Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,319 members • 38,053 posts

All posts for January 2024

My A1c is now 5.7 . . . in the very beginning stages of Pre-diabetic.

. . . Has anyone on here had any success with lowering thier HA1c by eating only 50 grams of carbs per day? Do I need to go even lower than that?

. . . Has anyone on here had any success with lowering thier HA1c by eating on...

T108

•3 months ago

15 Replies

wrist and hand pain

I’ve had PMR for over seven years… I’ve managed it quite well with a few flares along the way.,I did get down to three and half m.g for a while but now I am...

I’ve had PMR for over seven years… I’ve managed it quite well with a few flares ...

Jeanlindenburn

•3 months ago

20 Replies

News article on Irish PMR/GCA doctor

I received a news article in the Irish Independent on the Sligo Dr. Sharon Cowley who is a Rathlee native, runs a rapid access clinic for PMR/GCA patients seen...

I received a news article in the Irish Independent on the Sligo Dr. Sharon Cowle...

pegpowell

•3 months ago

6 Replies

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GCA Temporal/ Arteritis

I’ve had GCA for a little over a year now. I’m on Actemra injection only. It makes me feel a little woozy! Has anyone else had this feeling?

I’ve had GCA for a little over a year now. I’m on Actemra injection only. It mak...

LRevell

•3 months ago

4 Replies

Bitter Taste In Mouth

I have had a persistent bitter taste in my mouth since the end of December and the only respite that I get from it is either when I am sleeping, eating or...

I have had a persistent bitter taste in my mouth since the end of December and t...

LizMitchell

•3 months ago

39 Replies

prednisone and side effects/ dosage related

hi I am presently on 8 mg for PMR. I’ve been on 8 mg for a couple of weeks. I’m wondering do people have food cravings and weight gain issues on 8 mg. I find...

hi I am presently on 8 mg for PMR. I’ve been on 8 mg for a couple of weeks. I’m...

Bikergirl68

•3 months ago

13 Replies

GCA Ear pressure and stiff neck

I have GCA/PMR for the second time. For the past 6 weeks I’ve been taking 3mg prednisone and Actemra injections every other week. Since then, I have had ear...

I have GCA/PMR for the second time. For the past 6 weeks I’ve been taking 3mg p...

Pamk1949

•3 months ago

11 Replies

Moon Face

Guys is it correct the weight starts to come off when I drop to below 10mg Ijust want my face and body back x

Guys is it correct the weight starts to come off when I drop to below 10mg Ijust...

Northernnugget

•3 months ago

75 Replies

So glad to find this group today

And also very grateful to all the folks who are actively posting their experiences, and sharing knowledge.. Today I was Googling to find out if exercise,...

And also very grateful to all the folks who are actively posting their experienc...

Bahba

•3 months ago

2 Replies

Mayb silly question

Have to ask all you lovely suffers of PMR, do you still reduce pred if you are in pain with other problems,for me it's my leg soft tissue damage, spoke to my...

Have to ask all you lovely suffers of PMR, do you still reduce pred if you are i...

Harrywogan

•3 months ago

13 Replies

PMR AND ANASTROZOLE

I had an operation for breast cancer (Mastectomy with reconstruction) in mid December. Thankfully I don’t need any more treatment other than anti oestrogen...

I had an operation for breast cancer (Mastectomy with reconstruction) in mid Dec...

GwenTheHen16

•3 months ago

17 Replies

Latest Thoughts on My High Cortisol Levels

Morning all, apologies for my patchy posting, what with planning and actually moving over the next few weeks, organising a music festival and coping with...

Morning all, apologies for my patchy posting, what with planning and actually mo...

Bcol

•3 months ago

5 Replies

Aching joints

Thank you so much for all the advice. Much appreciated. Think it is time for me to stop rushing around. Have been helping daughter to move house. So may have...

Thank you so much for all the advice. Much appreciated. Think it is time for me ...

lilydunn

•3 months ago

6 Replies

Leflunomide

I was diagnosed with PMR in 2019 …started on 15 mgs of prednisone with great effect . I have been tapering down since .. getting down to 3/4 mgs over the years...

I was diagnosed with PMR in 2019 …started on 15 mgs of prednisone with great eff...

Magictherabbit

•3 months ago

12 Replies

normality after PMR diagnosis

I was diagnosed with above at Christmas and am now on 20mg steroids a day and trying to get back to doing all the activities I usually enjoy like golf, aqua...

I was diagnosed with above at Christmas and am now on 20mg steroids a day and tr...

Saffronandblue

•3 months ago

21 Replies

Digestion/Bowels

Hi Helpful Friends, I’ve been doing quite well; down to 15 mg. pred. and eyesight is no longer doubled! Hurray for that! For over a week now I have had very...

Hi Helpful Friends, I’ve been doing quite well; down to 15 mg. pred. and eyesig...

Lenore58

•3 months ago

24 Replies

Flare after TKR update

Just an update - I have taken ibuprofen regularly but no improvement and today I feel incredibly fatigued. I have therefore increased from 6.5mg to 10mg and...

Just an update - I have taken ibuprofen regularly but no improvement and today I...

Miserere

•3 months ago

5 Replies

Aching joints after stopping prednisolone

Hi could I ask if it is normal to suffer aching joints & muscles after stopping prednisolone?In mid Nov I managed finally to taper off prednisolone after 3 yrs...

Hi could I ask if it is normal to suffer aching joints & muscles after stopping ...

lilydunn

•3 months ago

17 Replies

Update

Hi, saw GP yesterday, bloods confirmed what he expected. He was so helpful and spent half an hour talking about PMR, tapering, adrenals etc. He really cared....

Hi, saw GP yesterday, bloods confirmed what he expected. He was so helpful and s...

Content1

•3 months ago

13 Replies

Do I have PMR?

I did some research on my own after having these pains in my shoulders, upper arms, hips and lower back. Getting out of bed, turning over in bed, getting up...

I did some research on my own after having these pains in my shoulders, upper ar...

Aqua47

•3 months ago

31 Replies

Stiff as a Post!

I rather like that play on words! I know that stiffness is a part of PMR but I have experienced stiffenss since my fifties. I remember going to a wholistic...

I rather like that play on words! I know that stiffness is a part of PMR but I ...

Louisa1840

•3 months ago

14 Replies

Phased return

3 weeks into my phased return have had to relearn alot of my processes but some have come back to me so improving slowly. Feel like I'm being pressured at work...

3 weeks into my phased return have had to relearn alot of my processes but some ...

Helliwelli12

•3 months ago

16 Replies

Taking pred with food

Hi Everyone. I think I may have an absorption issue. Perhaps I am taking pred too close to breakfast. Is it best to take pred before food, during, or after. I...

Hi Everyone. I think I may have an absorption issue. Perhaps I am taking pred to...

Temoral

•3 months ago

47 Replies

Further Update on Tooth Extraction

So!...its day 5 since my extraction with sedation and I've picked up a few useful tips for those who mentioned they were having the same done. - my...

So!...its day 5 since my extraction with sedation and I've picked up a few usefu...

Kendrew

•3 months ago

18 Replies

New support group in Exeter

We have a new support group starting up in Exeter and its first meeting is this Saturday at Sylvania Community Store and Café, 1 Sylvania Drive, Exeter Ex4...

We have a new support group starting up in Exeter and its first meeting is this ...

Fran_Benson

Partner•3 months ago

1 Reply

Diet inhibiting Preds absorption

I wanted to share that I may have isolated the main cause of the protracted flare issue I've had! I had a great day yesterday, after not having flax flour with...

I wanted to share that I may have isolated the main cause of the protracted flar...

PMRhealth

•3 months ago

21 Replies

foot support

Can't blame this on pmr but getting lower on pred has made it more apparent. I have arthritis in big toe and the joint seems to have flattened. Gp has...

Can't blame this on pmr but getting lower on pred has made it more apparent. I ...

herdysheep

•3 months ago

22 Replies

Varicose veins

I have had GCA for a year now & am currently on 8 mg Pred. I have had varicose veins in both my legs for many years now but since having GCA they seem to have...

I have had GCA for a year now & am currently on 8 mg Pred. I have had varicose v...

Janeval

•3 months ago

16 Replies

Is Breathlessness due to PMR or Pred?

I flagged up breathlessness last year and had my heart and lungs cleared as okay by the hospital. I have mild asthma and that asthma cough, but never had...

I flagged up breathlessness last year and had my heart and lungs cleared as okay...

Motida

•3 months ago

14 Replies

Plantar Fascilitis

Boo. Hi everyone. I had an ankle fusion surgery in August and the recovery has been a shade too slow. I've had the PF symptoms/pain in my heel and arch...

Boo. Hi everyone. I had an ankle fusion surgery in August and the recovery ...

discoballs

•3 months ago

9 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2024

My A1c is now 5.7 . . . in the very beginning stages of Pre-diabetic.

wrist and hand pain

News article on Irish PMR/GCA doctor

GCA Temporal/ Arteritis

Bitter Taste In Mouth

prednisone and side effects/ dosage related

GCA Ear pressure and stiff neck

Moon Face

So glad to find this group today

Mayb silly question

PMR AND ANASTROZOLE

Latest Thoughts on My High Cortisol Levels

Aching joints

Leflunomide

normality after PMR diagnosis

Digestion/Bowels

Flare after TKR update

Aching joints after stopping prednisolone

Update

Do I have PMR?

Stiff as a Post!

Phased return

Taking pred with food

Further Update on Tooth Extraction

New support group in Exeter

Diet inhibiting Preds absorption

foot support

Varicose veins

Is Breathlessness due to PMR or Pred?

Plantar Fascilitis

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