago

12 Replies

Pred and Actemra question

At what dose of prednisone does one stay at when taking Actemra when things seem to have settled, but has not? GCA . It's one question that the Rheumy has not...

At what dose of prednisone does one stay at when taking Actemra when things seem...

ngchgc

•2 months ago

4 Replies

GP requested meds

I have several repeat prescriptions that I order through a pharmacy online. I have a repeat prescription for statins which I don’t take as regularly as I am...

I have several repeat prescriptions that I order through a pharmacy online. I ha...

Phoebenooby

•2 months ago

2 Replies

Cortisol Result

Hello PMR ExpertsI've had the result of my 9am cortisol blood test done this morning. It says value 545. Is this good and means I can maybe slowly come of...

Hello PMR ExpertsI've had the result of my 9am cortisol blood test done this mor...

diana1998

•2 months ago

16 Replies

Name of med

I’ve been trying to find the name of a Jed a few people referenced start with an L. Luflamide or something. Just got back from Johns Hopkins, nothing new...

I’ve been trying to find the name of a Jed a few people referenced start with an...

GivenUp24

•2 months ago

12 Replies

Confusion with different names: Polymyalgia rheumatica and PMR, Temporal Arteritis and Giant Cell Arteritis and GCA

I got a newsletter from the RNIB (a charity I support as I am severely visully impaired). In the latest edition there is a case study of a man who had...

I got a newsletter from the RNIB (a charity I support as I am severely visully i...

tangocharlie

•2 months ago

57 Replies

Feeling a lot of pain and somewhat "off"

I ended up at the doctor today after feeling stabbing pain in my hips and knees on Tuesday evening onwards. Wondering if it is a flare which rather a...

I ended up at the doctor today after feeling stabbing pain in my hips and knees ...

Pippah45

•2 months ago

15 Replies

Statins

Hi I was diagnosed with PMR in November 2023. Initial dose was15mg now after a few ups and downs and with the help of a very supportive doctor now down to...

Hi I was diagnosed with PMR in November 2023. Initial dose was15mg now after ...

Yorkgirl2

•2 months ago

61 Replies

Exercise for knees and hips in PMR and OA

I thought a lot of you might be interested to read these articles that popped up in my inbox...

I thought a lot of you might be interested to read these articles that popped up...

PMRpro

Ambassador•2 months ago

16 Replies

Watermelon Stomach

Hello. Recently you have been helping and supporting me through a very difficult time so I thought I would give you an update on the first of my tests for...

Hello. Recently you have been helping and supporting me through a very diffic...

Nightingales

•2 months ago

5 Replies

HRT to help symptoms

Hi all, this is a very long shot.. my PMR symptoms started following removal of my ovaries. There is some research suggesting that auto immune disorders may...

Hi all, this is a very long shot.. my PMR symptoms started following removal o...

Cashewnutty1962

•2 months ago

16 Replies

Takayasu Update

Hi all. Thought I’d update after my first infusion of cyclophosphamide to treat my Large Vessel Vasculitis (being referred to as Takayasu’s Arteritis as it...

Hi all. Thought I’d update after my first infusion of cyclophosphamide to treat ...

Rabbit090

•2 months ago

19 Replies

Scan showing no inflammation what now?

Hi I have been on steroids 5 years - down to 3.5 got pains in my head and buttocks terrible. Rheumy appointment Friday put me back on 40mg since then....

Hi I have been on steroids 5 years - down to 3.5 got pains in my head and buttoc...

Zappata

•2 months ago

3 Replies

Rheumatologist official diagnosis is diffuse connective tissue disease

I have posted a few things here in the past. Rheumatologist has consistently insisted that I don’t have PMR because I did not have elevated CRP/ESR and I’m too...

I have posted a few things here in the past. Rheumatologist has consistently ins...

clhclh

•2 months ago

10 Replies

Update today❤️

My granddaughter got her results today of her biopsy and there was no cancer.My daughter in law got her colon biopsy as well and her cancer hasn't spread.Now I...

My granddaughter got her results today of her biopsy and there was no cancer.My ...

Hunter134

•2 months ago

16 Replies

More volunteers needed - "Our future health" - long term general health research project endorsed by the NHS

I heard about this from Penny who runs the WedPm oom group and have just signed up. It's for general health not just PMR or GCA, building up a biobank of...

I heard about this from Penny who runs the WedPm oom group and have just signed ...

tangocharlie

•2 months ago

8 Replies

Battling GCA

I’m on Actemra weekly injection at this point. Im in remission at this time but feel aweful. Dizzy, woozy, no energy,. The only time I feel good is when I’m...

I’m on Actemra weekly injection at this point. Im in remission at this time but ...

LRevell

•2 months ago

15 Replies

VITAMIN K2 (MK7) vs. K1 article in Word Doc.

When I posted the link, it asked for our e-mail addresses. If this is not politically correct, I'm sure you will let me know. ;) Vitamin K1, found mainly in...

When I posted the link, it asked for our e-mail addresses. If this is not politi...

Missus835

•2 months ago

24 Replies

Diet to Eliminate Meds

A tried and true diet is the restrictive protocol lined out by Amy Myers’s MD. Her books are The Autoimmune Solution and The Autoimmune...

A tried and true diet is the restrictive protocol lined out by Amy Myers’s MD. H...

Ithurtstodance

•2 months ago

12 Replies

Opinions please.

Good afternoon, may I pick some of your brains please.Long story short for those who don't know me, put on Prednisolone last August after reporting heavy...

Good afternoon, may I pick some of your brains please.Long story short for those...

Groggrim

•2 months ago

10 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for February 2025

PMR Flare-Up

Exercise

Covid and PMR

steroid injections

After several weeks on 20mg Pred pain and stiffness still there. Awaiting appt with Rheumy.

Can not get rid of my cough

Doctors are not gods

Zoe article on inflammation and diet

Back to Reality

West Norfolk support group

Some advice please....

Pred and Actemra question

GP requested meds

Cortisol Result

Name of med

Confusion with different names: Polymyalgia rheumatica and PMR, Temporal Arteritis and Giant Cell Arteritis and GCA

Feeling a lot of pain and somewhat "off"

Statins

Exercise for knees and hips in PMR and OA

Watermelon Stomach

HRT to help symptoms

Takayasu Update

Scan showing no inflammation what now?

Rheumatologist official diagnosis is diffuse connective tissue disease

Update today❤️

More volunteers needed - "Our future health" - long term general health research project endorsed by the NHS

Battling GCA

VITAMIN K2 (MK7) vs. K1 article in Word Doc.

Diet to Eliminate Meds

Opinions please.

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A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

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