Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,316 members • 38,052 posts

All posts for April 2023

5 Year Anniversary of PMR/pred

Today marks 5 years since I was diagnosed and started pred. It was a game-changing day after 5.5 months of undiagnosed pain and stiffnesses that started in my...

Today marks 5 years since I was diagnosed and started pred. It was a game-changi...

PMRCanada

•1 year ago

6 Replies

Blue badge

Applied 20;weeks ago ,finally herd from them asking for more details and proof of My condition.I have atrial fibrillation pmr asthma etc. some days not so...

Applied 20;weeks ago ,finally herd from them asking for more details and proof o...

Ronzy

•1 year ago

18 Replies

Tocilizumab

Hi. Has anyone had Tocilizumab injections for pmr? I've been looking at recent research which seems to suggest favourable outcomes for pmr sufferers who have...

Hi. Has anyone had Tocilizumab injections for pmr? I've been looking at recent r...

BlueMozart

•1 year ago

11 Replies

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Tapering much harder the second time around.

Been on pred since Nov 2015 for PMR. Few issues with flares and reached 4.25mg in 2021 when to ER for hypoxemia/ asthma exacerbationafter flu shot 2 weeks...

Been on pred since Nov 2015 for PMR. Few issues with flares and reached 4.25mg i...

Karenjaninaz

•1 year ago

4 Replies

covid booster - adverse reaction?

Hi - first of all a big thank you to all contributors and the admin on this site. The advice given has got me through some challenging times, particularly when...

Hi - first of all a big thank you to all contributors and the admin on this site...

Mandyq

•1 year ago

23 Replies

Question About "Normal" vs Very Low ESR/CRP

Hi. I am wondering if anyone has been diagnosed with GCA with truly low ESR/CRP numbers? (tested three times over four months, ESR values 2, 2, 2 and CRP 1.0,...

Hi. I am wondering if anyone has been diagnosed with GCA with truly low ESR/CRP ...

justagrl

•1 year ago

20 Replies

methotrexate and Covid booster

I’ve just had my Covid booster, when I asked the nurse if I should pause my methotrexate for 2 weeks she said, no, definitely not. She checked with the GP...

I’ve just had my Covid booster, when I asked the nurse if I should pause my meth...

Avon14

•1 year ago

23 Replies

Sorry, that should be 1 not! !

My eyesight!!

Omanain

•1 year ago

2 Replies

Splitting !mg Coated Pred

Does anyone know if half a coated pred is the same as half an uncoated pred or should they not be split for another reason? Thanks

Does anyone know if half a coated pred is the same as half an uncoated pred or s...

Omanain

•1 year ago

7 Replies

Covid booster prednisolone dose criterion - NHS

Update to post below: Thanks firstly to all who responded illustrating the inconsistency in Covid booster policy. Anyhow, after being refused a booster by my...

Update to post below: Thanks firstly to all who responded illustrating the inco...

Bungalows

•1 year ago

14 Replies

3mg and panic feelings

Good morning all a wee update on how my reduction is going. I have been on 3mg for last 6 weeks. On the advice here i waiting to make sure it was not a flare...

Good morning all a wee update on how my reduction is going. I have been on 3mg f...

Maggie1313

•1 year ago

34 Replies

Bruises, Ankles Swelling, ETC.

Never a dull moment. Diagnosed with PMR since Jan '22 and now at 32 mg. Pred after that GCA scare in Jan. 2 3. I am 73, but the bruising has just begun. Nasty...

Never a dull moment. Diagnosed with PMR since Jan '22 and now at 32 mg. Pred aft...

Missus835

•1 year ago

7 Replies

Increased Methotrexate causing bloody urine/stools.

This time next week we'll be waiting to board the plane! Yesterday I notice what I think is frank blood in my urine and stools. Today it's still there and...

This time next week we'll be waiting to board the plane! Yesterday I notice wha...

IdasMum

•1 year ago

4 Replies

Query - what dose for flare

Help please! I have been tapering from 7.5mg Pred since January, following Dorset Lady's slow taper plan. This past week I reached 6.25mg every day and...

Help please! I have been tapering from 7.5mg Pred since January, following Dors...

Abykarma

•1 year ago

6 Replies

Stuck !

HI, needing help please , i am now down from 8mgs of pred to 7,5, i have tried to get to 7 ,twice now . Every time i reduce i think im there but as i get to...

HI, needing help please , i am now down from 8mgs of pred to 7,5, i have tried t...

Viv54

•1 year ago

15 Replies

Holiday Vaccinations

Morning all Looking for some advice on holiday vaccinations for Caribbean. I've seen the recommended list is yellow fever and rabies etc. Just wondering if...

Morning all Looking for some advice on holiday vaccinations for Caribbean. I've ...

Millipede01

•1 year ago

10 Replies

Association with cancer

I have just read a comment from someone on another forum that cancer is more likely to occur in people with PMR, particularly after 6 months of diagnosis (not...

I have just read a comment from someone on another forum that cancer is more lik...

Karendeena

•1 year ago

8 Replies

Reduce or not ? Thoughts please

I'm reducing 0.5mg every calendar month which seems to be OK. I'm due to go from 5 to 4.5 on Monday . I've had shocking fatigue this week, and I'm not sure...

I'm reducing 0.5mg every calendar month which seems to be OK. I'm due to go fro...

Jigsawlass

•1 year ago

5 Replies

Now I have diverticular disease to go with the PMR, Thyroid, Reynauds and EM

Hi all - me again, it seems that I now have diverticular disease to add to my collection, finally got a GP appt friday evenong. This is apparently another...

Hi all - me again, it seems that I now have diverticular disease to add to my co...

MDT1

•1 year ago

8 Replies

acupuncture?

Hello Folks Someone I know has recommended I try acupuncture for my PMR. Has anyone had any experience with this? I have my doubts but willing to give it a...

Hello Folks Someone I know has recommended I try acupuncture for my PMR. Has an...

Southmead

•1 year ago

30 Replies

Prednisolone and diarrhoea

Been on steroids for suspected GCA not quite three weeks now - went down from 50 mg to 40mg after first week. Not generally feeling too bad though not as...

Been on steroids for suspected GCA not quite three weeks now - went down from 50...

Menno1525

•1 year ago

19 Replies

Air travel for the first time in over 3 years - stress and adrenals

So I haven't seen my elderly mother in person in 3.5 years. Before covid, we would see each other at least every few months, if not more often. When I last...

So I haven't seen my elderly mother in person in 3.5 years. Before covid, we wou...

LucilleG

•1 year ago

12 Replies

Update - prednisone taper and Covid Booster

In the past few weeks, while finishing my DSNS taper from 5 to 4.5 mg, I've noticed some of the original PMR symptoms I had - painful neck and a pulsing in my...

In the past few weeks, while finishing my DSNS taper from 5 to 4.5 mg, I've noti...

LucilleG

•1 year ago

2 Replies

split dose

I’m considering split dosing to see if that eases the morning pain but wondered if I need to take Omeprozole before the evening dose as well as the morning...

I’m considering split dosing to see if that eases the morning pain but wondered ...

Toffeeboyblue

•1 year ago

3 Replies

Contradicting themselves on the same site

You could expect a dose of prednisone to stay in your system for 16.5 to 22 hours. The elimination half life of prednisone is around 3 to 4 hours. This is the...

You could expect a dose of prednisone to stay in your system for 16.5 to 22 hour...

Mayadill

•1 year ago

3 Replies

should I give sick day rules whilst waiting help?

Mum has dementia so can’t really give me accurate info. She’s been less good on her feet this past week. I’ve been contemplating whether she may have...

Mum has dementia so can’t really give me accurate info. She’s been less good ...

RT18

•1 year ago

19 Replies

Flare

Hi, I’m currently trying to control a flare before I go on holiday in 10days. I was on 7.5, upped to 12, the pains are gradually getting worse day by day, do...

Hi, I’m currently trying to control a flare before I go on holiday in 10days. ...

Carathedog

•1 year ago

12 Replies

Synacthen Test Results and Endocrinologist’s Advice.

I had a Synacthen Test last week and got the results yesterday. I am on 5 mgs of Pred and have been for a long time. I fully expected to fail the Adrenal...

I had a Synacthen Test last week and got the results yesterday. I am on 5 mgs of...

SheffieldJane

•1 year ago

106 Replies

More advice please!

My wonderful friends. Just to re -cap. Bad Flare on 3mg, after four happy months on 3.5 mg Then two weeks on 8mg, one week on 6 mg —- all well. Then...

My wonderful friends. Just to re -cap. Bad Flare on 3mg, after four happy mont...

Smokygirl

•1 year ago

9 Replies

Is Avascular Necrosis common in PMR/GCA patients?

I'm just newly aware of this condition but since PMR/GCA affects blood vessels, it seems like a real possibility...

I'm just newly aware of this condition but since PMR/GCA affects blood vessels, ...

LIVEORDIEHEREIAM

•1 year ago

7 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for April 2023

5 Year Anniversary of PMR/pred

Blue badge

Tocilizumab

Tapering much harder the second time around.

covid booster - adverse reaction?

Question About "Normal" vs Very Low ESR/CRP

methotrexate and Covid booster

Sorry, that should be 1 not! !

Splitting !mg Coated Pred

Covid booster prednisolone dose criterion - NHS

3mg and panic feelings

Bruises, Ankles Swelling, ETC.

Increased Methotrexate causing bloody urine/stools.

Query - what dose for flare

Stuck !

Holiday Vaccinations

Association with cancer

Reduce or not ? Thoughts please

Now I have diverticular disease to go with the PMR, Thyroid, Reynauds and EM

acupuncture?

Prednisolone and diarrhoea

Air travel for the first time in over 3 years - stress and adrenals

Update - prednisone taper and Covid Booster

split dose

Contradicting themselves on the same site

should I give sick day rules whilst waiting help?

Flare

Synacthen Test Results and Endocrinologist’s Advice.

More advice please!

Is Avascular Necrosis common in PMR/GCA patients?

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