Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,308 members • 38,044 posts

All posts for March 2016

Mrs Dawn Smith

Hi, my name is Dawn and I have had issues with swollen tendons and fluid in right shoulder since November last year. In December I had X-ray and ultrasound to...

Hi, my name is Dawn and I have had issues with swollen tendons and fluid in righ...

Dawnie08

•8 years ago

10 Replies

June

Hi this the first Time I have posted anything on here . Reading all the posts have really help me understand more about pma I was diagnosed 2years ago with...

Hi this the first Time I have posted anything on here . Reading all the posts ha...

Tasker2

•8 years ago

20 Replies

PMR reduction plan

Hi All, Does anyone have a copy of the PMR reduction plan as devised by PMRpro? I've emailed pmrfightersnortheast@googlemail.com and it comes back as address...

Hi All, Does anyone have a copy of the PMR reduction plan as devised by PMRpro? ...

mariacwelland

•8 years ago

6 Replies

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pmr???

I am now 47 and have been suffering from what my GP says is PMR and Fibromyalgia for over two years. A year ago I woke up in agony with pains in my legs, hips,...

I am now 47 and have been suffering from what my GP says is PMR and Fibromyalgia...

GoneGirl

•8 years ago

40 Replies

GCA....SPOTS ON SCALP ???

I don't believe I've asked this question or seen any mention of this subject. GCA diagnosed fifteen months ago. I can't see my scalp however others can see...

I don't believe I've asked this question or seen any mention of this subject. GC...

cjatthesea

•8 years ago

11 Replies

Cold tapering and asthma

Been tapering from 40 last number was 30/25 when I started to feel achy. Been on 25 over a week and got a cold and my asthma kicked in. Also have headache...

Been tapering from 40 last number was 30/25 when I started to feel achy. Been o...

Nap1

•8 years ago

6 Replies

NEED ADVICE....AS SOON AS POSSIBLE

We've been posting about my recent problems with tapering while also, starting to change dosage to twice a day. Two serious Flares within ten days. While...

We've been posting about my recent problems with tapering while also, starting t...

cjatthesea

•8 years ago

12 Replies

Chicken pox virus

I have had a cataract operation and can now see to post :) . Something that has been bothering me is a link that was posted awhile ago about GCA being...

I have had a cataract operation and can now see to post :) . Something that h...

30048

•8 years ago

7 Replies

Spoon theory

After reading the conversation about the common personality traits that we seem to share ( who knew?) I wanted to make sure that everyone had read the Spoon...

After reading the conversation about the common personality traits that we seem ...

30048

•8 years ago

7 Replies

Aloe vera

Is anyone taking the above please? Can you give me some information about taking it? I have GCA and wonder if it would be a good additional supplement.

Is anyone taking the above please? Can you give me some information about taking...

betty1943

•8 years ago

15 Replies

Cumulative Dose

Hi all, I wonder if someone can explain to me what ' cumulative dose' on my tapering plan means ? I have PMR and GCA and started on 50mg Pred, I have noticed...

Hi all, I wonder if someone can explain to me what ' cumulative dose' on my tape...

miravet

•8 years ago

1 Reply

Recently diagnosed with pmr.

I am taking steroids, I am pain free but my legs feel strange they feel as though my ankles are connected to hips with very strong elastic. Is this normal?

I am taking steroids, I am pain free but my legs feel strange they feel as thoug...

Unandave

•8 years ago

16 Replies

Headache

Happy Easter all ! Looking for help....I'm on holiday with my daughter for a few days, and have had a niggling headache around my left eye . I've always had...

Happy Easter all ! Looking for help....I'm on holiday with my daughter for a fe...

bumpermac

•8 years ago

4 Replies

Prednisone rash

I hope everyone has had a relaxing Easter with plenty of recreational fun with family and friends ( and not too much chocolate LOL !) Has anyone had any...

I hope everyone has had a relaxing Easter with plenty of recreational fun with ...

magmapearl3

•8 years ago

2 Replies

Nose Bleeds

In January one Doctor thought I might have PMR after at least 6 weeks of symptoms, he sent me for blood tests it was his last day in town. After 2 weeks I was...

In January one Doctor thought I might have PMR after at least 6 weeks of symptom...

abcsue1

•8 years ago

7 Replies

PMR in a 45 year old

Hi, I had a sudden onset of pain and stiffness in my legs and arms a month ago combined with night sweats. I have spent the past two weeks in hospital having...

Hi, I had a sudden onset of pain and stiffness in my legs and arms a month ago c...

Underlee

•8 years ago

34 Replies

PMR GCA SCOTLAND

The Scotland group are holding their AGM on 19 April, at The Queens Hotel, Nethergate, Dundee. The AGM starts at 11am followed by talks by consultant...

The Scotland group are holding their AGM on 19 April, at The Queens Hotel, Nethe...

sara4

•8 years ago

8 Replies

Raised ESR CRP

I have been doing a slow taper and now on 13mgs.Pred. also having regular [ monthly ] b/test. 2 weeks ago I started a cold [ which is still lingering...

I have been doing a slow taper and now on 13mgs.Pred. also having regular [ mo...

bowler

•8 years ago

9 Replies

PMR and tai chi

I was diagnosed with pmr 10 months ago with a very high ESR and swift response to steroids. Now down to 6mg of deflazacort a day I feel it is more under...

I was diagnosed with pmr 10 months ago with a very high ESR and swift response t...

Fernan

•8 years ago

9 Replies

Vitamins and minerals

Hi everyone hope life is being kind today. Does anyone know for sure of any vitamins and minerals we should absolutely avoid on steroids? Am taking the usual...

Hi everyone hope life is being kind today. Does anyone know for sure of any vita...

Carrollee

•8 years ago

4 Replies

Breathlesness

Hi I have prior to steroids suffered from slight breathlesness on excretion due I believe that I am in a/f but on trying to cut down the steroids I have had...

Hi I have prior to steroids suffered from slight breathlesness on excretion due ...

Rusty8

•8 years ago

2 Replies

Original causes of PMR?

I'm finding it so helpful to read all your posts and to learn from everyone's experience of living with this condition. Particularly as its not widely known...

I'm finding it so helpful to read all your posts and to learn from everyone's e...

lucy65

•8 years ago

37 Replies

Depair

I feel weird,.not like me at all. On 10 mg Pred for 4weeks now,started off on 15 at the beginning of January.I feel exhausted and irritable and full of...

I feel weird,.not like me at all. On 10 mg Pred for 4weeks now,started off on 15...

Sandradsn

•8 years ago

26 Replies

Does lenght of time before diagnosis result in longer time on steroids?

Hiya I was diagnosed in June 15 with PMR/CGCA after 5 years of not being diagnosed. 40mgs preds was prescribed and I am still unable to be comfortable below...

Hiya I was diagnosed in June 15 with PMR/CGCA after 5 years of not being diagnos...

lesley2015

•8 years ago

15 Replies

Interrupting pred taper

I am a 78 year old male in the USA. Have tapered down to one mg pred with no adverse affects from PMR. This week, was diagnosed with bronchitis and prescribed...

I am a 78 year old male in the USA. Have tapered down to one mg pred with no adv...

Jim-f

•8 years ago

2 Replies

Thoughts please on prednisalone dosing

I ave RA and PMR and have to go up from 5mg to 15mg. pred. I would appreciate thoughts on whether to take all dose morning, all evening or divide the dose in...

I ave RA and PMR and have to go up from 5mg to 15mg. pred. I would appreciate th...

siskin

•8 years ago

3 Replies

Reaction to Clarithromycin 250mg antibiotic

Hi everyone I've got PMR and on 5mg prednisilone but recently keep getting chest infections. The doctor gave me Clarithromycin 250mg the last time. Has...

Hi everyone I've got PMR and on 5mg prednisilone but recently keep getting che...

heli13

•8 years ago

9 Replies

Concerns about taking the additional medicine and steroids

Hi Ive just joined up having been diagnosed with PMR within the last month although symptoms started around Christmas. I'm 51 so although young to get it...

Hi Ive just joined up having been diagnosed with PMR within the last month altho...

lucy65

•8 years ago

5 Replies

Advice needed please

I was diagnosed in January 15 with PMR and after a couple of hiccups have now reached 8mg of Prednisolone using the very slow method. This has been successful...

I was diagnosed in January 15 with PMR and after a couple of hiccups have now re...

Patricia157

•8 years ago

12 Replies

Seriously, has anyone ever with pmr been in remission?

Seriously, has anyone ever with PMR been in remission?

112045

•8 years ago

11 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2016

Mrs Dawn Smith

June

PMR reduction plan

pmr???

GCA....SPOTS ON SCALP ???

Cold tapering and asthma

NEED ADVICE....AS SOON AS POSSIBLE

Chicken pox virus

Spoon theory

Aloe vera

Cumulative Dose

Recently diagnosed with pmr.

Headache

Prednisone rash

Nose Bleeds

PMR in a 45 year old

PMR GCA SCOTLAND

Raised ESR CRP

PMR and tai chi

Vitamins and minerals

Breathlesness

Original causes of PMR?

Depair

Does lenght of time before diagnosis result in longer time on steroids?

Interrupting pred taper

Thoughts please on prednisalone dosing

Reaction to Clarithromycin 250mg antibiotic

Concerns about taking the additional medicine and steroids

Advice needed please

Seriously, has anyone ever with pmr been in remission?

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