Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,272 members • 37,957 posts

All posts for December 2021

A message from yogabonnie

Yogabonnie is having difficulty posting anything on our forum at the moment and has emailed me and asked me to wish you all a Very Happy New Year!

Yogabonnie is having difficulty posting anything on our forum at the moment and ...

Kendrew

•2 years ago

7 Replies

Happy New Year

Happy New Year to everyone on this forum, you all help and advise but of course a very special thank you to the ambassadors. Take care.

Happy New Year to everyone on this forum, you all help and advise but of course ...

yorkieme

•2 years ago

2 Replies

My average day

Wake up approx 9 am then about 9.30 Pred and painkillers and cup of tea in bed. Sit looking at phone til 10.30. Up wash slowly dress slowly. Come downstairs,...

Wake up approx 9 am then about 9.30 Pred and painkillers and cup of tea in bed. ...

Uglow

•2 years ago

13 Replies

Want to take advantage of all our features? Just log in!

sulfasalazine

Thank you to all who replied to my question about sulfasalazine. I really appreciate your advice. May you all on this site Have a Happy, Healthy New Year....

Thank you to all who replied to my question about sulfasalazine. I really appre...

Summerrental

•2 years ago

Be the first to reply

Happy New year

From "George" and myself, wishing you all the best for 2022. May all your dreams come true. If nothing else then hopefully, fingers crossed, down hill,...

From "George" and myself, wishing you all the best for 2022. May all your dream...

Bcol

•2 years ago

10 Replies

2022

A Happy New Year to everyone in this amazingly supportive, friendly group.💓

123-go

•2 years ago

8 Replies

Goodbye 2021 and Welcome 2022

Just clink on the link and think of yourselves when you were younger and have a happy smile....

Just clink on the link and think of yourselves when you were younger and have a ...

jinasc

•2 years ago

10 Replies

sulfasalazine,

Has anyone used sulfasalazine, as a steroid sparer. My Rheumy wants me to try to reduce from 10 mg pred.

Has anyone used sulfasalazine, as a steroid sparer. My Rheumy wants me to try ...

Summerrental

•2 years ago

9 Replies

Happy New Year

With love and gratitude to everyone who has made me feel less scared. Wishing you all good things for 2022. HAPPY NEW YEAR

With love and gratitude to everyone who has made me feel less scared. Wishing y...

Kendrew

•2 years ago

11 Replies

Does anyone have ankle swelling and leg pain?

I have had ankle swelling from fluid retention from prednisone but I never had pain before. My calf and shin is also very painful. I have a hard time putting...

I have had ankle swelling from fluid retention from prednisone but I never had p...

nallufl24

•2 years ago

11 Replies

How long do you wait to know it's a flare?

Hi folks, Kiko here, I'm a noob looking forward to learning and hopefully sharing my experience. Recent diagnosis of PMR, on 15mg Prednisone for 3 weeks and...

Hi folks, Kiko here, I'm a noob looking forward to learning and hopefully sharin...

SapoKiko

•2 years ago

10 Replies

shingles pain.

Hi, I have just got shingles. I managed to get some antiviral tablets from an emergency doctor. Have been taking them for three days but the course is for...

Hi, I have just got shingles. I managed to get some antiviral tablets from an em...

195536

•2 years ago

7 Replies

Tovilizmuab

Is anyone here on the new trial drug Ticilizhuab? I think it administered once a month and would greatly value your thoughts. I am steroids but gather that...

Is anyone here on the new trial drug Ticilizhuab? I think it administered once a...

Ttypoo

•2 years ago

5 Replies

Some advice needed please

I was diagnosed with PMR in Feb 2021 & started on 15mg pred. I am using the DSNS taper & am at 12 mg tapering to 11mg. I have had excruciating pain in my...

I was diagnosed with PMR in Feb 2021 & started on 15mg pred. I am using the DS...

JEMOK

•2 years ago

7 Replies

Worries about the drop but under orders for scan

Hi. I have mentioned my fast taper before. But feel dreadful and am worried. Quick recap I'm reducing by 2.5 per week or was told to, (I've slowed it down) on...

Hi. I have mentioned my fast taper before. But feel dreadful and am worried. Qui...

Buttonshutton

•2 years ago

65 Replies

Advice please

I was diagnosed in July, put on 15mg pred and have been reducing at 1mg per month. My main continuing problem is fatigue, but I have learnt what I can and...

I was diagnosed in July, put on 15mg pred and have been reducing at 1mg per mont...

jinoadby

•2 years ago

7 Replies

New Omicron Symptom - Skin Rash

The Zoe app has found a new symptom for the Omicron variant, a skin rash has now been labelled as "key" if you think you might have the variant. People have...

The Zoe app has found a new symptom for the Omicron variant, a skin rash has now...

piglette

•2 years ago

27 Replies

Down to 6mg but feeling it! Shall I persevere?

I went to Cape Verde on holiday at the start of December and was worried I may have a flare. I was on 7.5mg pred and I was great. Since then I’ve gone down to...

I went to Cape Verde on holiday at the start of December and was worried I may h...

MiloCollie

•2 years ago

13 Replies

The Royal Institution Christmas Lectures - all about Covid with Jonathan Van Tam

If you want a really clear and simple explanation of everything Covid and virus-related look for these lectures on BBC Four or iPlayer if you can access them...

If you want a really clear and simple explanation of everything Covid and virus-...

PMRpro

Ambassador•2 years ago

31 Replies

Tocilizumab/Actemra extension to March 2022

Hi, I have searched past posts and can't find it anywhere, but am pretty sure someone posted that TCZ had been extended to March 2022. I am seeing my...

Hi, I have searched past posts and can't find it anywhere, but am pretty sure so...

Sophiestree

•2 years ago

13 Replies

Transition from Disease to Health.

Well, to report progress along the way I think I have got through the flare of GCA to a stable state albeit back on 35 mg pred. It's taken a couple of months...

Well, to report progress along the way I think I have got through the flare of G...

cycli

•2 years ago

85 Replies

Hi there I have suffered from PMR for over a year now I had weaned myself down from 20mgs to 8mgs - now up again -

Then due to a chest infection i was upped back to 20mgs Can i now revert to my old dose of 8mgs or do i need to start the whole tapering lark again maureen

Then due to a chest infection i was upped back to 20mgs Can i now revert to my ...

Molefosey

•2 years ago

2 Replies

Sudden hot pink rash on my cheeks.

I have eaten moderately and drank hardly any alcohol over Christmas but I have suddenly developed a rash on my face with lumps - very hot. What can it be? I...

I have eaten moderately and drank hardly any alcohol over Christmas but I have s...

SheffieldJane

•2 years ago

61 Replies

Tapering Pred, on Tocilizumab,

Hello dear experts! I finally received my TCZ injection pens after some months delay - I will take my 7th dose ( 48 prescribed) tomorrow. I was on 22.5 mg Pred...

Hello dear experts! I finally received my TCZ injection pens after some months d...

Jonimoroni

•2 years ago

21 Replies

High ferritin levels

Good evening one and all - and in advance I want to wish you all a happy new year, one that is healthier for us all. My serum ferritin level has gone up even...

Good evening one and all - and in advance I want to wish you all a happy new yea...

Doraflora

•2 years ago

4 Replies

How NOT to survive Christmas with PMR!

Some of you may remember that some time ago now, I posted some information about how I was managing my own PMR experience with different strategies I'd put in...

Some of you may remember that some time ago now, I posted some information about...

Kendrew

•2 years ago

101 Replies

Advice please?

Please can anyone offer some advice on what I should do if anything (sorry for long post) xI’ve had PMR since Oct 2018, tapering from 15mg down to 1mg in...

Please can anyone offer some advice on what I should do if anything (sorry for l...

Bloomsbury123

•2 years ago

42 Replies

Tapering

Would like to know if it is OK to go down til 8mg.on jan1st.am on 10mg.at mo,been on that for 2 months now,am suppose to go to 7.5mgs.,but been having pain in...

Would like to know if it is OK to go down til 8mg.on jan1st.am on 10mg.at mo,bee...

Flosy

•2 years ago

7 Replies

Don’t seem to be receiving posts via email.

Just wondering what to do. It hasn’t happened before. I thought everyone was cured. 🙏

Just wondering what to do. It hasn’t happened before. I thought everyone was cur...

SheffieldJane

•2 years ago

22 Replies

What has happened to the News Feed !!

I wonder 🤔🤔 if the techs have been working on an upgrade and done something new without realising they have knocked the feed out. I receive zilch till...

I wonder 🤔🤔 if the techs have been working on an upgrade and done somethi...

jinasc

•2 years ago

11 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for December 2021

A message from yogabonnie

Happy New Year

My average day

sulfasalazine

Happy New year

2022

Goodbye 2021 and Welcome 2022

sulfasalazine,

Happy New Year

Does anyone have ankle swelling and leg pain?

How long do you wait to know it's a flare?

shingles pain.

Tovilizmuab

Some advice needed please

Worries about the drop but under orders for scan

Advice please

New Omicron Symptom - Skin Rash

Down to 6mg but feeling it! Shall I persevere?

The Royal Institution Christmas Lectures - all about Covid with Jonathan Van Tam

Tocilizumab/Actemra extension to March 2022

Transition from Disease to Health.

Hi there I have suffered from PMR for over a year now I had weaned myself down from 20mgs to 8mgs - now up again -

Sudden hot pink rash on my cheeks.

Tapering Pred, on Tocilizumab,

High ferritin levels

How NOT to survive Christmas with PMR!

Advice please?

Tapering

Don’t seem to be receiving posts via email.

What has happened to the News Feed !!

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