Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,301 members • 38,033 posts

All posts for May 2022

Adrenal glands

What are the signs that my adrenal glands are working? I’m currently down to 4mg 2 days prednisone and alternating to 3.5 one day in attempt to get to 3.5

What are the signs that my adrenal glands are working? I’m currently down to 4mg...

Pmrinsein

•2 years ago

12 Replies

Covid booster and methotrexate

Good afternoon all. I am on 18mg of predicted and 15mg methotrexate. I was put on mtx approximately 5months ago, even though my inflammation levels were high....

Good afternoon all. I am on 18mg of predicted and 15mg methotrexate. I was put o...

Bibberty

•2 years ago

7 Replies

Help for jelly legs?

I am fortunate to tolerate pred really well. On 60 mg for almost a month for GCA and PMR two and a half years ago. Early on got alarming muscle wastage...upper...

I am fortunate to tolerate pred really well. On 60 mg for almost a month for GCA...

agingfeminist

•2 years ago

52 Replies

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Asma symptoms

Can PMRA GCA give problem with lung asmatic symptoms

Ronzy

•2 years ago

4 Replies

Can we take AD-cal at the same time as Pred?

Greetings one and all. At some time in the last year I read, somewhere (??) that I shouldn't take my Pred at the same time as my Adcal - but I now I can't...

Greetings one and all. At some time in the last year I read, somewhere (??) th...

Prof99

•2 years ago

21 Replies

Am i getting anything from 2mg pred or is it just reassurance ?

hi i was diagnosed with pmr in jan of 2021 . Initially put on 30 mg of pred but managed to reduce over a short time to 10 and then took it very slowly at about...

hi i was diagnosed with pmr in jan of 2021 . Initially put on 30 mg of pred but ...

Mofred

•2 years ago

6 Replies

Need to taper asap

Steroids have tremendously helped me with all my muscle pain but they are coming with a high cost as they have caused my digestive system to shut down which in...

Steroids have tremendously helped me with all my muscle pain but they are coming...

perceptual63

•2 years ago

32 Replies

Vasculitis

I was diagnosed with Vasculitis last year. I’ve had another pet scan recently which shows that it has got worse and it involves several vessels. I have been...

I was diagnosed with Vasculitis last year. I’ve had another pet scan recently w...

Creamtea

•2 years ago

6 Replies

Muscle wastage

Kind of surprised I didn't see an FAQ for this. I think I remember it's being mentioned before multiple times, but a quick search seems to show that it was...

Kind of surprised I didn't see an FAQ for this. I think I remember it's being m...

winfong

•2 years ago

49 Replies

Decreasing dose.

After sometime on 10 mgs.. I tried 2 days on 9.5 woke up in the the night with acute pain in right shoulder and inside arm! Took several doses of cocodomol! so...

After sometime on 10 mgs.. I tried 2 days on 9.5 woke up in the the night with a...

Bedwell

•2 years ago

65 Replies

Fluid Retention adding to my walking difficulty

I have fluid retention in my lower legs, ankles and feet, more in right ankle than left one, the right is where I have achilles problem, its not horrendous...

I have fluid retention in my lower legs, ankles and feet, more in right ankle th...

HappyDiamonds

•2 years ago

22 Replies

Study looking into the effects of the COVID-19 vaccine in patients with autoimmune diseases

Yet again - thanks to LupusUK for publicising Covid surveys relevant to us! Please take part in this survey for a study looking into the effects of the...

Yet again - thanks to LupusUK for publicising Covid surveys relevant to us! Plea...

PMRpro

Ambassador•2 years ago

35 Replies

Too much vitamin D? Maybe Not!!

I do have the results after all. The comment says normal and the figures are 141 nmol/L >51. Can anyone tell me what they actually mean please. Thanks

I do have the results after all. The comment says normal and the figures are 14...

Omanain

•2 years ago

1 Reply

Adrenals stuttering to life?

After a reasonably uneventful journey from 20mg pred in Jan 2021 (PMR diagnosed early Jan, triggered I think by the first Covid vaccination) to 7mg in April, I...

After a reasonably uneventful journey from 20mg pred in Jan 2021 (PMR diagnosed ...

bussell

•2 years ago

32 Replies

Flying / anxiety / stress / Insurance / Critically sick brother

Hi - I have posted before about my trips to South Africa and Australia. Really need wise advice now. I have had such stress around this and the travel...

Hi - I have posted before about my trips to South Africa and Australia. Really n...

Slosh

•2 years ago

33 Replies

Help medications

Hi I’m new here I’m just wondering can anyone help me with side affects from these two medications, I don’t even know what community to be in as doctors don’t...

Hi I’m new here I’m just wondering can anyone help me with side affects from the...

Pinkseptember

•2 years ago

17 Replies

Steroid purpura~ not to worry

I took it upon myself to see a hematologist. The only thing I can't deal with is the unknown. These blotches, large and small, are constantly on my legs and...

I took it upon myself to see a hematologist. The only thing I can't deal with i...

Grammy80

•2 years ago

53 Replies

Good news - I am done with PMR!

I want to share some good news... finally my PMR has left me after more than 6 years (December 2016 it began). I had been tapering for the last 6 months but...

I want to share some good news... finally my PMR has left me after more than 6 y...

thepainterlyone

•2 years ago

34 Replies

factor 5 leiden

does everyone get clots with this gene

LISaprag

•2 years ago

6 Replies

A bit about cortisol levels etc

I have never written a post but find this forum amazingly useful. There are some very knowledgeable folk around who are willing and able to give almost daily...

I have never written a post but find this forum amazingly useful. There are some...

Caroline2079

•2 years ago

15 Replies

GCA with normal CRP but high ESR?

I have been in remission from GCA for about 10 months. I went to A&E this week after persistent headaches for about 3 weeks, together with other new symptoms...

I have been in remission from GCA for about 10 months. I went to A&E this week a...

pinks33

•2 years ago

29 Replies

Prednisolone palpitations?

I am experiencing palpitations (racing heart?) shortly after I wake up in the morning. It tickers anxiety. Is that maybe a side effect of prednisolone? I am on...

I am experiencing palpitations (racing heart?) shortly after I wake up in the mo...

krillemy

•2 years ago

23 Replies

Advice needed

Hi I am new to the group. I have seen a consultant who suspects temporal arteritis. I have taken my weekly alendronic acid tablet this teatime by mistake....

Hi I am new to the group. I have seen a consultant who suspects temporal arterit...

Hidden

•2 years ago

1 Reply

Advice please

Hi, I have seen a consultant, and am taking Alendronic Acid tablets once a week., as she suspects have temporal arteritis. I have mistakenly taken my...

Hi, I have seen a consultant, and am taking Alendronic Acid tablets once a week...

Hidden

•2 years ago

7 Replies

Thank you for a lovely welcome

Jut wanted to say thank you for the many welcome messages sorry I haven't responded until now however I had surgery on Wednesday, home on Thursday so beginning...

Jut wanted to say thank you for the many welcome messages sorry I haven't respon...

misnomer

•2 years ago

8 Replies

COVID - after all this time.

Hello. I am 68 and have had PMR for four and a half years - 4th jab back in February. Having been super careful for a couple of years, I went to a friend’s...

Hello. I am 68 and have had PMR for four and a half years - 4th jab back in Febr...

MaritimeMags

•2 years ago

33 Replies

Prednisolone and Rivaroxaban

I have been on Rivaroxaban for a number of years due to Afib. Just had blood test and my ESR is 60 CRP Normal so GP has added Predisolone to my daily intake. I...

I have been on Rivaroxaban for a number of years due to Afib. Just had blood tes...

JJPenparc

•2 years ago

21 Replies

How to go down from prednisone 10 mg

My wife for GCA ! Inflammation, is on prednisone from last 10 months at present she is on 10 mg from last 3 months , she get flare heaviness in ear , eye...

My wife for GCA ! Inflammation, is on prednisone from last 10 months at presen...

Rajuguide

•2 years ago

8 Replies

Cortisol level

First of all I do apologise for the repetitive nature of this post as I can see that someone else has posted on a similar issue. I have been informed today...

First of all I do apologise for the repetitive nature of this post as I can see ...

yorkieme

•2 years ago

15 Replies

I d bracelet

Please can any one advise me what to have wrote on my I d bracelet. As I am bothered about putting wrong. Medical info on. . I guess name d o b nhs no. But...

Please can any one advise me what to have wrote on my I d bracelet. As I am bot...

zoey12

•2 years ago

14 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2022

Adrenal glands

Covid booster and methotrexate

Help for jelly legs?

Asma symptoms

Can we take AD-cal at the same time as Pred?

Am i getting anything from 2mg pred or is it just reassurance ?

Need to taper asap

Vasculitis

Muscle wastage

Decreasing dose.

Fluid Retention adding to my walking difficulty

Study looking into the effects of the COVID-19 vaccine in patients with autoimmune diseases

Too much vitamin D? Maybe Not!!

Adrenals stuttering to life?

Flying / anxiety / stress / Insurance / Critically sick brother

Help medications

Steroid purpura~ not to worry

Good news - I am done with PMR!

factor 5 leiden

A bit about cortisol levels etc

GCA with normal CRP but high ESR?

Prednisolone palpitations?

Advice needed

Advice please

Thank you for a lovely welcome

COVID - after all this time.

Prednisolone and Rivaroxaban

How to go down from prednisone 10 mg

Cortisol level

I d bracelet

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