Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,323 members•40,434 posts

All posts for December 2017

ESR & CRP Rate

Recently saw my Rheumy and he ordered blood test for Sed rate and CRP. I compared my Sed Rate from my original bloodwork 3/16/17 rate of 14 5/19/17 rate of......

Recently saw my Rheumy and he ordered blood test for Sed rate and CRP. I compare...

Sunnyd7

•7 years ago

9 Replies

Happy new year

I would like to wish you all a very happy new year and may your health get better in 2018. I will write soon just that I have been in a dark place of late,...

I would like to wish you all a very happy new year and may your health get bette...

Margaret1951

•7 years ago

13 Replies

2018

Happy and Healthy New Year🎉🎉🎉

Baileyw06

•7 years ago

1 Reply

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The Lighter Side: New Year's Greetings from 'Uncle' MB ;-)

Greetings to Poly(ma)lingerers and Partners in Pred First, on a rare but serious note! I've adjusted my mischievous but unintentional past descriptions of You...

Greetings to Poly(ma)lingerers and Partners in Pred First, on a rare but serious...

markbenjamin57

•7 years ago

17 Replies

Amitriptyline. Anyone like or dislike?

Can’t quite make my mind up. It certainly did the job carmine my bladder. From going every 30 min at its worst after tea. Now I can go hours in between...

Can’t quite make my mind up. It certainly did the job carmine my bladder. Fr...

Rocketronzy

•7 years ago

12 Replies

Happy New Year!

Last year..for the first time..we wrote once a week a good thing that happened during the week and stuck it in a jar. Husband managed at least 6 months and I...

Last year..for the first time..we wrote once a week a good thing that happened d...

yogabonnie

•7 years ago

21 Replies

Dizzy spells

Can anyone please tell me if they suffered continous dizzy spells after reducing preds to 6? Thought might be adrenal glands starting to lick in again....

Can anyone please tell me if they suffered continous dizzy spells after reducing...

Xanthe12345

•7 years ago

4 Replies

Metamorphosis

Not necessarily PMR/GCA related, but definitely prompted by hours of feeling unwell and contemplating the future......

Not necessarily PMR/GCA related, but definitely prompted by hours of feeling unw...

Hidden

•7 years ago

7 Replies

What are these head symptoms - GCA or pred?

Hi again. After two months on 20mg I'm still in the throes of beginners' confusion, and although I've now persuaded my dr to refer me (have got an 'urgent'...

Hi again. After two months on 20mg I'm still in the throes of beginners' confusi...

todw

•7 years ago

24 Replies

Using Naproxen

Morning everyone, I have not been on this site for some time but even though I am managing to reduce my medication I still have bad days. Yesterday I woke up...

Morning everyone, I have not been on this site for some time but even though I a...

PMRMiltonkeynes

•7 years ago

5 Replies

Best wishes for 2018

I'd like to wish everyone on this site and all who suffer from an auto immune disease a different kind of New Year. In the middle of all the celebrations I...

I'd like to wish everyone on this site and all who suffer from an auto immune di...

BirmLiz

•7 years ago

4 Replies

Pain!

Hello my soul mates, fighting the fight against GCA/ Poli! I hope somebody can help me with the following, I am on 5mg of Pred, my stats are all in the normal...

Hello my soul mates, fighting the fight against GCA/ Poli! I hope somebody can h...

Kentishgirl

•7 years ago

8 Replies

Good Day

Happy New Year. I am new to this site and find it very helpful as I feel very isolated here in Ontario Canada. I was diagnosed with PMR and started on...

Happy New Year. I am new to this site and find it very helpful as I feel very is...

karegodd

•7 years ago

64 Replies

Question

Not sure where to begin. Bottom line GP put me on 20 mg n told me to taper as I felt need to. Even on the 20mg didn’t get full relief from burning legs,...

Not sure where to begin. Bottom line GP put me on 20 mg n told me to taper as I...

MaryA_

•7 years ago

24 Replies

Belated happy Christmas but early happy new year

Hi everyone Hope things have been as good as they can be! I thought I would wish you a happy new year early:) I will never make 12 midnight tomorrow! I am...

Hi everyone Hope things have been as good as they can be! I thought I would wi...

JulieR2

•7 years ago

8 Replies

In Remission

I am so excited to say that after 3 years I am in complete remission with my PMR. My SED rate was 25 when I went in for testing. It was a long three years. Now...

I am so excited to say that after 3 years I am in complete remission with my PMR...

Amber1414

•7 years ago

10 Replies

Just Diagnosed

On Dec. 22nd I was diagnosed with Polymyalgia Rheumatica. I am taking 15mg prednisone for another week and will lower to 10mg. Then blood work to see where I...

On Dec. 22nd I was diagnosed with Polymyalgia Rheumatica. I am taking 15mg pred...

lvaughn

•7 years ago

10 Replies

POTS

Does anyone know anything about this syndrome and can help me with this. My daughter suffers from this and I am at my wit's end. Then I am on Prednisone and...

Does anyone know anything about this syndrome and can help me with this. My daug...

Cupcake1010

•7 years ago

11 Replies

100 Marathons - and PMR!

On 16th December, Lynda Copson ran her 100th marathon. Enough of a massive achievement in its own right - but just imagine that Lynda was diagnosed with PMR a...

On 16th December, Lynda Copson ran her 100th marathon. Enough of a massive achi...

Polywotsit

PMRGCAuk team member•7 years ago

5 Replies

Can't get below 25 mg without a GCA flare...

I've now had my second GCA flare when at 25 mg of Prednisolone per day. The first time in October my dose was increased to 40 mg to be tapered fairly slowly....

I've now had my second GCA flare when at 25 mg of Prednisolone per day. The fir...

Marijo1951

•7 years ago

10 Replies

Club zero getting closer - My Actemra story continues

As I look back at 2017 I can’t help but to be thankful for the support of my family and friends. All of you in this forum have been such a support and I will...

As I look back at 2017 I can’t help but to be thankful for the support of my fam...

Marie1479

•7 years ago

9 Replies

Oh boy! A New Med!

Went to GP last night and general alignment meeting after seeing the rheumatologist... I asked for a copy of the letter sent by specialist to GP Surgery. Was...

Went to GP last night and general alignment meeting after seeing the rheumatolog...

Hidden

•7 years ago

33 Replies

Thoracic Back Pain

Just wondering if anyone suffers from thoracic back pain. I get it if I try to do chores around the house that takes longer than 15-20 minutes. It's so bad...

Just wondering if anyone suffers from thoracic back pain. I get it if I try to d...

126-117

•7 years ago

26 Replies

Temple Artery Biopsy

After 5 days post diagnosis I have to say the NHS are moving pretty quick for me. I had my first appointment with the rheumatologist yesterday and had all...

After 5 days post diagnosis I have to say the NHS are moving pretty quick for me...

Hidden

•7 years ago

16 Replies

PMR-new pain

So back in early December my Rheumy wanted me to wean from 7.5 mg or pred to 6mg. Well I tried this for a week and found I was unable to go this low, so I...

So back in early December my Rheumy wanted me to wean from 7.5 mg or pred to 6mg...

Sunnyd7

•7 years ago

14 Replies

To vacation or not to vacation? Or when to go?

Me again. 3 weeks in since start of tx. Long before, PMR showed up, I had planned vacation for 2 weeks starting January 6th. I have been feeling wimpy lately...

Me again. 3 weeks in since start of tx. Long before, PMR showed up, I had planne...

MovingForward_Always

•7 years ago

19 Replies

Prednisone vs Prednisolone

I don't understand why prednisone is prescribed when prednisolone is available. Why do doctors in the U.S. prescribe prednisone when Medrol is available. If...

I don't understand why prednisone is prescribed when prednisolone is available. ...

skipspmr

•7 years ago

2 Replies

Blood Test Results

Hello everybody I have had PMR for 2 years Steroids now down to 1mg from 25mg Blood test every 6 weeks. GP says they are normal. But what is normal Should I...

Hello everybody I have had PMR for 2 years Steroids now down to 1mg from 25mg B...

Hidden

•7 years ago

5 Replies

CALCIUM NOT WORKING???? OH NO!!!

OMG it's ALWAYS something isn't it??? and soon a newer study will debunk this study. How is one EVER to know for sure. I guess we need to get out and walk and...

OMG it's ALWAYS something isn't it??? and soon a newer study will debunk this st...

yogabonnie

•7 years ago

23 Replies

A man and his snow shovel (Part 2)

Remember me? :-) Now at 3 weeks on prednisone 15mg. I feel so much better. Discomfort when it follows me is on such a different scale; I no longer wish for an...

Remember me? :-) Now at 3 weeks on prednisone 15mg. I feel so much better. Disco...

MovingForward_Always

•7 years ago

9 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for December 2017

ESR & CRP Rate

Happy new year

2018

The Lighter Side: New Year's Greetings from 'Uncle' MB ;-)

Amitriptyline. Anyone like or dislike?

Happy New Year!

Dizzy spells

Metamorphosis

What are these head symptoms - GCA or pred?

Using Naproxen

Best wishes for 2018

Pain!

Good Day

Question

Belated happy Christmas but early happy new year

In Remission

Just Diagnosed

POTS

100 Marathons - and PMR!

Can't get below 25 mg without a GCA flare...

Club zero getting closer - My Actemra story continues

Oh boy! A New Med!

Thoracic Back Pain

Temple Artery Biopsy

PMR-new pain

To vacation or not to vacation? Or when to go?

Prednisone vs Prednisolone

Blood Test Results

CALCIUM NOT WORKING???? OH NO!!!

A man and his snow shovel (Part 2)

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