Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,271 members • 37,954 posts

All posts for November 2020

Exercise

At what point did you return to some form of exercise? I hear how good it is for you with PMR. I was diagnosed with PMR/GCA? Back in early September.. Although...

At what point did you return to some form of exercise? I hear how good it is for...

Bro-

•3 years ago

33 Replies

How long should I stay on initial dose of a Pred for PMR

Hi all I’m 67 and was diagnosed with PMR early October this year. I’m taking 15mgs of Pred daily as the initial dose. I feel good just a little residual...

Hi all I’m 67 and was diagnosed with PMR early October this year. I’m taking 15...

Feelingpoorly

•3 years ago

20 Replies

Dexa scan results / Osteopenia

Hello all, I hope everyone is getting through these difficult weeks. Just wanted to share my dexa scan results; Spine normal, Total hip normal, Femoral neck...

Hello all, I hope everyone is getting through these difficult weeks. Just wante...

Hidden

•3 years ago

30 Replies

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Neurologist

Hi everyone. Well today I 'phoned the appt dept. to see how much longer I'll have to wait to see a neurologist regarding my numb toes. Could be another 12...

Hi everyone. Well today I 'phoned the appt dept. to see how much longer I'll ha...

Hidden

•3 years ago

1 Reply

Flare? or adrenals complaining, any advice please

2 weeks ago I began tapering from 5 via 4.75/5/5/4.75/5/4.75/4.75 etc then got suddenly floored by horrible fatigue, felt quite ill. I barely had the energy to...

2 weeks ago I began tapering from 5 via 4.75/5/5/4.75/5/4.75/4.75 etc then got s...

123mossie

•3 years ago

22 Replies

Prolia

Hi friends. I have been prescribed Prolia by a bone specialist and thought I would seek your opinions on the matter. Here's what's happening: I have had PMR...

Hi friends. I have been prescribed Prolia by a bone specialist and thought I wou...

BoaterAnnie

•3 years ago

8 Replies

Another flare, this time post-surgery

I was diagnosed April 2019. I've had 2 flares in that time, but managed to get down to 11mg, and was hoping to stay there another week before another Dead Slow...

I was diagnosed April 2019. I've had 2 flares in that time, but managed to get d...

HelenDaisy

•3 years ago

10 Replies

Could do with advise

Are you always in some kind of pain with pmr and should you cut pred if you are in pain my gp keep saying reduce help.

Are you always in some kind of pain with pmr and should you cut pred if you are ...

Harrywogan

•3 years ago

9 Replies

Your valuable advice please

After 2 years I'm on 2mg from 15. Feeling good almost as if I could stop pred now. Can anyone advise how to make the next reduction? 2 to 1.5 is 25%. 2 one...

After 2 years I'm on 2mg from 15. Feeling good almost as if I could stop pred no...

Legsy0714

•3 years ago

41 Replies

PMR Seronegative Polyarthritis

PMR - Seronegative Arthritis - Gout attacks and three other "nasties". HAPPY FIRST OF ADVENT EVERYONE.💥❄️💐💃👵🏻 Don't think I'll send this one to my...

PMR - Seronegative Arthritis - Gout attacks and three other "nasties". HAPPY...

Constance13

•3 years ago

70 Replies

Ankle weakness and pain on the stairs,

I was disturbed last night by an annoying sense of weakness in my lower right leg, almost like restless legs. Today my ankle gives me sharp pain as I come down...

I was disturbed last night by an annoying sense of weakness in my lower right le...

SheffieldJane

•3 years ago

65 Replies

Problems with balance

Will my balance ever improve if PMR confirmed and I am on meds?

merril

•3 years ago

12 Replies

Corticosteroids & Hypertension

I was diagnosed with hypertension for many years before getting a further diagnosis of GCA just recently. Am currently taking 20mg of prednisone, which is...

I was diagnosed with hypertension for many years before getting a further diagno...

winfong

•3 years ago

16 Replies

Urine infection

I am diagnosed with LVV/PMR since taking Pred in July I have had 3 urine infections, is this a coincidence or is there a connection? I am going back to g.p for...

I am diagnosed with LVV/PMR since taking Pred in July I have had 3 urine infecti...

Bibberty

•3 years ago

7 Replies

How much vitamin D3 Should we be taking?

I’m currently taking 2200 IU daily of vitamin D3. Wondering if this is the correct dose?

I’m currently taking 2200 IU daily of vitamin D3. Wondering if this is the corre...

Bobbikins

•3 years ago

7 Replies

Can you take Berberine with Prednisolone?

Does anybody know of any drug interactions between prednisolone and the herbal supplement Berberine? I need some medication are affected by this supplement,...

Does anybody know of any drug interactions between prednisolone and the herbal s...

Bobbikins

•3 years ago

2 Replies

Calcium deficiency?

On prednisolone for 9 months - does anyone know if it’s PMR or the pred which might cause calcium deficiency? About 3 months ago a bit of a molar broke off and...

On prednisolone for 9 months - does anyone know if it’s PMR or the pred which mi...

AnniesRyder5

•3 years ago

16 Replies

Struggling with Pred Reduction

Now 2.5 years into PMR. Can’t get below 10mg..have tried with DS method but 9.5mg makes the fatigue, and pain really bad. 10mg gives a ‘relatively’ normal...

Now 2.5 years into PMR. Can’t get below 10mg..have tried with DS method but 9.5...

Pmrmolly2018

•3 years ago

16 Replies

Could this be GCA?

Does anyone have ringing in their ears on waking? I think I hear bells although that fades soon after. As a newbie with as yet unconfirmed PMR I hope it...

Does anyone have ringing in their ears on waking? I think I hear bells although...

merril

•3 years ago

1 Reply

Lefludomide and mycophenolate for GCA treatment

Is there anybody on prednisone and lefludomide and mycophenolate?

Manihiki

•3 years ago

1 Reply

Will I ever be off pred with GCA?

Quick question. I have been told by my rheumatologist , that I will be on Actemra and 5mg pred for the rest of my life. I visited an eye doc for some...

Quick question. I have been told by my rheumatologist , that I will be on Actem...

luv2read

•3 years ago

22 Replies

Can you have Polymyalgia with normal CRP and ESR?

My GP says my bilateral shoulder and hip pain cannot be polymyalgia because my blood tests are normal. My pain started in the last 6 weeks. Worse in the...

My GP says my bilateral shoulder and hip pain cannot be polymyalgia because my b...

Jane424

•3 years ago

14 Replies

DOUBLE CONDTIONS TREATED WITHPRED

Is anyone on this site who has PMR and ITP a conditon , autoimmune condition that lower platelets that control bleeding in our body can cause one to bleed....

Is anyone on this site who has PMR and ITP a conditon , autoimmune condition tha...

sandydame

•3 years ago

1 Reply

Today is American Thanksgiving Day

Among the things I am thankful for in 2020 are all the folks here at PMR/GCAuk. You've all been so helpful and supportive, and above all, kind, from my very...

Among the things I am thankful for in 2020 are all the folks here at PMR/GCAuk. ...

GOOD_GRIEF

•3 years ago

7 Replies

Summary of COVID vaccine types

Thought the above chart might clarify things for those of us who are confused 😊

Thought the above chart might clarify things for those of us who are confused 😊...

Rache

•3 years ago

5 Replies

Feeling low having to put prednisolone back up

I everybody iam here because I'm a newbie with having PMR.

Harrywogan

•3 years ago

6 Replies

Methotrexate v. Leflunomide

I have been on Pred (currently at 5mg) plus Methotrexate since May this year. I stopped the Metho two weeks ago to see if it was the medication causing me so...

I have been on Pred (currently at 5mg) plus Methotrexate since May this year. I ...

Francesbarbara

•3 years ago

4 Replies

Jaw pain

Woke up this morning with jaw pain on left side, only hurts when I chew & swallow. Have had PMR since May 2018. Reduced to 8 mg of pred. yesterday, could...

Woke up this morning with jaw pain on left side, only hurts when I chew & swall...

Summerrental

•3 years ago

9 Replies

PMR Newbie

Hi all, Recently diagnosed with PMR. I am 52 and was feeling rough for a few weeks but put it down to going back to work after the lockdown, Just really tired...

Hi all, Recently diagnosed with PMR. I am 52 and was feeling rough for a few wee...

blue388

•3 years ago

15 Replies

Hair loss

I wrote a few months ago regarding my hair loss due to possibly steroids or Leflunamide or both. I am now pleased to say that i have now reduced the...

I wrote a few months ago regarding my hair loss due to possibly steroids or Lefl...

Creamtea

•3 years ago

40 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2020

Exercise

How long should I stay on initial dose of a Pred for PMR

Dexa scan results / Osteopenia

Neurologist

Flare? or adrenals complaining, any advice please

Prolia

Another flare, this time post-surgery

Could do with advise

Your valuable advice please

PMR Seronegative Polyarthritis

Ankle weakness and pain on the stairs,

Problems with balance

Corticosteroids & Hypertension

Urine infection

How much vitamin D3 Should we be taking?

Can you take Berberine with Prednisolone?

Calcium deficiency?

Struggling with Pred Reduction

Could this be GCA?

Lefludomide and mycophenolate for GCA treatment

Will I ever be off pred with GCA?

Can you have Polymyalgia with normal CRP and ESR?

DOUBLE CONDTIONS TREATED WITHPRED

Today is American Thanksgiving Day

Summary of COVID vaccine types

Feeling low having to put prednisolone back up

Methotrexate v. Leflunomide

Jaw pain

PMR Newbie

Hair loss

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