Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,314 members • 38,051 posts

All posts for May 2018

belated update hospital scan...no dignity...

With everything going on, forgot to mention that the hospital, where I had the abdominal scan, and the lack of privacy/dignity from the 2 men doing scan, rang...

With everything going on, forgot to mention that the hospital, where I had the a...

karools16

•6 years ago

15 Replies

Is It Really GCA?

I recently moved To Asheville, NC from Miami. Love it here! Finally set up with all new doctors, and everything seems to be going smoothly. However twice...

I recently moved To Asheville, NC from Miami. Love it here! Finally set up wit...

Pamk1949

•6 years ago

22 Replies

Muidershot Castle

My first attempt to post a photo. We visited this fairytale castle when in The Netherlands a few weeks ago.

My first attempt to post a photo. We visited this fairytale castle when in The ...

HeronNS

•6 years ago

19 Replies

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HITTING THE WALL TODAY - Panic much?

I ’m a bit (bit?!) anxious and emotional today — It seems like a few weeks ago, I was doing fine—or was I fooling myself? (I will have to look back at my...

I ’m a bit (bit?!) anxious and emotional today — It seems like a few weeks ago...

billinSurbiton

•6 years ago

19 Replies

Arthritis research leaflet

How do u get leaflet

Rose1bud

•6 years ago

8 Replies

You know, we should all stop moaning about our illness.😟😒😏😂😂

Because, we are “privileged” to have this very interesting illness which the majority of people (including most of us!!) have/had never heard of - and which...

Because, we are “privileged” to have this very interesting illness which the maj...

Constance13

•6 years ago

89 Replies

hard to get well....

Having just got over a chest infection, a bout of breathlessness followed, to the point that I felt, yesterday, as though my next would be my last. The...

Having just got over a chest infection, a bout of breathlessness followed, to th...

karools16

•6 years ago

15 Replies

Visit to Rheumatologist

After waiting since last October I had an appointment with a Rheumatologist yesterday. I was referred by my Haematologist who was concerned about the symptoms...

After waiting since last October I had an appointment with a Rheumatologist yest...

Heather270240

•6 years ago

38 Replies

Malta holiday

Graham and I enjoying our stay in Malta last month. Used my walking stick on a few short walks and a longer bus trip which was exhausting, the organisers tried...

Graham and I enjoying our stay in Malta last month. Used my walking stick on a f...

Marcy47

•6 years ago

14 Replies

DIY seems to be the only way to go with this.

Well did enjoy my 2-day respite, but now I am paying the piper. Just when I thought my 12mg daily Pred was going to do the trick, I get unexpected pains in my...

Well did enjoy my 2-day respite, but now I am paying the piper. Just when I thou...

Ta1ch1

•6 years ago

9 Replies

Tapering duration for GCA and doses of Pred over time ?

I am probably asking a difficult question - but I am wondering if any research exists about the duration of tapering and 'average' effective doses of Pred at...

I am probably asking a difficult question - but I am wondering if any research e...

Rimmy

•6 years ago

33 Replies

My doctor diagnosed me

Hello everyone. So after being discharged on this Sunday. With a severe headache and possible lymes. Which it turned out to be not the case. I spoke to my...

Hello everyone. So after being discharged on this Sunday. With a severe headache...

Hali12

•6 years ago

10 Replies

Medicare accepted my Actemra infusion claim!

Yeah, it is a good day. My Medicare part B accepted 100 %of my Actemra infusion claim. They paid everything but a little over $800, so my secondary which is...

Yeah, it is a good day. My Medicare part B accepted 100 %of my Actemra infusion...

CRW-68

•6 years ago

4 Replies

New

I'm married to a amazing woman who was diagnosed with GCA and PMR October last year. She found this site and it has helped her tremendously. Therefore, I've...

I'm married to a amazing woman who was diagnosed with GCA and PMR October last y...

jkcana

•6 years ago

11 Replies

Photos

2nd try

Constance13

•6 years ago

7 Replies

Low carb science

Hello all. First of all, a word of appreciation for all of you who make this forum what it is: I visit it most days and have benefitted from the support and...

Hello all. First of all, a word of appreciation for all of you who make this fo...

Brizzleben

•6 years ago

43 Replies

Photos

I really like seeing photos of fellow PMRers, so I thought I’d put my mug on here so people know who they are “talking” to. This was taken on our 60th wedding...

I really like seeing photos of fellow PMRers, so I thought I’d put my mug on her...

Constance13

•6 years ago

5 Replies

Preeclampsia heart disease and stroke

Hi Everyone I'm not sure if this has ever come up on this forum but it may significant for some of us a least - and I'm afraid it's not 'good news' ! I heard a...

Hi Everyone I'm not sure if this has ever come up on this forum but it may signi...

Rimmy

•6 years ago

12 Replies

GCA

I have just received a leaflet from Arthritis Research UK, and it is very informative. It does say that it usually takes 1-3 years to come off steroids...

I have just received a leaflet from Arthritis Research UK, and it is very inform...

JanboC

•6 years ago

10 Replies

Rolling Stones

Well on a lighter note, I survived the Rolling Stones concert in Southampton last night. Well what a night, they have so much energy that it took me back to...

Well on a lighter note, I survived the Rolling Stones concert in Southampton las...

9lives

•6 years ago

49 Replies

Taste

Morning everyone (at least it is here).💥😎 Has anyone had any funny querks (is that a word)?!? with food or drink? Shortly after starting pred (40mg) I went...

Morning everyone (at least it is here).💥😎 Has anyone had any funny querks (is ...

Constance13

•6 years ago

28 Replies

Reducing

My doc. Has been convinced that my PMR has left me and the pain I have in my lower back and legs is due to the problems I have with my spine. Although I have...

My doc. Has been convinced that my PMR has left me and the pain I have in my lo...

Tonysue

•6 years ago

32 Replies

How do I drop pred after a flare?

I'm not sure what to do next. I had a flare after tapering to 7.5 mg. Then I raised my amount of pred slowly. This didn't help much, so I asked for advice from...

I'm not sure what to do next. I had a flare after tapering to 7.5 mg. Then I rai...

judyb100

•6 years ago

17 Replies

Night out on the Town!

I have spent most of the last five months in a "fit of the vapours" on my sofa (literally speaking) trying to rouse myself into some sort of activity beyond...

I have spent most of the last five months in a "fit of the vapours" on my sofa (...

Pipalina

•6 years ago

27 Replies

Advice: GCA, PMR, Fibro

Two years with these diseases. I went on my first girl overnight at a cabin in the woods. I did sedate activities. I read, played games, and read under a shady...

Two years with these diseases. I went on my first girl overnight at a cabin in t...

Dream21

•6 years ago

20 Replies

PMR Fatigue

Good Morning All Has anyone figured out why we get this devastating fatigue or have a remedy for it? I have researched it a lot but can't find anything on just...

Good Morning All Has anyone figured out why we get this devastating fatigue or h...

Lin6075

•6 years ago

36 Replies

Eejit!!!!

Well, I guess there's a first time for everything... but feel I like a right idiot!!! It was 1:30 this afternoon, before I realised, I had forgotten to take...

Well, I guess there's a first time for everything... but feel I like a right id...

Hidden

•6 years ago

69 Replies

Did I come off pred too soon?

Hi, it must have been a year or more since I wrote a post. I had reduced from 15mg to 10mg and was on track to reduce to zero by May this year. Had a few...

Hi, it must have been a year or more since I wrote a post. I had reduced from 15...

trebor65

•6 years ago

10 Replies

New York

I returned on Sunday from a week in New York and just wanted to say I had a wonderful time, even though I'm on 14mg Pred!! I took the advice from "our club"...

I returned on Sunday from a week in New York and just wanted to say I had a wond...

Janann25

•6 years ago

24 Replies

Referral to Vet

In a remarkable show of solidarity my cat is now on prednisolone to treat an inflammatory condition (IBD). He was given a depot injection so does not have to...

In a remarkable show of solidarity my cat is now on prednisolone to treat an inf...

MichaelW

•6 years ago

17 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2018

belated update hospital scan...no dignity...

Is It Really GCA?

Muidershot Castle

HITTING THE WALL TODAY - Panic much?

Arthritis research leaflet

You know, we should all stop moaning about our illness.😟😒😏😂😂

hard to get well....

Visit to Rheumatologist

Malta holiday

DIY seems to be the only way to go with this.

Tapering duration for GCA and doses of Pred over time ?

My doctor diagnosed me

Medicare accepted my Actemra infusion claim!

New

Photos

Low carb science

Photos

Preeclampsia heart disease and stroke

GCA

Rolling Stones

Taste

Reducing

How do I drop pred after a flare?

Night out on the Town!

Advice: GCA, PMR, Fibro

PMR Fatigue

Eejit!!!!

Did I come off pred too soon?

New York

Referral to Vet

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