Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,845 members•41,443 posts

All posts for February 2025

Finally had my appointment with the Rheumatologist..

I had the appointment with a rheumatologist 2 weeks ago and left feeling somewhat apprehensive. She reviewed the prior blood tests ( which were only 2 weeks...

I had the appointment with a rheumatologist 2 weeks ago and left feeling somewha...

Gatorchief

•2 hours ago

3 Replies

post sick day crash!

Been on 5.5mgs for a couple of months as I didn’t want to reduce while on a 3 week holiday in NZ Last three days of holiday I got a recurrence of...

Been on 5.5mgs for a couple of months as I didn’t want to reduce while on a 3 we...

CathyMeg

•4 hours ago

6 Replies

Short Synacthen test

I have been referred to have an urgent short Synacthen test. 18 March 2pm. The endocrine nurse who phoned me to book the appointment wants me to not...

I have been referred to have an urgent short Synacthen test. 18 March 2pm. The e...

Wheelygood99

•4 hours ago

5 Replies

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Vitamins

Any tips for suitable vitamins. Constantly getting sinus and throat infections. Wait for them to clear up themselves with over the counter remedies but...

Any tips for suitable vitamins. Constantly getting sinus and throat infections....

Bothan

•5 hours ago

6 Replies

spike again!

I Have been coming down 1 mg every six weeks and two days ago I came down to 4 mg and today I am aching neck and hips. Do I go back to the protocol? Or since...

I Have been coming down 1 mg every six weeks and two days ago I came down to 4 m...

Elmadon

•6 hours ago

13 Replies

Polymyalgia rheumatica - an up-to-date review on diagnosis and management - Review paper reinforcing Prof Dasgupta's webinar last week

https://dx.doi.org/10.20517/2574-1209.2023.137 This was in my inbox this morning - a notification from a site that sends me publications about PMR and GCA, I...

https://dx.doi.org/10.20517/2574-1209.2023.137 This was in my inbox this morni...

PMRpro

Ambassador•6 hours ago

16 Replies

StorageStar

Hello, my first post. PMR started gradually last Spring, then hit me like a truck in late June, diagnosed and prescribed Pred in July after a couple of very...

Hello, my first post. PMR started gradually last Spring, then hit me like a tru...

StorageStar

•9 hours ago

3 Replies

Struggling with reaction to steroid reduction after 3yrs on prednisolone

I was diagnosed with PMR in November 2021 following a Moderna booster and was immediately put on prednisolone. After 3 years and several relapses with doses...

I was diagnosed with PMR in November 2021 following a Moderna booster and was im...

WalkingtheMoors

•19 hours ago

11 Replies

Repeat meds stopped pending review!

This is my first post, though I have been following this forum since I was diagnosed with PMR 4 years ago. Due to a complete lack of knowledge/understanding...

This is my first post, though I have been following this forum since I was diagn...

Surflady

•22 hours ago

17 Replies

Flare protocol

Someone mentioned a 'flare protocol' and I'd like to know what it is please. I am currently experiencing a recurrence of my symptoms and think it is a flare. I...

Someone mentioned a 'flare protocol' and I'd like to know what it is please. I a...

liverbird12

•23 hours ago

2 Replies

Good Day....Here is my story....

My Name is Gord, 68 year old male who decided to retire in January and enjoy life and 1 week later was in the ER with a temperature of 104 pain and fatigue in...

My Name is Gord, 68 year old male who decided to retire in January and enjoy lif...

spoof99

•1 day ago

12 Replies

Sick Day Rules

so, in bed with flu-like symptoms (temp 38.8), nasty cough, feeling pretty rough. I have just read the sick day rules on FAQ. Just wondering why it suggests...

so, in bed with flu-like symptoms (temp 38.8), nasty cough, feeling pretty rough...

Tappo

•1 day ago

15 Replies

Feeling tired

Just started back on 50mg for two days. I was on 40mg for a week. For some reason I feel more tired. Is this what happens on a higher dose? That’s ok if it...

Just started back on 50mg for two days. I was on 40mg for a week. For some reas...

Clarinet1234

•1 day ago

19 Replies

GCA NEWBIE

GCA Newbie and my first post. Diagnosed 4 October 2024. Classic text book journey so far. Hitting my first major bump in the road and you guessed it, tapering....

GCA Newbie and my first post. Diagnosed 4 October 2024. Classic text book journe...

Raisinwheat

•1 day ago

15 Replies

Pulled muscle

Hi - I rolled over in bed pulling the quilt over me and pulled a shoulder muscle. After a week I was in excruciating referred pain down my arm and into my...

Hi - I rolled over in bed pulling the quilt over me and pulled a shoulder muscle...

Potemkin

•1 day ago

8 Replies

GCA urgent rheumatologist app coming up

Hello ladies I've got my appointment to see what the rheumatologist thinks ,if it's gca . I've got normal inflammatory markers and after 7 days the...

Hello ladies I've got my appointment to see what the rheumatologist thinks ,if ...

Dee101

•2 days ago

12 Replies

Alendronic acid 70mg

I’ve just been presented Alendronic Acid 70mg and having read the guide on taking it I’m not keen. I’m taking Prednisolone, only 1mg every other day, for PMR...

I’ve just been presented Alendronic Acid 70mg and having read the guide on takin...

Woolyhead

•2 days ago

8 Replies

Cataracts?

Any one been diagnosed with prednisone induced cataracts? Went to the eye dr. 4 months ago and they saw the start of cataracts but said they would keep a...

Any one been diagnosed with prednisone induced cataracts? Went to the eye dr. 4...

Khof123

•2 days ago

9 Replies

hip pain

That post should have title Hip Pain!

random901

•2 days ago

3 Replies

hip pain

I have an excruciatingly sharp pain deep in my left hip/buttock (RHS none too good either). Bending down, walking, getting up from chair or bed a challenge....

I have an excruciatingly sharp pain deep in my left hip/buttock (RHS none too go...

random901

•2 days ago

7 Replies

Fall and possible flare up

A week ago I had a bad fall while out walking my dog on a mountain path. Full impact on my left side - shoulder. Attended Minor A&E and no fracture but it's an...

A week ago I had a bad fall while out walking my dog on a mountain path. Full im...

Glynawel

•2 days ago

2 Replies

Prednisone , endoscopy and colonoscopy.

Good morning. Some of you may remember me and how the grinch has been following me around for a while. You were all so caring and wonderful when my daughter...

Good morning. Some of you may remember me and how the grinch has been following ...

Nightingales

•2 days ago

22 Replies

What a difference a doctor makes

Good morning I was contacted this morning by my registered GP who I have been with for many years. He gave me some advice which made sense and echoed things I...

Good morning I was contacted this morning by my registered GP who I have been w...

Groggrim

•2 days ago

21 Replies

Lyme or PMR?

Lyme disease 6 years ago. Treated with 3 weeks doxycycline. Took several years to feel better, fatigue and low mood bad.Now after a very stressful year have...

Lyme disease 6 years ago. Treated with 3 weeks doxycycline. Took several years t...

Tennisplayer82

•2 days ago

6 Replies

reduced steroid

hi not posted for a while, I’ve got awful pain in my arms/ shoulders and my hands are so painful. I have tried to get Intouch with my Rheumatologist but no...

hi not posted for a while, I’ve got awful pain in my arms/ shoulders and my hand...

Shaza123

•3 days ago

9 Replies

Update one GCA/PMR

So finally had a referral from ophthalmologist to Rheumatologist on 31st December as ‘urgent’ apparently within 4 weeks -still waiting. Sight is now badly...

So finally had a referral from ophthalmologist to Rheumatologist on 31st Decembe...

Nonameme

•3 days ago

4 Replies

Another disappointment..😥

Thought I was on the right track, besides rapid hair loss. I was at 12.5 with a CRP of 2, reduced to 10. Now my CRP is 31.3 second highest reading since...

Thought I was on the right track, besides rapid hair loss. I was at 12.5 with a ...

GivenUp24

•3 days ago

23 Replies

Repeat Colour Doppler Ultrasound

Hello there, I have just had a call from the Vascular Unit in Coventry who want to do an ultrasound test (I had brain MRI, Blood Vessel MRI and Colour...

Hello there, I have just had a call from the Vascular Unit in Coventry who want...

GingerPoodle1

•3 days ago

2 Replies

Rheumatologist thinks I might not have PMR

I have recently been diagnosed with a recurrence of breast cancer and due to have a mastectomy within the next few weeks. I consulted a GP as to what I should...

I have recently been diagnosed with a recurrence of breast cancer and due to hav...

Smithson

•3 days ago

28 Replies

private Consultation

Good afternoon I just thought I would share this mornings experience as it may be helpful to others. I had a private consultation with Dr Andrew Barr at the...

Good afternoon I just thought I would share this mornings experience as it may ...

5goFlotilla

•3 days ago

18 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for February 2025

Finally had my appointment with the Rheumatologist..

post sick day crash!

Short Synacthen test

Vitamins

spike again!

Polymyalgia rheumatica - an up-to-date review on diagnosis and management - Review paper reinforcing Prof Dasgupta's webinar last week

StorageStar

Struggling with reaction to steroid reduction after 3yrs on prednisolone

Repeat meds stopped pending review!

Flare protocol

Good Day....Here is my story....

Sick Day Rules

Feeling tired

GCA NEWBIE

Pulled muscle

GCA urgent rheumatologist app coming up

Alendronic acid 70mg

Cataracts?

hip pain

hip pain

Fall and possible flare up

Prednisone , endoscopy and colonoscopy.

What a difference a doctor makes

Lyme or PMR?

reduced steroid

Update one GCA/PMR

Another disappointment..😥

Repeat Colour Doppler Ultrasound

Rheumatologist thinks I might not have PMR

private Consultation

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