Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,289 members • 38,010 posts

All posts for February 2014

Why no ESR test?

When I had blood tests today I asked the phlebotomist what I was being tested for. She said "liver and kidney function, glucose and CRP". I was very surprised...

When I had blood tests today I asked the phlebotomist what I was being tested fo...

Badgergirl

•10 years ago

17 Replies

Kate's book PMR & GCA A Survival Guide.

Just started reading your book Kate and am finding it very informative, easy to read and essential reading for both the medical profession and fellow...

Just started reading your book Kate and am finding it very informative, easy to ...

tomasina

•10 years ago

6 Replies

Polymyalgia Rheumatica and Giant Cell Arteritis: A Survival Guide. This book is a must for your bookshelf or kindle

Just purchased and read Kate's book ... amazing! It should be on all our bookshelves or at least in our Kindle's at present. Although I'm an atypical PMR...

Just purchased and read Kate's book ... amazing! It should be on all our bookshe...

Skinnyjonny

•10 years ago

27 Replies

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Giving up Prednisolone too soon?

I was so pleased with myself a couple of weeks ago because after yo-yoing up and down all last year I had finally reduced to 1mg and then slowly to none....

I was so pleased with myself a couple of weeks ago because after yo-yoing up and...

Hidden

•10 years ago

3 Replies

Community passes the 700 member mark!

It's really exciting to see that this community now has 706 members. That's fantastic in two years, and just goes to show how much it is needed. Many thanks...

It's really exciting to see that this community now has 706 members. That's fant...

Polywotsit

PMRGCAuk team member•10 years ago

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Cortisol Blood Test Result

Can anyone tell me what the normal reading for a female Cortisol Blood Test should be please. I had mine taken last week and it was 5-16 mcg/dl. Can't fine...

Can anyone tell me what the normal reading for a female Cortisol Blood Test shou...

hwigston

•10 years ago

2 Replies

Estrogen

I was interested in finding the site "Estrogen and the Autoimmune PMR/GCA-discussion-Autoimmune" " I think that's right ? " I was diagnosed with GCA/PMR...

I was interested in finding the site "Estrogen and the Autoimmune PMR/GCA-discu...

bowler

•10 years ago

17 Replies

Yet Another Hurdle !! Another flare-up , let's hope the Depo- Medrone 150mg injection works.?

Here we go again , I thought I was doing well in my steroid reduction. I thought I was just coping with the pain in my Spine ,legs and hands , utter exhaustion...

Here we go again , I thought I was doing well in my steroid reduction. I thought...

trish29

•10 years ago

10 Replies

Progress report.

I have 4 long lasting medical conditions and 1 hopefully temporary condition. They are Asthma for the last 40 years. Paroxysmal Atrial Fibrillation for the...

I have 4 long lasting medical conditions and 1 hopefully temporary condition. T...

Thomas45

•10 years ago

3 Replies

Five weeks later.

Good morning every fellow PMR sufferer. I am just checking in to update you of my state of health. Five weeks ago I took my last 1mg of Prednisone. To...

Good morning every fellow PMR sufferer. I am just checking in to update you of...

shania

•10 years ago

2 Replies

Why do I feel so weak

Hi everyone, I habe been recently diagnosed with PMR on 29th Jan and GCA on 30yh Jan. I have been on Prednisolone since 16th Jan when the GP first suspected...

Hi everyone, I habe been recently diagnosed with PMR on 29th Jan and GCA on 30y...

dogwalker

•10 years ago

10 Replies

Has anyone had any problems wearing contact lenses whilst taking steriods?

For a number of reasons I have gone back to GP lenses after a break of about 10 years. I am finding my eyes get really dry and uncomfortable, particularly in...

For a number of reasons I have gone back to GP lenses after a break of about 10 ...

HelenJC

•10 years ago

7 Replies

Can Sleep Deprivation Cause PMR?

Hello Everyone This is my first time - please be gentle with me! I was wondering if there might be a connection between long-term sleep problems and...

Hello Everyone This is my first time - please be gentle with me! I was wonderi...

SeasideSue

•10 years ago

8 Replies

Hi Has there been an article in the Daily Mail recently about GCA?

heli13

•10 years ago

4 Replies

Worried after visit to doctor today

My GP weighed me and said I had put on a stone in 3 months. Then he tested my blood via finger prick and found my glucose levels were pre-diabetic. Next, my...

My GP weighed me and said I had put on a stone in 3 months. Then he tested my bl...

Badgergirl

•10 years ago

19 Replies

Does anyone get cramp like pain in legs

For the last few evenings I have had terrible cramping type pain in my right leg, making it restless and impossible to get comfortable, and struggle to get to...

For the last few evenings I have had terrible cramping type pain in my right leg...

Runrig01

•10 years ago

12 Replies

I need some advice after a visit to my doctor today.

Hi, After a visit to my doctor today about my trigger fingers, which have become unbearably painful all of the time now and inflamed. She told me I had two...

Hi, After a visit to my doctor today about my trigger fingers, which have becom...

Buenavista

•10 years ago

7 Replies

Book on PMR and GCA available now!

Dear forum friends, "Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide" is now available as an e-book on Amazon http://amzn.to/1ff8LA7....

Dear forum friends, "Polymyalgia Rheumatica and Giant Cell Arteritis: a survival...

Polywotsit

PMRGCAuk team member•10 years ago

19 Replies

Has anyone else experienced a slight rash and burning sensation from ankle to mid calf? This only seems to happen in the evening..

I was originally on 60 mgs of prednisolone twelve months ago when I was diagnosed with TA,but am now down to 5, I had swollen legs when I was on higher dose...

I was originally on 60 mgs of prednisolone twelve months ago when I was diagnose...

apworton

•10 years ago

2 Replies

Methotrexate........ friend or foe.

I am due to see my Rheumy next week and I know they want to start me on Methotrexate, I am not sure what to do. Can I ask you wonderful people what should I...

I am due to see my Rheumy next week and I know they want to start me on Methot...

cynbil

•10 years ago

3 Replies

DAILY MAIL ARTICLE

Hi Everyone, Just wondered if anyone had read the article on Temporal Arteritis yesterday featured in the Daily Mail? I was amazed at the same symptoms that I...

Hi Everyone, Just wondered if anyone had read the article on Temporal Arteritis ...

theresa49

•10 years ago

9 Replies

Can prednisolone cause sub-conjunctival haemorrhage?

I had a haemorrhage showing in the white of my eye about a week ago, following a headache. It went away within a couple of days but now I have one appeared...

I had a haemorrhage showing in the white of my eye about a week ago, following a...

Badgergirl

•10 years ago

12 Replies

Does anyone live in Devon or Cornwall please I live in Plymouth

I have had myasthenia Gravis for 11 years but have recently been diagnosed with PMR / GCA recently.

I have had myasthenia Gravis for 11 years but have recently been diagnosed with...

Hidden

•10 years ago

9 Replies

Found link to Christine Northrup and information on adrenal dysfunction

Hi Everyone, I found the link from Christine Northrup on adrenal dysfunction. Her advice is good and I find it helps.A major difference is that we are not...

Hi Everyone, I found the link from Christine Northrup on adrenal dysfunction. H...

Whittlesey

•10 years ago

8 Replies

Book on the way!

Hi there, Over the last few months I have been working on a book that puts together, for people with PMR and GCA, what I have learned over the years working...

Hi there, Over the last few months I have been working on a book that puts toget...

Polywotsit

PMRGCAuk team member•10 years ago

6 Replies

Newly diagnosed "younger" age !! 47 years old and confused

Hello everyone. I woke up one day in January 2013 in quite a physical state. I was 46 and very fit and active. I work full time in the NHS and I was walking...

Hello everyone. I woke up one day in January 2013 in quite a physical state. I...

Fluffyjoy

•10 years ago

34 Replies

Any suggestions on steroid sparers?

It's been just over a year of taking 25 mg of methotrexate and I have managed to get down to 8 mg from 20mg but I still have lots of pain and stiffness all...

It's been just over a year of taking 25 mg of methotrexate and I have managed to...

missretired

•10 years ago

7 Replies

Vitamin D - or not

Reputable websites such as Patient UK and Arthritis Research UK recommend that PMR sufferers take vitamin D. Also, research has indicated that vitamin D...

Reputable websites such as Patient UK and Arthritis Research UK recommend that P...

Badgergirl

•10 years ago

25 Replies

To head off a flare, I increased Pred. dose to 7.5 mg. ,and now can't sleep at nite .

To head off a flare, I have increased Pred back to 7.5. Am also packing up our home and actively looking for new one with NO stairs! The thrift store is...

To head off a flare, I have increased Pred back to 7.5. Am also packing up our h...

1Purplecrow

•10 years ago

5 Replies

CORTISOL BLOOD TEST

My Rheumy has instructed me to have a cortisol blood before I take a further reduction in Pred. At present on 8 mg. Has anyone had this test and if so how...

My Rheumy has instructed me to have a cortisol blood before I take a further red...

hwigston

•10 years ago

10 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for February 2014

Why no ESR test?

Kate's book PMR & GCA A Survival Guide.

Polymyalgia Rheumatica and Giant Cell Arteritis: A Survival Guide. This book is a must for your bookshelf or kindle

Giving up Prednisolone too soon?

Community passes the 700 member mark!

Cortisol Blood Test Result

Estrogen

Yet Another Hurdle !! Another flare-up , let's hope the Depo- Medrone 150mg injection works.?

Progress report.

Five weeks later.

Why do I feel so weak

Has anyone had any problems wearing contact lenses whilst taking steriods?

Can Sleep Deprivation Cause PMR?

Hi Has there been an article in the Daily Mail recently about GCA?

Worried after visit to doctor today

Does anyone get cramp like pain in legs

I need some advice after a visit to my doctor today.

Book on PMR and GCA available now!

Has anyone else experienced a slight rash and burning sensation from ankle to mid calf? This only seems to happen in the evening..

Methotrexate........ friend or foe.

DAILY MAIL ARTICLE

Can prednisolone cause sub-conjunctival haemorrhage?

Does anyone live in Devon or Cornwall please I live in Plymouth

Found link to Christine Northrup and information on adrenal dysfunction

Book on the way!

Newly diagnosed "younger" age !! 47 years old and confused

Any suggestions on steroid sparers?

Vitamin D - or not

To head off a flare, I increased Pred. dose to 7.5 mg. ,and now can't sleep at nite .

CORTISOL BLOOD TEST

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