Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for April 2016

Are you entitled to a Blue Badge for the car with PMR?

Just recently been diagnosed with PMR and my GP has told me I may be entitled to a Blue Badge for the car, as my mobility is very bad at the moment, but its up...

Just recently been diagnosed with PMR and my GP has told me I may be entitled to...

CarrieP

•8 years ago

17 Replies

Post-menopausal bleeding

Have any other ladies suffered from this whilst on prednisolone and/or methotrexate? I was sailing along nicely when two months ago I started bleeding, and for...

Have any other ladies suffered from this whilst on prednisolone and/or methotrex...

mamma1027

•8 years ago

8 Replies

In Denial - my big mistake

I was diagnosed with GCA just before Christmas. I kept my sight, with just some damage to the optic nerve on my left eye, which also has maculopathy and...

I was diagnosed with GCA just before Christmas. I kept my sight, with just some...

mumraa123

•8 years ago

19 Replies

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reducing pred

going down from 5mg to 4 mg today last time I did this I had a flare went back up to 10 mg and now after 5 months will try again advice please

going down from 5mg to 4 mg today last time I did this I had a flare went back u...

granelliheywood

•8 years ago

5 Replies

PMR recovery and ‘running before you can walk’ - a salutory tale from Action Man…

Greetings to all on this forum, and the many of you with whom I have connected happily in the past 12 months. As I write this, I welcome your hoots of...

Greetings to all on this forum, and the many of you with whom I have connected ...

markbenjamin57

•8 years ago

45 Replies

Trust your instincts

I have been seeing the same rheumy for almost four years and a year in he decided that I didn't have PMR as my ESR was normal. He then revised it some months...

I have been seeing the same rheumy for almost four years and a year in he decide...

Ida-June128

•8 years ago

7 Replies

GCA - coping in the early stages

I originally wrote this in response to a post but I will put it here as a new message in case some of it is helpful to others. Here are my thoughts and...

I originally wrote this in response to a post but I will put it here as a new me...

CloudGazer6

•8 years ago

5 Replies

A help with facial redness

Dear fellow sufferers, I suffer from facial redness as a result of taking Pred. I have found a product that really helps tone down my face - it would be...

Dear fellow sufferers, I suffer from facial redness as a result of taking Pred. ...

mariacwelland

•8 years ago

4 Replies

East Anglian meeting

I wanted to attend the meeting at Needham Market but did not feel well enough to drive so far this morning. It is about an hour and a half away from here. ...

I wanted to attend the meeting at Needham Market but did not feel well enough t...

rosalinda

•8 years ago

3 Replies

Update on 45 yr old PMR sufferer

Hi, As I have posted a few times recently on my PMR journey I thought it may be of interest (maybe!) to update you on my current progress as I'm an "atypical"...

Hi, As I have posted a few times recently on my PMR journey I thought it may be ...

Underlee

•8 years ago

24 Replies

Possible flare up?

After being on 10 mil of pred for almost three months ( Dr tried to taper me down to 5 a few weeks ago & had to go back up within days) I am now feeling so...

After being on 10 mil of pred for almost three months ( Dr tried to taper me dow...

Shastring

•8 years ago

12 Replies

Frothy urine

PMRPro mentioned that: Pred makes you lose magnesium, calcium and potassium in your urine, does this cause frothy urine? PMR came back after a year and I am...

PMRPro mentioned that: Pred makes you lose magnesium, calcium and potassium in y...

fuzzybear

•8 years ago

6 Replies

feeling scared

Hi I'm 52 and I have just been diagnosed with GCA about eight weeks ago and I am really struggling with it. I was put on 60mg of pred which did stop the pains...

Hi I'm 52 and I have just been diagnosed with GCA about eight weeks ago and I am...

Wendy-woo2

•8 years ago

50 Replies

Decreasing dose of prednisolone

Hi all, just had a repeat prescription from docs and he wants me to cut down from 20mg pred to 15 for the next month from next week, this seems a big jump down...

Hi all, just had a repeat prescription from docs and he wants me to cut down fro...

jlyndauk2002

•8 years ago

5 Replies

After 3 Years my GCA is in Remission

I was diagnosed with Temporal Arteritis 3 years ago I learned that blindness and stroke was a possible outcome if it was left untreated so I started on 60...

I was diagnosed with Temporal Arteritis 3 years ago I learned that blindness and...

Mark506

•8 years ago

11 Replies

Nordic Walking

Well, I finally got to a Nordic Walking information session. Bought the poles - told myself it would be a great birthday present for hubby to give me. It was...

Well, I finally got to a Nordic Walking information session. Bought the poles -...

HeronNS

•8 years ago

1 Reply

Hoping For Better Days & Looking for Sympathy

OK. This is a rant, and won't help anybody, except maybe me. I'm back to trying, trying, trying. I get up at 1:00 AM. With water I take something to coat my...

OK. This is a rant, and won't help anybody, except maybe me. I'm back to trying,...

Asbeck

•8 years ago

22 Replies

Good visit to doctor

Just thought I would post a positive story. I had a doctors appointment this morning to get the results of my routine blood test. I told her the pain was ok...

Just thought I would post a positive story. I had a doctors appointment this mor...

margiebell4

•8 years ago

18 Replies

Painful swollen hands

Help! 74 year old husband diagnosed with PMR/ GCA October 2015 started on 15 mg gradual reduction to 8mg in 1/2 mg drops, was doing really well , on info from...

Help! 74 year old husband diagnosed with PMR/ GCA October 2015 started on 15 mg ...

Ipsy71

•8 years ago

7 Replies

Fractured ankle

Dear friends, I fell on Easter fracturing the tibia and the fibula right above the ankle. I had surgery to stabilize the fractures with a plate on each side of...

Dear friends, I fell on Easter fracturing the tibia and the fibula right above t...

Joyful13

•8 years ago

18 Replies

Seronegative arthritis

I was diagnosed with pmr in 2014. Have had no luck in ever getting below 10mg pred. Tried azothiaprine but that didn't work. Saw rheumy today. Now to begin...

I was diagnosed with pmr in 2014. Have had no luck in ever getting below 10mg p...

Pat9442

•8 years ago

4 Replies

Arthritus ??

I have had pmr now since August 2013 have reduced to 6 mgs pred, but have now had both hands painful in mornings swollen later they gradually ease I cannot...

I have had pmr now since August 2013 have reduced to 6 mgs pred, but have now ha...

Zampalion

•8 years ago

4 Replies

Denosumab advice please?

Hi everyone, haven't posted for a while but I am an avid reader every day. I am a PMR sufferer and have been on Pred for just over a year. Started at 15mg and...

Hi everyone, haven't posted for a while but I am an avid reader every day. I am ...

jane57

•8 years ago

15 Replies

Flare

Had two glasses of wine diluted with water last night, feel awful today real flare up, could this have been the alcohol or just a coincidence ?x

Had two glasses of wine diluted with water last night, feel awful today real fla...

Abigail1

•8 years ago

29 Replies

PMR with a twist?

I'm still a mystery to the specialist. I have PMR, That's clear. Was diagnosed last october. The mystery is that my blood tests don't fit properly. It all...

I'm still a mystery to the specialist. I have PMR, That's clear. Was diagnosed l...

Bittebitt

•8 years ago

10 Replies

PMR & Dr visit

Here we go again, just now came home from Internist appt & guess what he says. He tells me that there are two other meds to try, Cymbalta & Lyrica. I then say...

Here we go again, just now came home from Internist appt & guess what he says. H...

Shastring

•8 years ago

6 Replies

swollen eyes

Hi all Diagnosed in june 15, PRM/GCA - just got down to 16mgs preds, still a bit wobbly at that so will sit here for a while. However - I am still struggling...

Hi all Diagnosed in june 15, PRM/GCA - just got down to 16mgs preds, still a bi...

lesley2015

•8 years ago

12 Replies

How much should I increase pred when having a flare

Hi it's great to hear all of your posts and comments on this site. I was diagnosed with PMR 15 months ago and have managed to reduce pred to 11mg. Over the...

Hi it's great to hear all of your posts and comments on this site. I was diagnos...

Dianabee

•8 years ago

24 Replies

Any private Rheumatologist recommended in Midlands for possible PMR.... Dr David Rees?

I have had severe pain for several years and responded quite well to steroids (despite seriously over doing my activities). I wish to see a Rheumatologist who...

I have had severe pain for several years and responded quite well to steroids (d...

ariel1973

•8 years ago

2 Replies

Dundee PMR/GCA Meeting

What a lovely meeting, so nice to actually speak to people on the same path as myself, some at the start and some well into the journey, informative talks from...

What a lovely meeting, so nice to actually speak to people on the same path as m...

Nannie-C

•8 years ago

3 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for April 2016

Are you entitled to a Blue Badge for the car with PMR?

Post-menopausal bleeding

In Denial - my big mistake

reducing pred

PMR recovery and ‘running before you can walk’ - a salutory tale from Action Man…

Trust your instincts

GCA - coping in the early stages

A help with facial redness

East Anglian meeting

Update on 45 yr old PMR sufferer

Possible flare up?

Frothy urine

feeling scared

Decreasing dose of prednisolone

After 3 Years my GCA is in Remission

Nordic Walking

Hoping For Better Days & Looking for Sympathy

Good visit to doctor

Painful swollen hands

Fractured ankle

Seronegative arthritis

Arthritus ??

Denosumab advice please?

Flare

PMR with a twist?

PMR & Dr visit

swollen eyes

How much should I increase pred when having a flare

Any private Rheumatologist recommended in Midlands for possible PMR.... Dr David Rees?

Dundee PMR/GCA Meeting

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